Hi, hope you're well, you got tinnitus from acutane? I took acutane when I was in my teens, that stuff made me feel really sad all the time, later found out some users had unalived themselves.
SarahMLFlemmer
Member 37 From Central California
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@SarahMLFlemmer so glad to hear from you. I don't get on here that much anymore.
@SarahMLFlemmer Im actually doing so much better. My Tinnitus isn't better it's actually worse. I have just learned to deal with it better. I work all the time and try and stay as busy as I can to keep my mind off it. I do the things I use to do now. I will wear ear plugs with really loud things also even though it makes it louder. I just deal with it. I'm so glad you are doing better.
@SarahMLFlemmer, how have you been?
Who else is hopeful for the Susan Shore device?
hi, have you tried any medication since you got T? if so, which medications and how did it go? also, do you have experience with gabapentin?
Hi, I just wanted to say hi and I hope you're okay, thanks for the positive things you post
Just logging in to say hello and that I miss you guys! Hanging in there, one day at a time.
Hey! I noticed you have interstitial cystitis too. I have had this / pelvic pain for years and it seems like lots of people on here have both. I feel like there must be a link somewhere. Wondering how your IC is these days?
I hate this. ;(
How's everybody hangin' in there?
Hey Sarah, hope you are doing okay today
I just wondered if you ever experience ear pain and how you manage that with your kids? I am currently not able to spend time with my three year old as it's too painful and it's killing me
Anxiety.
I would love to wear headphones or earplugs but it makes mine so much worse, T is all I hear like sizzling my brain, all in my head, I can't stand it. A lot of people with T can wear earplugs and headphones I guess our T is so much different. I pray for the day it gets better, but don't think it never will. Hate to think it will get worse, could never live like that forever.
@SarahMLFlemmer I actually had to quit my job for now. My husband's brother-in-laws wife Dottie has gallbladder/liver cancer. So I have been working for him Monday-Friday and then I come over on Sunday for him to go to church. She is on oxygen 24/7. His wife Sandy which was my husband's sister died from cancer also, so he is going through it again.
I will get weeks and weeks with pushing through and no crying then days in a row suicidal. Such a crap condition. I've been missing you all!
Now I understand. Gods Grace is sufficient. Eyes on the afterlife. It is for ever. Look forward to your glorified body. Incredible. God goes through a lot to try and save us. You were truly God sent for me. I knew but I really did not know how much. Thank you once again.
Well I'm 9 years in and thank God I really don't struggle with it much, hopefully you all will be there one day. Having said that I have to deal with other issues. Hang in there!
Still struggling at 17 months in but hopeful for the Shore device.
Some people developed visual snow after accutane as well. Are your visuals okay?
@Higo my job actually went good. They are very nice people. I really like it makes the day go by faster. I try not to worry about my tinnitus as much when I stay busy.
@SarahMLFlemmer I'm Hanging in there. In Dealing with my T better, but it is still so hard to do things and be happy like how life use to be. I still use my sound therapy all day and all night it really helps, couldn't make it without it.I start my new job tomorrow doing homecare.
@SarahMLFlemmer how are you doing?
Love you sister
One day at a time.
@SarahMLFlemmer how are you? I'm still trying to hang in there day by day with my terrible tinnitus.
Hi! I hope you are doing okay, you're always trying to make us feel better, have a great week
Where did you go for vacay? -
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