New tones daily. They get faster and stronger and make my body tremble. Can only sleep 3-4 hours with a benzo. Feels like my brain is breaking down. Starting to see green when I close my eyes instead of black. I'm scared.
still same after adverse reaction from methylprednisolone biggest mistake of my life. I regret everyday every single day. my life wasnt supposed to be like this now i have visual snow syndrome too
Ear sensitivity... guessing Hyperacusis isn't improving like it did before.. maybe I am not giving it long enough.... Seems like I am in for another 2 year wait and see, after spending the last 2 years getting to a good point. Stupid... and could of been avoided... but.. it seemed safe... Not sure if I can do 2 more years.
Loud cars with extremely noisy engines are making me agoraphobic. Can't step a foot out of my house before someone drives their awful loud car down the road.
One and a half year after my T worsening I developed chronic stomach issues. Is this normal? Has anyone tried anything similar? I think my T caused my now debilitating stomach pain
please kindly respond
I know youre a busy guy but please take a few minutes to help a brother out
For first initial treatment , is it important to go first for the stemcells 21 treatment similar to yours ? or can I just go directly for iv infusion treatment only ?
please I need your expert advice urgently, please kindly help ,Really need your advice
thank you very much
please kindly respond
I know youre a busy guy but please take a few minutes to help a brother out
For first initial treatment , is it important to go first for the stemcells 21 treatment similar to yours ? or can I just go directly for iv infusion treatment only ?
please I need your expert advice urgently, please kindly help ,Really need your advice
thank you very much
Been talking to chat gpt. Apparently rapid paced tones that don't change and are in your brain rather than ears is a symptom of severe auditory hyperactivity and likely permanent. I'm fucked. If some of these tones don't go away I'm out.
Had a drawer out and somehow managed to get my knee into it on full force. Was proper loud and i got a slight fullness in the ear from the sound. Took NAC and Magnesium instantly. Hope i wont spike.
Haven't had my TTTS flare up in a long time but it's back today. Frustrating, but scrolling thru my own posts helps reassure me that it always does eventually settle after a few days.
Hello Kam, how's going? Marcello here from Brazil. I've read your story in some posts and I've been facing some situations very similar, I went from mild tinnitus to the point of can't get asleep naturally at the moment. How is your sleep today? What medications do you use? I've trying some combination of them to get the best benefit to the sleep. It would be nice to be able to talk about it and exchange some tips.
hi Aetos
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku
600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.
How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
I cant go out anymore... I don't do anything. I am scared to go to my kids graduation in a couple of months. Despite some of the positive messages I have received on this site, I just feel like I am spiraling. T is worse then the first time I got it, maybe even catastrophic... I have always tried to avoid labeling it... but IDK. Nothing I do helps, sound is reactivity and silence is humming.
I always considered my T moderate... but I think its severe now...trying to hold a job, raise kids, do everything that one needs to do to live is exhausting wit h T... Nobody seems to notice or care that I am struggling... After almost 2 years you would think I would simply know that. Its the life of someone with T.