Suicidal

Discussion in 'Support' started by jeremy06, Oct 14, 2018.

    1. PeteJ
      Aggressive

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      I get Magnesium Bisglycinate. Any brand. I don't know if it helps but I figure, it can't hurt.
       
      • Helpful Helpful x 1
    2. PeteJ
      Aggressive

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      The problem is lots of people have a physician who will refer a psychiatrist but what if one of those people who has a doctor WHO WON'T?

      From my experience, doctors in general are horrible people - some of the most cold-hearted and callous people around (up there along with cops and politicians) - which is ironic considering their chosen profession.

      As some people said, it seems easier or an easier process in various American states. But, what if your family physician is not accommodating and not supportive? What if you don't have a psychiatrist in your corner?

      I'm nervous about an impending appeal - my last chance. I don't want to repeat this entire process again - it has taken about 3 years?
       
      • Agree Agree x 2
      • Hug Hug x 2
    3. tpj
      Depressed

      tpj Member Benefactor

      Tinnitus Since:
      08/2008
      Cause of Tinnitus:
      probably noise
      Thanks Pete. Good luck with your appeal.
       
      • Friendly Friendly x 1
    4. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      All I know is without a psychiatrist in your arsenal it is like playing chess with 1 Rook.

      I don't know what to tell ya buddy. You def need a family doctor sympathetic to your cause because that's the backbone of your claim. I wish you success.
       
    5. PeteJ
      Aggressive

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      Are you on disability?

      My doctor wasn't really helpful or sympathetic early on (well, he thought he was) but I kept explaining my situation and condition - visiting several times (pre-pandemic). Eventually, he wrote a letter of support (although, still lacking, imho), so it was better than his initial notes to disability. I was still denied twice and on appeal. This is my last chance and if declined again, you start all over again. I don't want to imagine...
       
    6. PeteJ
      Aggressive

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      Thanks. I hope the Magnesium helps you.
       
      • Hug Hug x 1
    7. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      Agree with this. From what it seems, they are not in it because of a profession for helping people, but rather family expectations or money. You need to have an analytical and logical mind to be a doctor, which leaves bedside manner--and nuanced thinking for patients who happen to be outliers--a lot to be desired.

      I hope you can succeed with this PeteJ. I've read your posts from the past regarding disability, regarding the importance of the mental health aspect. Do you have a lawyer all set up? Are they supportive?

      Also yeah, having a lot of people "in your corner" is helpful. I don't know if you've been doing it, but I've been trying to pull out all the stops getting in on things like DMH just to have a bigger support network. I do fear that without a doctor's final word, since that's all people seem to give a shit about, it won't mean much, but at least having more supports and people potentially being able to find someone willing to help would be good.
       
      • Helpful Helpful x 1
    8. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      My Canada Day/4th of July barricade.

      20220622_180842.jpg
       
      • Like Like x 3
      • Agree Agree x 1
    9. LilCC

      LilCC Member

      Location:
      Florida, U.S
      Tinnitus Since:
      11/2020
      Cause of Tinnitus:
      Exposure to loud noises
      Fuck! Not looking forward to 4th of July.
       
      • Like Like x 2
      • Agree Agree x 2
    10. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      Tinnitus loud and whistling. Can hear someone opening a beer bottle in the kitchen from my bedroom. Thanks TRT, you sure are helpful.

      I told my audiologist I was getting worse and she said it was a positive. Why?

      I spoke to another person who did recover from TRT and they claimed it only helped them, never made them more sensitive. And that hearing protection made it worse. Well, it's the opposite for me. And many others. Why won't the people who get worse with noise and better with quiet be believed?

      Can't get a straight answer either. I asked, why is me getting worse 'a good thing'? But nothing. I hate this goddamn industry, and I'm sick of living in the Twilight Zone where everyone thinks I'm crazy. Do I need to make my already sub 40 dB LDLs even worse for 6+ months only for people to be satisfied, for me to write it off and give them the "told ya so"?
       
      • Hug Hug x 4
      • Agree Agree x 1
    11. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      TRT is such a scam, you fell for it.
       
      • Agree Agree x 2
    12. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      I didn't fall for it. I was always skeptical but I have no other options. And trying this treatment is the only way to tell disability that I've at least tried everything and that I can't get better. I have severe loudness hyperacusis so my chances were a bit better than pain hyperacusis cases. But I just clarified with the audiologist today and she said that if they are making me worse, I should stop.

      I lost no money, they were fully covered by insurance.

      I believe sound therapies, not always just TRT, can help some cases of hyperacusis. I don't know if I will try other approaches, because it seems my brain just does not like sound period. I want to believe in central gain models, I want to believe this "overprotection" myth, but all evidence regarding my own case stacks against it. There is no hope.
       
      • Hug Hug x 3
    13. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Sorry you’re getting worse. I had to do the lowest possible sound and maybe 10-15 minutes at a time in the ears and maybe an hour on phone. Tinnitus was worsening for a bit, then started to improve quite a bit. Then COVID-19 struck and well, we will see, it’s squealy again now.

      I do believe everyone is different.
       
      • Hug Hug x 1
    14. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      I haven't checked your thread in a bit, I'm glad your tinnitus is improving but I'm sorry you got COVID-19 and hope there's no lasting bad effects. I know it can be killer on the ears. I really want to learn about more 'getting worse before getting better' cases and believe, but at the same time it's so hard to hold onto this when my heart beat is so loud in my ears now and I'm losing more tolerances every day.
       
      • Hug Hug x 1
    15. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      I don’t know about no hope, but it’s hard as hell to find what helps you while you get worse while attempting different methods. I understand how discouraging it is. That and life does not let up.
       
      • Like Like x 1
      • Agree Agree x 1
    16. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      I understand, it’s good to hold off for now.
       
      • Agree Agree x 2
    17. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      Indeed. My audiologist also thinks I should look into other underlying medical causes, but it's so difficult to do so when I have to wait for so long, drag my ass to appointments while getting worse from setbacks, and doctors just shrugging their shoulders in the end due to being unfamiliar with hyperacusis or still thinking this is all in my head. It's maddening. Still no full analysis of my nervous system, and without an MRI, who knows what is possible?

      And I hate being stuck in the middle between teams "you aren't thinking positively enough" vs "you fell for the TRT scam" too, both online and offline. These comments hurt from both sides. What else can I do? If there was no loss here, I wouldn't care, the risk of going through the trials just to come out worse in the end is terrifying. But me not trying at all just convinces others I'm a faker who wants to remain miserable and uncured.
       
      • Hug Hug x 4
    18. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      You’re not doing wrong at all, you’re trying. Just because things aren’t helping now, it doesn’t mean it won’t help later ya know? Just need to keep pushing forward and somehow hope things don’t worsen at the same time. I’m in the same boat.
       
      • Hug Hug x 2
Loading...

Share This Page