Search results for query: Myoclonus

...right ear. My baseline tinnitus is a high-pitched hissing on the right side with a small mid-frequency hum. I also experienced middle ear myoclonus (MEM) in 2020, which went away but came back throughout 2024 on and off. Thankfully, the MEM has subsided now. Recently, I started using a nasal...

Only here, my ENT hasn't even mentioned it. Another personal hell with no treatment? Who would test for this? My GP? ENT? Lord I hope it's not the latter, they didn't even mention it. All they want to do now is get me to come in for an allergy test.

Have you heard about different kinds of myoclonus? Either in the middle ear or palatal myoclonus?

So the roof of your mouth is spasming?

I suspect that. Plus the fact that I have seen other cases of palatal myoclonus from antibiotics (they are somewhat epileptogenic). I have seen reports of Ciprofloxacin causing palatal myoclonus. Combine that with the fact that last summer I had severe problems from a neuroleptic drug (they are...

Sounds like myoclonus. Stapedial or TTTS. Or some problem with your Eustachian Tube.

I have taken it for cramping tensor tympani and it worked very well but with diminishing effect over time.

Hi there, I wanted to reach out to you. You posted four years ago that ritrovil helped resolve your middle ear myoclonus, can I ask what your symptoms were that it helped resolve and how long it took, do you still take it? Thanks so much, also if you have tinitus what medications or treatments...

I did have a bad hyperacusis as well, but now it got better... Could you please tell me more about myoclonus?

JayG what you are describing is middle ear Myoclonus. Some of us on this forum have it. It's rare and difficult to treat. Please see this thread https://www.tinnitustalk.com/threads/for-those-with-middle-ear-myoclonus.16222/#post-300227 I actually don't think it's the middle ear muscles. I...

Went to the GP today. He was very cordial, but he denied the amoxicillin caused the myoclonus. He said that it was my anxiety disorder that caused it. I'm like WTF, he wanted to give me a referal to a psychiatrist, I was like "NO, THIS CALLS FOR А NEUROLOGIST", like are these doctors trying to...

This study showed how treating palatial myoclonus treated a patient's depression so what did they conclude? (Discussion continued below)

I know Middle Ear Myoclonus (MEM) appears to be quite rare. Mine is pretty bad right now. Is there anything I can try such as muscle relaxers or supplements to try and reduce it? It's been crazy for 2 weeks non-stop.

Yes I experience a humming/vibration almost generator like sound/feeling. I also feel something spasming in both ears at times (it's not the ear drum fluttering). Has anyone connected this feeling to tensor tympani myoclonus or stapedius myoclonus?

I already tried Klonopin for the myoclonus, it didn't stop it. Baclofen controlled it, but it brought back the tinnitus. I take Klonopin 1 mg for sleep now, but unfortunately it doesn't control the myoclonus. I have no way of knowing if it is moving while I sleep, but my guess would be that it...

Yep, sounds like middle ear myoclonus. I also had pulsatile tinnitus for many ears, but developed constant ringing in my ears 2 months ago, and myoclonus. When searching the internet, I have noticed that many people who have pulsatile tinnitus, seem to develop ear myoclonus! There might be a...

Thanks. So the myoclonus was gone all day yesterday until I woke up in the middle of the night to use the bathroom. It was banging away then. It was about 3:30 am. When I woke up it was gone! What a pleasant surprise. So far today it isn't back and it is after sundown too. Hoping this is a good...

This is called myoclonus.

Sounds like Middle Ear Myoclonus.

...I saw a specialist last week and am now being referred to a super-duper specialist, although not holding out any hope. P.S. One of the many health professionals I've seen in the last year has put me forward for physiotherapy. What kind of physiotherapy is there for Middle Ear Myoclonus...

@japongus There's a new thread about Stapedius myoclonus surgery up at chat-H. Don't know if you're still banned from there though, but I thought of you when I saw it. http://www.chat-hyperacusis.net/post/stapedius-myoclonus-surgery-8394482

So far I haven't heard a good case with Botox, except when the ear spasm happens due to Palatal Myoclonus where Botox does help. I heard that doctors are scared to put Botox in the ear muscles because they don't know what issues it can cause.

Your story sounds very similar to what I have been experiencing over the past few years. However, I did not take any SSRI or similar medication. It all seems to have happened to me without any clear cause. Over the last four years, my symptoms have been building up — tinnitus, TTTS, random...

...going through that kind of crap. No one deserves such an ailment. I've got a question though. How did they decide on the Middle Ear Myoclonus (MEM) diagnosis? Do you have thumping/fluttering/spasming in the ear? Sorry if you mentioned it in the above conversation and I missed it. I mean...

The symptoms he’s describing sounds like a syndrome called “MEM” (Middle Ear Myoclonus).

@Chelles - yes, I know that we don't have the typical palatal myoclonus which produces a clicking sound while contracting rhythmically, but I'm wondering if the palatal myoclonus could be so subtle that no doctor can see the movement of palate but we sufferer can feel it in the area of our...

...accounts and threads, emailed a few of them too, and I've looked it up on google and libgen.io/scimag, with search terms like ''middle ear myoclonus'' or ''middle myoclonus'' and so on, and you get a few that talk fairly ambiguously of things like subjective hyperacusis when they're looking...

Well after doing a test of eating more and more carbs gradually over a few days the tinnitus is heavier louder and the myoclonus began again. So I'm going to go back to keto/high fat low carb diet and will see how long (and if at all) it can help with the myoclonus and tinnitus. Both of these...

https://www.tinnitustalk.com/threads/myoclonus-of-the-middle-ear-stapedius-muscle-and-tensor-tympani-surgery.3924/ https://www.tinnitustalk.com/threads/eardrum-vibration-tensor-tympani-myoclonus.1198/#post-37090...

Hope your myoclonus stays away! Tinnitus is a strange thing, does whatever it wants which makes it so unnerving... Plus we have zero control. My tinnitus has been terrible during lockdown but has calmed down a bit, giving way to the horrible myoclonus. Our brain is chief executive of our whole...

Hi Hichem, The twitching may be middle ear myoclonus. Check out tensor tympanic, stapedial, and palatal myoclonus. Middle ear muscle spasms that can be very disturbing. Often brought on from stress/anxiety or other neuro disorder. A good ENT will be able to confirm. Hope you feel better.

I have an unusual form of tinnitus. It is in my right ear only. It sounds like water dropping on my eardrum - click, click, click all day and night. It is called tensor tympani myoclonus. It responds to Amitriptyline.

Hey, I just started using Floradix magnesium to try and resolve Middle Ear Myoclonus - which it did mostly. However, it also seems to have coincided with a new tinnitus tone which also includes constant slight crackling too for 3 days now, although I'm not sure if that's from the magnesium or...

Hello I have hyperacusis and stapedius myoclonus from 2010. Someone have visited this clinic? I don't know is be worth the effort travel there. I need to know if I need a surgery or botox or... for my stapedius myoclonus. http://www.clinique-causse.com/ thanks and a hug

...used this web page, to determine the frequency. It's only 76 Hz (cycles per sec). I'm trying to determine if it's tinnitus or stapedial myoclonus. If the latter, I'm going to opt for surgery. But can tinnitus occur at such a low level? It almost always occurs when I'm in a quiet or...

Hello, I am in the same boat. I am taking Mysoline for my Palatal Myoclonus and it does decrease it, however, it doesn't stop it. I am going absolutely insane that this is going to be a permanent condition. I cannot live with this.

...regular tinnitus. It is not continuous either. This makes me suspect a middle ear muscle problem, given the regular pressure and middle ear myoclonus symptoms in my ears. In my case, I do not hear the distortion inside my ears. It feels like these distorted sounds are coming from the source...

@mermaid from my research palatal myoclonus is more common also if you research it (the ones I've found) are visible and it makes a clicking sound. That's very different from what I hear and feel. This is an example of palatal myoclonus Sent from my iPhone

My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But just recently I’ve developed MEM, which is honestly ruining my life and sleep. Very little is known about this condition in my country. So a bit...

Sounds like Tensor Tympani Syndrome and/or Stapedius Myoclonus.

...early and he wants me to discontinue a certain medication I've been on for over five years because he read somewhere it can cause myoclonus. If that doesn't work, he said we can try the Botox. I'll let everyone know how things go. I don't see him again for a few more months. This is where I...

...side experiencing ringing, is protruding. I read online that it could be caused by a middle ear infection. I am suspected to have Stapedial Myoclonus, though I don't know if that is a middle ear infection. At this point, I don't even know if it is mastoiditis. Basically, my right ear rings...

Im loocking for a middle ear myoclonus specialist

Palatal Myoclonus is notorious for not responding to one specific med. Multiple have to be tried. Unfortunately sometimes it is stuff like Klonopin that works. Do you know if it happens while you are sleeping?

...one ear, and hyperacusis in both ears. I have come to realize that imo, I never had loud standard subjective tinnitus; I have only had the myoclonus/objective tinnitus. I did get a distant helicopter rumbling as the myoclonus caused the eardrum to rumble. My hyperacusis comes back in tadem...

Well, there's not much info about it. Neither patients or doctors knows much about hyperacusis, TTS etc at the moment. There is this thread about Botox for middle ear myoclonus: https://www.tinnitustalk.com/threads/middle-ear-myoclonus-a-treatable-cause-of-objective-tinnitus.4096/

Do you think Lenire could also treat symptoms of vibrations/myoclonus of the eardrum? (Caused by muscles...)

It could be some sort of middle ear myoclonus if you have hyperacusis.

I'm not sure, because this does not sound exactly like that, but middle ear myoclonus/TTTS present itself tipically in intermittent sounds, but more like thumping or clicking.

I now believe this is middle ear myoclonus. Tympanic Resonance Hypothesis At times my voice, pulse, and head movements resonate from my neck to my ear. Does anyone get these symptoms and had a diagnosis / cure?

i have this too, it s from sounds, it much more at the mornings whene i weak up. i sure this is not myoclonus

Yes maybe I have stapedial myoclonus and not TTS then. But I think I have mild TTS also, it's the sound that resembles a flapping flag.

Mike I have the same generator noise and vibration through the whole head:( Is yours constant and how do you cope?

hi are you moshe mitrani, the user in the middle ear myoclonus thread?

Definitely sounds like Tonic Tensor Tympani Syndrome/myoclonus. I agree with @Cal18

@ridgew how long have you had myoclonus? Is yours 24/7?

anybody find anything that has helped the myoclonus? It's driving me nuts and I can barely do life.

...of tinnitus. But of course has a completely different etiology than the "eeeeeeeeee" T. I heard that clicking can be cause by ETD (Eustachian tubes dysfunction), tympanic myoclonus, as well as soft palate myoclonus, which are other neurological problems than neurons hyperactivity, of course.