SarahMLFlemmer

Mine moves around sometimes head, sometimes left ear, sometimes right, sometimes both. Sucks. I don't get it

I'm not sure what you mean, but I'll take it! Change is good. Right?! =)

Same. Impossible not to when you can hear and feel it. We need those care free moments back. Even if they are brief.

Me to Sarah all the time.

It's ridiculous isn't it.

It awful! I hope you find some relief soon.

@Utdmad89 thank you, I hope you do too!!!

Have you got a cold?

@SharonBell yes.

@Tryn2BHopeful she's newer to our church, she has her own issues. Her T is mild.

@Joshua Macleod I actually did tell her, "yeah, it's bothering me. Really bad actually." In our room of 8 adults, 4 had T! 2 of them seem to be unbothered by it, including her.

So sorry. They know not what they say. My friend that has it for years gets super frustrated with me if I complain about it. Tells me to man up about it. They don’t know. He goes to concerts. Actually we everyone I know tell me enough already. I really feel for you. Gaslighting sucks.

I know. I am the same way.

this is getting ridiculous. we shouldn’t have to live like this.

i feel you. everyday feels like a struggle just to survive. not live.

@cjbhab I know it, it's awful. Every day is suffering. I try to tell myself it's not that big of a deal so that I don't start totally freaking out, cause I will, bad.

I don't monitor my T. That's how I am moving on. No one else I know that has it monitors it in such a way that I've seen here. I don't think there's any rhyme or reason for what my T does, personally unless I come home from somewhere loud then it's louder. For the most part, my T is pretty stable, I think.

@SarahMLFlemmer I believe these people do not have T like we do, or maybe we are just super high strung. It's hard not to monitor when its constantly going wild.

@cjbhab IDK which is worse, constant high pitch T like mine or constant changing T. It's no contest though, tinnitus is stupid. =|

My T stays pretty stable it seems.

Ok just let us know if you find out which one it is Sarah.Did you just recently get blood work done to find out that was low?

@SharonBell I got it done in January of this year (I got T in November of last year.) So it's not very recent but I am assuming it's still pretty accurate. I would give magnesium glutamate a try! I don't think taking magnesium is ever a bad thing.

I believe I have magnesium glycinate and magnesium.

@Viridiana that helps, for sure!

@Juliane thank you, Juliane. Hope if the T isn't improving that your tolerance is. My tolerance has been good again the past week.

@SarahMLFlemmer, i believe the difference is pain. Hyperacusis is everything being loud and some sounds uncomfortable. And Nox is feeling pain from sounds that usually wouldn't cauae pain in others. I might be qrong though lol.

I used Xanax everyday to get me out of panic mode for 3 weeks straight. I don't want to take medication if I don't have to, and I'm already taking some for sleep.

I quit taking trazadone for anxiety, but I feel like I need something for it. I’m just scared because it seems like everything makes mine worse. I have also cut way back on smoking only a few cigs a day, so that is hard for me also. Sarah Xanax didn’t make your tinnitus worse? Is that a benzodiazepine?

@SharonBell I don't think it made it worse. I really don't know. All I know is I was struggling very badly when it all began and I needed to do something to get better.

@Joe Cuber constant head noise and electric zaps in my ears. I have a build up of mucous in my middle ear spaces and tubes in. After the mucous comes out they want to remove the tubes and patch up my ear drums so my hearing goes back to normal and the T calms down but who knows if it will ever go… I’m hoping for the Susan Shore device.

@Joe Cuber I have no idea where my T is from since I have a conductive hearing loss on an audiogram and CT scan shows the mucous. The tubes also are most likely not helping the T at all but have to have them in for this fluid to drain.

@Joe Cuber I sleep fine now but didn’t at the beginning. I’d rather sleep since it reminds me of death.

I have to do that too, even though I hate doing it, but I have to sleep. -.-

I think so!

I went to the Tinnitus clinic and they do a high frequency test up to 20,000. They said, my right ear was severe-profound ultra high frequency hearing loss @ 10,000 and up and left ear was mild at 16k. They said, I have sensorineural hearing loss and tinnitus. Sensorineural tinnitus results from damage ti hair cells.

HearingHell yeah I hear very good. My hearing is in the ultra high frequency which we really don’t use. Not sure if I could use it if it has to go in or on my ear. I can’t wear earplugs they will make my head sizzle and that might also, but I might would give it a chance if it really works.

@SharonBell they also said I had mild hearing loss at 16k but I think that happens as you age anyways?? She also said she tested my ear hairs and they were fine??

@cjbhab well you can't obtain or have the masters tuned properly without a audiologist selling it to you. Maybe prescription isn't the right word, but in a way you can't just ask for it.

@SarahMLFlemmer are you considering using them?

@Tryn2BHopeful i don’t think it will be hard to get an audiologist to take your money, just tell them what you want. most places will give you a trial pair for free.

Everything is "normal" except ultra high frequency hearing loss at 16kHz.

@SarahMLFlemmer your T is very high pitched then I imagine

@Tryn2BHopeful Yes, I is. Probably 16kHz, just like what I "can't hear."

Good luck!

Good luck. Can’t wait to get an update.

Good luck!!

@SarahMLFlemmer - I’m giving it everything I got but I often feel like I am hanging on by a very very thin string. Everyone tells me … always hang on to hope for a better day.

@SarahMLFlemmer, I hope you can get to a better place. I fall asleep a lot. I’m worst when I wake up…just left ear. I tried taking Tylenol extra strength rapid relief gelgaps again and seem good as long as I don’t nap. You are so young to get this nasty affliction.

No easy answers... sorry.. am just trying to go day by.. for me, it helps that at least i have good night's rest nowadays. During the day... trying to go easy.. it's pffft.. but the believe things can get better.. trying to do things which you enjoy & are healthy.. and just sometimes distractions (for me that's gaming).. go easy on yourself, hug

I can't help but feel like there must be something that we can do to resolve this.

@Utdmad89 you would think, huh? This is inbearable.

What @L along the way said. Sleep and the daily long shower. (Water conservation be damned! Lol) take each day in stride.

@L along the way and @BrOKeN_1 I hear you and I thank you.

I'm sorry :( It feels like I'm running (more like crawling) on two hp

@Kain Your prayers are carrying me through! Thank you, Jesus!

My dad passed away on Wednesday. The grief and sorrow is indescribable. I know how much T hurts but I also know how painful it is when your parents are no longer able to be your anchor. Please, your children need you and they will need you for many years to come. My T may go away but I will never get my dad back.

@Anomalous I am sorry to hear about your Dad. =(

@Joshua Macleod I am sorry for you too.

My goodness. This is crazy. :(

@4Grace it's too much.