Suicidal

Discussion in 'Support' started by jeremy06, Oct 14, 2018.

    1. BrysonKingMe

      BrysonKingMe Member

      Just a warning, you are seriously messing up your GABA receptors and making yourself prone to much worse tinnitus stopping, then starting, increasing and decreasing doses like that.
       
      • Agree Agree x 4
      • Helpful Helpful x 1
    2. Nick47

      Nick47 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      Thanks @BrysonKingMe.

      Is taking Clonazepam the way @Michael Leigh takes sustainable? Or is it a case of taking them regularly or not at all in your opinion?
       
    3. BrysonKingMe

      BrysonKingMe Member

      I agree with literally nothing that guy says, all my misery is due to Clonazepam so I am a bit biased and would say taper off completely and only use for extreme situations.

      Once I'm off I will never touch a benzo again.
       
      • Agree Agree x 2
    4. Nick47

      Nick47 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      Thanks very much for your honesty. If I understand correctly, you were on daily Clonazepam for 4 years? It's strange as the ENT in Harley Street London pumps that stuff out for fun for severe tinnitus.

      I think Diazepam is the lesser of two evils?
       
    5. BrysonKingMe

      BrysonKingMe Member

      Yes, I was on it for 4 years when my psychiatrist said I could just stop. I had 0 side effects besides irritability, and my tinnitus got better.

      When I reinstated, I had an extreme paradoxical reaction and it made the tinnitus go insane.

      Diazepam has a longer half life, but as far as withdrawal effects go, it is the same as any benzo.
      I also forgot to ask which Michael you were referring to --
      Michael the M.D. or Michael the Psychologist?
       
    6. Nick47

      Nick47 Member

      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      One and same?
       
    7. Chinmoku

      Chinmoku Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Started with a cold, possibly worsened by medication/noise
      I think Clonazepam affects both GABA-A and GABA-B receptors whereas Diazepam affects only GABA-A. This is why at times switching from Clonazepam to Diazepam doesn't work. Also, there are studies showing Clonazepam effectiveness for tinnitus but not Diazepam. Diazepam is definitely safer and easier to taper though.
       
      • Agree Agree x 1
      • Helpful Helpful x 1
    8. bobvann
      Vegged out

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Dr. Oetker.
       
      • Funny Funny x 3
    9. StoneInFocus
      Fine

      StoneInFocus Member

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Hearing damage, ear infections
      Hang on there buddy, your life is not over yet. There is still a good chance cannabidiol will provide us relief soon. I mean, you're from the US, the stuff is probably easier for you to acquire than me, my package is still stuck in transit. Try to distract yourself for as much as possible, these dark thoughts do you more harm then good. I've said this before but I highly recommend some exercise too. Wishing you the very best.
       
      • Friendly Friendly x 2
      • Like Like x 1
      • Optimistic Optimistic x 1
    10. GuitarMan

      GuitarMan Member

      Tinnitus Since:
      2010
      Cause of Tinnitus:
      Mild hearing loss due to high volume sounds
      1. Appointment with ENT was yesterday. So far I'd say it was useless, as I expected. He did not want to prescribe Clonazepam even at 0.5 mg a day which so far is the only thing that helps me. He did recommend trying Acamprosate but my own research shows that it has mixed results and even though it has been around for a very long time, it still isn't labeled for treating tinnitus. No evidence that it actually works.

      2. Gabapentin did not have any noticeable effect.

      3. I was taking up to 400 mg of Gabapentin a day.

      The fact that Gabapentin didn't work for me leads me to believe that Acamprosate won't work either because they both function in similar ways. But until I give it a try he won't prescribe any more Clonazepam. I'll be starting to look for off-shore pharmacies or other sources if I can't get an Rx locally. Might have to look at psychiatrists that just do medication management.

      I know the risks of dependence/tolerance/addiction very well and have used benzos on and off for 30+ years and have always self-managed without any issues. Lately I've been taking 0.5 mg every other or every third day. It really does help but the in-between days can get very annoying. I know better than to take it daily, even at such a low dose. I'm running low so it really would be nice to have a new Rx. I have nothing to lose by trying Acamprosate though so I'll give it a shot.

      My tinnitus was made worse by acoustic trauma but its underlying cause is hearing loss due to long term exposure to loud noise by playing guitar in loud bands for over 30 years.

      BTW, as for Mirtazapine, lower doses work better for sleep than higher doses. I take 7.5 mg most nights and within a half hour I start nodding off on the couch. Then again, I also combine it with Melatonin/Valerian and sometimes THC.
      How does he recommend using it?
      I don't know if I disagree with everything he says but I do find some of his ideas to not be supported by research or evidence other than anecdotes which only mention correlations rather than verifiable causations.
       
      • Hug Hug x 1
    11. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      Thanks, @StoneInFocus.

      Hope it helps! Keep us posted. I appreciate the help and support. :) I was worried about CBD cuz some people report it worsens them.
       
      • Agree Agree x 1
      • Friendly Friendly x 1
    12. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      The National Weather Service says that the likelihood of a person getting struck by lightning is roughly 1-in-15 thousand. So that means it’s more likely that a person will get fried by a thunderstorm at some point in their life than ever develop hyperacusis/noxacusis.

      The ear “experts” say that 1-in-50,000 people get hyperacusis, and I would venture to say it’s even more rare to develop severe hyperacusis/noxacusis.

      So it’s no wonder that society and the medical community doesn’t care about us sufferers — we’re so rare that it’s more likely to get struck by a bolt than ever get these problems, and clearly people at large are not worried about protecting from thunderstorms, so why would they worry about sound and the conditions we have?

      The unfortunate truth is that the cards are stacked against us with these problems, as we all know. Convincing people that our cause matters is so hard. Our quest is frowned upon by the masses, like a cesspool of dung that vies to be photogenic. They just think we’re a joke and should suck it up.

      upload_2022-9-22_19-47-54.gif
       
      • Hug Hug x 2
    13. forum_user

      forum_user Member

      Tinnitus Since:
      03/2022
      Cause of Tinnitus:
      SSRI, Noise, Stress ?
      I am so terrified of living with it forever, I can't... I really can not do it. I am crying my eyes out while thinking if dry fast would bring my life to a relatively peaceful end.
       
      • Hug Hug x 4
    14. StoneInFocus
      Fine

      StoneInFocus Member

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Hearing damage, ear infections
      Everything came through the mail and I am planning on starting a trial tomorrow.

      The reason I suspect some people reported adverse effects was because they used "CBD oil", which usually contains THC as well.

      As far as I know, no one on Tinnitus Talk has actually tried pure cannabidiol isolate before.

      It's also important to note that 'tinnitus' has never been officially recorded as a side effect of cannabidiol, see this pdf.

      I'll keep you updated for sure.
       
      • Like x 2
      • Agree x 1
      • Helpful x 1
      • Winner x 1
      • Friendly x 1
    15. MaxRabbit

      MaxRabbit Member

      Location:
      Los Angeles
      Tinnitus Since:
      06/2022
      Cause of Tinnitus:
      Likely Extreme Stress
      I'm in CA and pure CBD is sold in CBD clinics here. Tinctures, teas, oils. etc. No THC.

      I'm wondering how potent the medication is vs. the pure CBD you can buy.

      I've seen multiple people in the US state they used pure CBD (lab results posted - 0% THC) and not get relief. Why I wonder, if the medication is stronger vs the CBD I can pick up.
       
      • Good Question Good Question x 1
    16. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      I can't do this. I just cannot. I feel my last bit of sanity slipping away fast. Yesterday I came very close to doing what I do not want to do. I really don't want to die, but I have only a tiny bit of control left and even that's on slippery ground. This force in me is just too powerful. I can't be absolute sure, but I do think Mirtazapine is what's destroying me, but of course it's impossible to be fully sure.

      I can't taper slowly (that's already been tried), but I have to do WHATEVER in my power it takes to get off it, and FAST, because I AM DYING. I won't be able to fight of this force that's pushing me towards the edge much longer. I know it.

      What would you do in my situation? Use any other drug I can to pull through the withdrawal or stay on Mirtazapine and put another med on top?

      I don't know what to do... I don't know what's right. What's the least concerning drug to try (in terms of tinnitus and hyperacusis)? Anything else I can try? If you have any ideas, let me know. Please help!
       
      • Hug Hug x 8
    17. Leeroy

      Leeroy Member

      Tinnitus Since:
      08/2021
      Cause of Tinnitus:
      Unknown / Stress / Noise Exposure??
      Hey @TheDanishGirl, please hang in there. I have seen some of your previous posts and from my perspective you are a true warrior and fighter.

      I can't offer advice on medications, but if you are at where I was a couple of months ago, personally I would be doing whatever I could to try and give myself a break and regroup. If that means try something on top of the Mirtazapine, then so be it. Even if it's only for short term. Just to give yourself a more stable foothold mentally. Then back off the Mirtazapine.

      I'm far from being an expert on this, but I did try Mirtazapine for sleep for a few days and it did give me pretty crazy body tremors that lasted for over a month. But they did stop after ceasing dosage.

      Do whatever you can to keep going Danish. You have come this far, I know you can get through this.
       
      • Friendly Friendly x 2
      • Like Like x 1
    18. Stuart-T

      Stuart-T Member Benefactor

      Tinnitus Since:
      02/2022
      Cause of Tinnitus:
      Ear wax or COVID-19 infection
      Great post - as usual - incredulity with purposeless suffering well-articulated.

      As I have asserted and argued previously - the universe - or nature - does not care about any one individual. The only purpose of species - from as far as the evidence indicates - is successful reproduction and survival. The human body is not an infallible organism. It can get ill. It can become incapacitated. It can die young.

      You ask - why me? Or why you?

      My answer: human beings get ill - they can suffer with long term chronic conditions. Some people get through life without too much pain. Others suffer. That is the way the cards are dealt out.

      Your best question and most useful and really only question is: "how to cope?"

      So I suggest you forget all the rest and focus on this as we all are doing.

      Life can still be a gift - even with 2% wellbeing status and you have to hope and aim for that to improve no matter how bad things seem right now.
       
      • Like Like x 4
      • Hug Hug x 2
    19. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      That you acknowledge I'm a fighter, it gave me a tear in my eye (I've cried so many times in these past days, but this was for a better reason). It's so rare to get acknowledged for that, and I needed to hear it. I do feel like a true warrior these days, but like we know, "normal people" will never come close to understanding the intense internal war this is, so they don't acknowledge it. So thank you for saying that. The enemy is drawing closer and getting stronger, but I will do my absolute best to fight it off.

      I had a talk with my mum. I feel a tad bit better now. A small glimmer of hope has once again appeared. I might be struck by the enemy within a short while once again, but you're right. If I can't fight it off with what weapons I have now, I have to build some strength (by taking another medicine). Gotta do whatever it takes to keep myself alive.
       
      • Hug Hug x 4
      • Like Like x 1
    20. Uklawyer

      Uklawyer Member

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Medication - antidepressants
      @TheDanishGirl, I, too am sorry to hear of your suffering. I have been feeling pretty bad myself over the last few days. It is hard... and it is unfair.

      Do you have a psychiatrist you can talk to? Is there a hospital you could go to to try a taper and start another drug? Some drugs you can do a crossover and it would be good to be monitored whilst you are doing so, even if it is just the start of a taper. During this period, it may help to have something else to help calm you. When I was in hospital, I was put back on a previous drug and given benzos at the same time. It was a relief to be around others I could get to know, who has various problems and have people monitoring me.

      I hope you can find a way and find some relief.
       
      • Agree Agree x 2
      • Helpful Helpful x 2
      • Like Like x 1
    21. forum_user

      forum_user Member

      Tinnitus Since:
      03/2022
      Cause of Tinnitus:
      SSRI, Noise, Stress ?
      I wish there would be a switch to turn the tinnitus off.

      If this is not possible, I wish there would be a switch to end life quickly and painlessly.
       
      • Agree Agree x 5
    22. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      I am pretty much done with psychiatrists. They always make me feel even worse, because they imply it's all got to do with depression/anxiety and I simply haven't tried hard enough to get better. I can get admitted to a psychiatric unit if I am a threat to myself or others... maybe... it depends if there is a bed available. Many people in our country gets turned away from being admitted, because there is simply no room for them. I am really scared of getting admitted though. I fear losing my last shred of control and getting medicated by force. They CAN do that, if they deem you a threat and not being cooperative, as in not willing to take whatever medicine they suggest.
       
      • Hug Hug x 1
    23. Stuart-T

      Stuart-T Member Benefactor

      Tinnitus Since:
      02/2022
      Cause of Tinnitus:
      Ear wax or COVID-19 infection
      I don't know about Denmark - but in the UK - forced treatment needs very special circumstances - signature of 2 doctors and signature of close family. This only tends to happen when the patient is a danger to themselves and/or others and suffers from some mental condition.

      Maybe you should check the legal situation in Denmark.
       
    24. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      I looked it up. It doesn't require signatures here (that's not stated anywhere as far as I can see). The patient only has the right to a 3 day thinking period, where the medical team will try to persuade you to take the medicine voluntarily. If you are a danger to yourself and/or others (which I am), they can lawfully force the medicine upon you after 3 days if they deem it necessary. Plus even these rules get violated in my country. There are several articles about it on the internet.
       
      • Hug Hug x 2
    25. StoneInFocus
      Fine

      StoneInFocus Member

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Hearing damage, ear infections
      I'm not really sure if I understand what you mean by this.

      Cannabidiol is a singular compound.

      100 mg of cannabidiol in Epidiolex is exactly the same as 100 mg cannabidiol dissolved in olive oil for instance.

      As long as what you buy is in fact CBD isolate (contains no other cannabinoids) it doesn't matter from which source you get it.

      Regarding people not getting relief, if we look at the Retigabine and Flupirtine threads, people generally reported positive results after several months of consecutive use.

      By the way, I just started using cannabidiol today. Just a few minutes ago I consumed 2.5 mg times my body weight.

      I'll give an update next week at the latest in the cannabidiol thread.
       
      • Like Like x 2
    26. MaxRabbit

      MaxRabbit Member

      Location:
      Los Angeles
      Tinnitus Since:
      06/2022
      Cause of Tinnitus:
      Likely Extreme Stress
      I meant what you answered - that it's the same ingredients. I'll check your progress in the thread. I have a CBD shop up the street that sell pure CBD for $20 for a small bottle. I will maybe try it as well. At this point, I need any help.

      I was just pointing out that I have heard of numerous accounts of people using pure CBD for awhile. They got anxiety relief but no help for the tinnitus.
       
    27. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Wow, $20 for a bottle! I just bought a bottle that cost about $110. Of course price depends on the strength, but i'ts crazy expensive here regardless. The one I bought is 15%. I tried 5% before but that didn't do anything. I am just looking for anxiety relief. If I get relief in that area, that will be very good in terms of coping with all my ailments.
       
      • Agree Agree x 1
    28. StoneInFocus
      Fine

      StoneInFocus Member

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Hearing damage, ear infections
      You gotta be careful with any isolate you buy. Even CBD products in a brick and mortar store can be mislabeled or polluted.

      To give a quick update, due to some adverse effects I experienced today (which weren't recorded in trials at all) and some comments I have read about the particular retailer, I have suspicions that my own CBD isolate which I purchased online contains THC or is tainted with some other chemicals as well. I just ordered a test kit to check whether or not my CBD isolate contains traces of THC. I think I am going to order a small amount of CBD isolate from a high quality source to see if it makes any difference with what I've consumed today. If it doesn't, I might have to lower the dosage of CBD that I take.

      Right now my CBD trial is on hold until I've gathered more information. It's a bit of a bummer but we are going to be alright.
       
    29. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      Amitriptyline?
       
    30. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      beliefs are makyo and reality ignores them
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      Do you have some citations on this? I've read basically every research paper I know of about benzos and tinnitus.

      I take Clonazepam daily at a stable dose because it works best for me that way, but I was benzo free from 2011-2015 (2010 substantial noise trauma & worsening) -- and then from 2015-2017 I used Valium PRN 2-3x a month, it was helpful to some extent, no worsening I am aware of, and I don't know of anything in the literature that makes occasional PRN use dangerous. Heavy binge use is different but that's sort of a lightweight version of an alcohol binge, in terms of neurological consequences.

      Benzos are dangerous and have a bad reputation for a good reason but they're also some of the most commonly used drugs in the West and do not seem, generally, to cause tinnitus in any significant number of cases. Abrupt withdrawal from a moderate or high dose, on the other hand, definitely does do that.
       
      • Like Like x 2
Loading...

Share This Page