SarahMLFlemmer

SarahMLFlemmer

Member 37 From Central California
Messages
190
Reactions
4,239
Points
616
Joined
Last seen

Profile posts Latest activity Postings About

  • SharonBell
    Yes fighting this everyday is so hard for me. I stay busy all day to try and keep my mind off it, but it doesn't help much.
    SarahMLFlemmer
    Not gonna lie though, fighting this everyday is very hard, but I'm trying!
    cjbhab
    this is getting ridiculous. we shouldn't have to live like this.
    crescentsky
    i feel you. everyday feels like a struggle just to survive. not live.
    SarahMLFlemmer
    @cjbhab I know it, it's awful. Every day is suffering. I try to tell myself it's not that big of a deal so that I don't start totally freaking out, cause I will, bad.
    SharonBell
    My tinnitus is just so hard to figure out with the weather, sugar, different foods, noises, decaf coffee and caffeine free Pepsi.I write down everything I eat and drink everyday, medicine I take and how I sleep, I wear my Fitbit to bed. Does anyone do anything that they can share that might help me or someonelse?
    View previous comments…
    SarahMLFlemmer
    I don't monitor my T. That's how I am moving on. No one else I know that has it monitors it in such a way that I've seen here. I don't think there's any rhyme or reason for what my T does, personally unless I come home from somewhere loud then it's louder. For the most part, my T is pretty stable, I think.
    cjbhab
    @SarahMLFlemmer I believe these people do not have T like we do, or maybe we are just super high strung. It's hard not to monitor when its constantly going wild.
    SarahMLFlemmer
    @cjbhab IDK which is worse, constant high pitch T like mine or constant changing T. It's no contest though, tinnitus is stupid. =|
    SharonBell
    I didn't take anything last night. I ended sleeping 4 hrs so I took a 1/2 flexerill this morning about 2:00 to go back to sleep. I took my daughter Jaden to school I was so sleepy and came home and got back in the bed and slept an hour or so.
    SarahMLFlemmer
    Trying to raise my ferritin with iron in hopes that getting my level 32 to 120-200 will relieve the the tinnitus.
    View previous comments…
    SharonBell
    Ok just let us know if you find out which one it is Sarah.Did you just recently get blood work done to find out that was low?
    SarahMLFlemmer
    @SharonBell I got it done in January of this year (I got T in November of last year.) So it's not very recent but I am assuming it's still pretty accurate. I would give magnesium glutamate a try! I don't think taking magnesium is ever a bad thing.
    SharonBell
    I believe I have magnesium glycinate and magnesium.
    SarahMLFlemmer
    How is everyone getting along today?
    SharonBell
    Michael Leigh put a post about clonazepam helping him and it helps habituate faster.
    SarahMLFlemmer
    I used Xanax everyday to get me out of panic mode for 3 weeks straight. I don't want to take medication if I don't have to, and I'm already taking some for sleep.
    SharonBell
    I quit taking trazadone for anxiety, but I feel like I need something for it. I'm just scared because it seems like everything makes mine worse. I have also cut way back on smoking only a few cigs a day, so that is hard for me also. Sarah Xanax didn't make your tinnitus worse? Is that a benzodiazepine?
    SarahMLFlemmer
    @SharonBell I don't think it made it worse. I really don't know. All I know is I was struggling very badly when it all began and I needed to do something to get better.
    SharonBell
    Has anyone had any luck with their tinnitus getting better or hyperacusis?
    View previous comments…
    M
    @Joe Cuber constant head noise and electric zaps in my ears. I have a build up of mucous in my middle ear spaces and tubes in. After the mucous comes out they want to remove the tubes and patch up my ear drums so my hearing goes back to normal and the T calms down but who knows if it will ever go… I'm hoping for the Susan Shore device.
    M
    @Joe Cuber I have no idea where my T is from since I have a conductive hearing loss on an audiogram and CT scan shows the mucous. The tubes also are most likely not helping the T at all but have to have them in for this fluid to drain.
    M
    @Joe Cuber I sleep fine now but didn't at the beginning. I'd rather sleep since it reminds me of death.
    SharonBell
    Well it's 3:00 am and up again the same as last night. I guess I will take something for sleep.
    SarahMLFlemmer
    I have to do that too, even though I hate doing it, but I have to sleep. -.-
    SharonBell
    Sarah have you had Covid or a virus? They were saying they thought my tinnitus was noise induced to start with , because right ear was so much worse than left, but then they were saying they think mine is from a virus because I had Covid in 2021 and 2022 and then had a different virus in summer 2023. I believe they say the high frequencies are usually affected first.
    View previous comments…
    SharonBell
    I went to the Tinnitus clinic and they do a high frequency test up to 20,000. They said, my right ear was severe-profound ultra high frequency hearing loss @ 10,000 and up and left ear was mild at 16k. They said, I have sensorineural hearing loss and tinnitus. Sensorineural tinnitus results from damage ti hair cells.
    SharonBell
    HearingHell yeah I hear very good. My hearing is in the ultra high frequency which we really don't use. Not sure if I could use it if it has to go in or on my ear. I can't wear earplugs they will make my head sizzle and that might also, but I might would give it a chance if it really works.
    SarahMLFlemmer
    @SharonBell they also said I had mild hearing loss at 16k but I think that happens as you age anyways?? She also said she tested my ear hairs and they were fine??
    SarahMLFlemmer
    Everything is "normal." Only ultra high frequency loss after 16k, but I think that's just the ringing covering the sound that I can't hear!
    SarahMLFlemmer
    I am desperate.
    View previous comments…
    4Grace
    @SarahMLFlemmer - I'm giving it everything I got but I often feel like I am hanging on by a very very thin string. Everyone tells me … always hang on to hope for a better day.
    just1morething
    @SarahMLFlemmer, I hope you can get to a better place. I fall asleep a lot. I'm worst when I wake up…just left ear. I tried taking Tylenol extra strength rapid relief gelgaps again and seem good as long as I don't nap. You are so young to get this nasty affliction.
    L along the way
    No easy answers... sorry.. am just trying to go day by.. for me, it helps that at least i have good night's rest nowadays. During the day... trying to go easy.. it's pffft.. but the believe things can get better.. trying to do things which you enjoy & are healthy.. and just sometimes distractions (for me that's gaming).. go easy on yourself, hug
    SarahMLFlemmer
    I don't know how much longer I can take this.
    View previous comments…
    SarahMLFlemmer
    @Kain Your prayers are carrying me through! Thank you, Jesus!
    Anomalous
    My dad passed away on Wednesday. The grief and sorrow is indescribable. I know how much T hurts but I also know how painful it is when your parents are no longer able to be your anchor. Please, your children need you and they will need you for many years to come. My T may go away but I will never get my dad back.
    SarahMLFlemmer
    @Anomalous I am sorry to hear about your Dad. =(
    SarahMLFlemmer
    Hecka people get Accutane induced tinnitus but barely have I found any this forum. What's up w/ that? Having ear pain again. Miss you guys!
    View previous comments…
    4Grace
    @SarahMLFlemmer I admire your positivity and faith in God. I really do. You deal with so much. It's awesome that you can keep doing things. Do you think exposure to sound causes any of your ear pain or burning for you?
    SarahMLFlemmer
    @4Grace I push myself everyday. God is good as to keep me from falling back into depression over this. It's hard, but we keep going. Exposure to loud sounds may be contributing to my ear pain, I wouldn't know cause I haven't tried to stay away from sound.
    SarahMLFlemmer
    @4Grace I've been around loud noise and suffered no consequences. But I have had H yesterday and today, with no known cause so IDK anything. I just try to live as normal as possible with as many rest breaks as I need in between.
    4Grace
    Hi Sarah, sorry to bother you. How have you been doing? Habituation is real. I'm much better mentally but my progress seems to be moving slower than my worsening. :( if I had my T of just a few weeks ago I would be so much better off. Hope you are well.
  • Loading…
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu