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delta784
i have same issues with you mate. Im only 29 how old are you. I am also football fan. :( Im sure we have same reason to be here same medication same issues i might off myself.
vikaspratap
I'm a huge arsenal fan for about 15 years. Only thing i look forward to is watching arsenal play every week but im loosing interest slowly in that as well. I just don't feel anything anymore in life.
delta784
im a besiktas fan 29 years turkish league i cant even watch games right now i used to go stadium happiest days
DamagedJoe
Feeling like a cripple. Very angry today. Soundmachine turned itself off tonight, so i woke up from my T. Work is hell today. It's so unfair, the other folks do not have T from this event! Why is my body this fragile?!? Getting more and more intrusive thoughts, that my life is screwed forever.
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Mark F.
"What's wrong with you all?" We don't have much choice in this tinnitus crap. BUT...we DO have the choice to toughen-up and quit complaining, and get on with life...or, stay stuck in self-pity and misery...or kill ourselves. I know I choose option #1. What will you choose?
DamagedJoe
I'm sorry if my reaction came across as if i wanted to attack someone. I'm not particularly emotionally stable at the moment.
Mark F.
It's ok. You are still very new to this condition. I know it sucks. But please hang in there! Have hope that the saying "time heals all wounds" is true. I understand all too well the feelings of regret too. Keep posting. You are not alone.
Katleft
Does anyone else suffer from hearing loss and tinnitus from birth?
henkess
Nope not me, i got mine from ear medicine
Katleft
@henkess how did that happen? What was it?
henkess
I dont know, just a reular medicine for ears and i got tinnitus =( Its a common side effect i think on ear medicine
Katleft
Currently having side effects from my hearing aids but it's okay because its temporary! I know I'll get better soon.
Katleft
Side effects are gone I'm feeling so amazing now!
BLane
Wow, I did forget my T Anniversary in 2024. 8.5 years now. I'm so used to it now, it's like an old friend.
2049v
have you had it 24/7 since it started? Is it severe?
BLane
Yes, well 99.9% of the time. If I get really, really shitfaced drunk on red wine, it'll turn it off, but at that point I'm too drunk to appreciate it. lol. I haven't tried that in a long, long time! My T sounds exactly like a boiling tea kettle screaming, but I don't notice it anymore unless I intentionally choose to listen to it. My mind habituated and tunes it out of my awareness....but it's always there.
2049v
Wow that's great. Was it severe?
A
Hey are you doing Matthew ? Hope all is well with you bro
MatthewR
Thank you so much for asking. I am doing great. I live a great life with a little bit of hearing loss and tinnitus, I hardly realize I have it nowadays. Although when I get sick and congested my hearing loss and T is very noticeable. Currently dealing with that right now haha but I'm doing much better than initially
A
Yeah man same here my T spiked a couple days but like you I was congested and had sinus issues . I just take Claritin and nose spray and it went down to where it is barely noticeable. Thank god we are doing better bro continue healing my friend it truly is a blessing . 🙏
MatthewR
Absolutely my friend. Peace & blessings!
Kain
If my right side TMJ and ETD let up, i'm sure i would experience ✨some✨ sort of relief.
Sodlin
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Actually found this intressting find. My earplugs are 23 mm long and i always insert them fully into the ear (so much that i have problem getting them out)
. So in this case it would mean that i dont get any occlusion effect i guess?
Sodlin
I was out in the factory and had to "talk loudly/almost shouting" for like 30 seconds with earplugs deeply inserted. Im currently under at spike and abit anxious about all this "occlusion" effect. I always use Foam earplugs and it sound "quiter" when i speak then without them.
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Sodlin
@ZFire I also prefer the "foam ones" best. Got some costume molded but the occlusion in those just insane. Only downside is that it can be hard to hear with foam earplugs so i prefer EAR EXPRESS if i wanna be able to talk (like at birthdays, out in the store etc). They are also extremly fast to insert which is a big plus! I use Moldex "spark plugs" 35 SNR whenever i dont need to talk to someone.
kingsfan
I just had a mental breakdown from my current living situation and shouted on and off for several minutes with my earplugs in and now I'm worried I made things worse.
Sodlin
@kingsfan you prolly shouldnt do that but i cant imagine its making any hard unless u scream like a maniac. I always need to shout and raise my voice when im out in the factory talking to coworkers :)
vilebubbles
How are you?
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vilebubbles
Me too :(
vikaspratap
How are you doing? My doctor prescribed gabapentin and took 300mg of it last night to start off with, it spiked so much i literally wanted to end it so bad. The noise literally made my head vibrate, I haven't slept in days.
vilebubbles
@vikaspratap im sorry. I spiked from gabapentin for several days. I'm not good either.
DamagedJoe
Hi Mark, how are you doing in the meantime?
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Mark F.
How are you doing?
DamagedJoe
I'm not feeling well. I just can't manage to accept what I've done to myself. I'm angry and frustrated most of the time. Knowing that it will be like this forever robs me of the will to live.
Mark F.
I know the feelings. I just keep putting one foot in front of the other. It's all we can do sometimes. I have lived thru some horrible things in my life. Things I thought would never get better. But with time (in a couple cases...it was almost 10 years), they DID get better!
just1morething
I had a very quiet head today and got quite a few things done. I wish today was repeatable but my history says it's not very likely unfortunately.
E
Yesterday, I went a bar where people at my table got loud, and the tinnitus is less intrusive today. I worry I'll be paying for it in a few days.
vilebubbles
Hi! Did you try gabapentin? How was it?
Cmspgran
I did, combined with clonazepam it worked really well for a while but then lost it's effectiveness.
DamagedJoe
It's really intrusive today... Like on the first day. It will not get better. I know it. I hate this life.
orenge01
Damn it, it's worse now. Three spikes in one day. How is this even possible. :(
Sodlin
Sounds like my average day aswell... :p It will get better! :)
orenge01
@Sodlin it did actually get a bit better, thanks. Trying to keep the hope up.
:)
Supersix
On days when you feel spikes, it's best to avoid getting flu shots, COVID shots, or any vaccinations that might make you feel worse. It's more beneficial to receive these shots only on good days
N
I
Yep I saw. If you look at the timelines it was approved approx 11 months after closing phase 3 and because of all problems with pain management drugs I can imagine this being very strict.

It's good to keep 11 months in mind for XEN1101 after completion for a fast track approval.
Tryn2BHopeful
Well it seems that I recovered some, but not back to where I was prior... I never thought I would find myself wishing for my old T back. I always wondered how I would be able to deal with worse... I guess I am finding out... You just do, because there is no choice. Still hoping it improves with time again.
BrOKeN_1
"You Just Do".. I couldn't say it better myself. God knows how we can manage to keep it together with tinnitus that makes onset look laughable. I can only attribute this to time served.. hope your day finds you distracted in more pleasurable activities. :)
DamagedJoe
I've often asked myself recently what little things I was annoyed and worried about back then.

I had no idea.
Tryn2BHopeful
I do this myself. How trivial those things really were. T gives you a completely different perspective on things.
hunu92
Hey, has your T caused by hearing loss above 8kHz i remember reading something about it months ago. Was able to create account recently wanted to ask it and how are you wish u're ok
SharonBell
@hunu92 yeah my right ear is over 10,000 sensorineural Cochlea high frequency hearing loss and tinnitus. It's also bad in left ear. Mine is 24/7 in my head. When I first got it I thought I was going to kill myself. But I have managed to deal with it and start doing things I use to and yeah it's worse than it was before. I think mine was caused from covid.
hunu92
same for me i've got hearing loss between 10k-18k at my right ear nothing under 10k it's like brand new when u look at normal audiograms... it's sad that got undiagnosed because of that. hope it'll get better for all the people in the forum maybe we'll be able to see magic drug renews every single thing in our life time.

wish u blessings
Sodlin
accidentally screamed when playing videogames a loud "F**K!". Ear feels abit full but hope i will be okey :)
DamagedJoe
I have noticed the following changes since the beginning:

-there are loud and quiet days for me
-the sound in my "bad" left ear sometimes changes
-after getting up, T is usually quieter and gets louder again by bedtime
-there have been occasional days when the worst parts of my T were barely audible, but very rarely
-there are relapses, I am still very sensitive to noise at some frequencies
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