Search results for query: cochlear hydrops

Cochlear hydrops only affects the auditory system and not the semi-circular canals for balancing, correct? Maybe after FX-322 hits (and FX-345 after that), Frequency Therapeutics would come out with a FX-368 (? - I don't know their naming nomenclature) for full cochlear coverage. To be honest, I...

@Liam_Cairns, curious to hear as well!

I honestly don't know what spikes my T. It's very unpredictable and I'm not totally sure I have cochlear hydrops but suspect I do.

Does it spike your Tinnitus???

Noise won't trigger Cochlear Hydrops. It's literally degeneration of the Endolymphatic Sac (the theory is the cells there act similar to our kidneys to regulate sodium) resulting in high pressure and low frequency losses as the "leak" and bulging of the membrane happens at the apex of the...

Hi @dhenry89 - Cochlear hydrops is a difficult diagnosis to make. The hallmarks are low-pitched tinnitus, fluctuating hearing loss, and fullness in the ears - but the symptoms can vary. The episodic vertigo of Meniere's is not present in cochlear hydrops. Treatment of cochlear hydrops can...

Did you ask what the patient receiving the drug had to do to obtain compassionate use? I mean to get approved for it?

How’s it going? Are you dizzy with it? Could it be cochlear hydrops? Please sleep as much as you can as I am a firm believer that the brain resets itself at night.

I think I have low frequnecy tinnitus... I'm worried it can possibly be Cochlear hydrops/Menieres? Are there any tests to determine this? I'm new to T

How do you know for sure it's cochlear hydrops? If Lasix doesn't work within a couple days you would know. Don't take other diuretics while using it. You might have to get your salt under 1.5g/day and drink way more water for it to do anything. Two months is more than enough time, most...

Hi @meemil ! Have you ever looked into upper cervical chiropractor? It has a very high success rate to reduce/cure Menieres, which is a form of cochlear/endolymphatic hydrops. It is non-evasive and inexpensive. Hope you're doing well! :)

I am the member who tried the experimental procedure for Menieres to try to fix my Cochlear Hydrops, a very depressing experience which did NOT help my cochlear hydrops. Hi lolkas, yeah it didn't work man. I'm still stuggling just like I was before. Hope you doing well brother.

Hi Juan, Yes, I’m taking Moduretic (a diuretic) and I was also prescribed Betahistine. Personally, I think a diuretic is essential to drain the excess fluid from the inner ear, worked a treat for me. Might be worth a try? Sam

Did you have any vertigo? And what were your other symptoms? I got a bad sound distortion from lifting heavy weights on top of my normal tinnitus.

A couple of leads to consider: otosclerosis or cochlear hydrops.

...@Liam_Cairns, sadly as @Vicki14 pointed out, many people are being permanently harmed by microsuction. I also believe I suffer from cochlear hydrops following an acoustic trauma brought on by microsuction. This was over 5 years ago. After three months of researching my symptoms I came to the...

Didn't your doctor suspect cochlear hydrops in your case (which can cause distortions) or am I thinking of someone else?

Hi everyone. When I see these posts describe tinnitus along with hyperacusis, ear fullness and pain, I totally relate. My diagnosis (who really knows?) is Cochlear Endolymphatic Hydrops. I’m expecting my Lion’s Mane from UPS any minute now. Question: Is it absolutely necessary for the Niacin...

But what about tinnitus that comes from cochlear hydrops, lol we all know that's not in the brain it's clearly a phenomenon of the ears. Google it and answer me that..

Hydrops is a medical condition I'm not talking about oxytocin spray. XDR is reporting the symptoms of cochlear hydrops, including salt and caffeine affecting his T. I just wanted to bring the condition to his attention.

Hi! Sorry for the late reply. No real flare ups of note. My Hydrops seems to be hormonal. I have birth in June and stayed on the diuretics and LDN during pregnancy. Towards the end, I had some MEM (Middle Ear Myoclonus), but that has settled and stopped for about 2 months. I haven’t tried...

@Terrel , Hydrops is when crystals have developed on the ends of the tiny hairs in your cochlear and can cause dizziness without the vertigo of Menieres or hearing loss. love glynis

Um yeah we're talking Cochlear Hydrops.. which is distinctly different from full blown Menieres desease. Perhaps your confused? Cochlear hydrops is the Tinnitus of menieres without the vertigo of menieres, many people hear ringing from hydrops (it happens with unhealthy diet, like how 80% of...

Kathleen, why do you say you are only 90% back to normal, what are you basing this on? Can you tell that your hearing is not as good as it was before the cochlear hydrops?

Guess I will have to do some research. Thanks

I want to give my 2 cents about cochlear hydrops. I spoke to an ENT and he made a pretty good point about tinnitus, fullness, hyperacusis and all the other great symptoms we experience. He said that far too many people dismiss the possibility of hydrops because the “know” that their tinnitus...

The acute phase was rough. I barely left my house except to go to work or shop while I was going through it. Fortunately, it doesn’t stop me from doing anything now. I live my life exactly the same as I did before. I don’t think my hum is reactive, just spectacularly random. As I type this now...

Aural fulness seems to be a common T symptom doctors can't really explain. I just discovered 'cochlear hydrops' which explains aural fulness and T. Check it out - I just resurrected an older thread about it.

By the way, I think there may be surgery for this, endolymphatic sac decompression... maybe you can explore this with your doctor, see if it is an option for you.

@Mr. Cartman are you still active? I probably have cochlear hydrops and its driving me crazy. I would need some of your advice because the word says you're the expert in the field.

Hi there @Mario martz ! Weird I didn't see your message. I'm not habituating at all because T is changing every freakin second. It's driving me mad. I strongly suspect I have cochlear hydrops :(

I don't think of hydrops as a purely cochlear thing. There was a surgeon (can't remember the name, sorry, but I will search for them later) who did tetonomies on people with Meniere's and for a lot of his patients it was essentially a long term cure. Recruitment is one of those weird things...

It seems an otologist is an ENT, so i saw one a while ago and they said I was fine, but they took no x-rays or anything... is that whats needed to detect cochlear hydrops???

...here with plenty of ear problems. Started with a bad infection, got sudden hearing loss right after, which turned to be a bilateral cochlear hydrops. I've had maybe a dozen episodes already, luckily hearing has always recovered. It's been a year now and the symptoms of the infection are...

...is mild anyway (20-40 dB fluctuating), but now it's hard to notice it even at near-silence environments (~20 dB). I've been suspecting cochlear hydrops (although I haven't had hearing loss and ear pressure), but this is confusing. If someone could offer some help/ideas, I would be very...

I'm sorry to hear of your struggle. I have cochlear hydrops and it progressively destroys your inner ear. Mine has progressed from a 10% loss in January of this year to 50% now. I have severe tinnitus and the pressure in the ear is really bad. I hope you find relief. I'm a total disaster.

https://www.tinnitustalk.com/threads/ian-macs-regenokine-orthokine-treatment-for-cochlear-hydrops.18240/

@ElisabethMarie, Sorry you’re going through this. I understand because I’ve been in your shoes with allot of your symptoms. I have an auditory condition called Cochlear Endolymphatic Hydrops (CEH) I have a Post about it. Maybe read it? You might find it interesting. All the best!

@GregCA I certainly don't have otoschlerosis. Do migraines cause cochlear hydrops? I have definitely had some symptoms of that in the past. However, diet modifications has never helped me and I eat almost no salt.

Yes, that makes more sense to me...

...ear osmolality. Once you relieve the pressure then your hair cells will stop sending tinnitus sounds and you'll be cured. In fact cochlear hydrops without vertigo is likely the cause of your tinnitus. An overall healthy lifestyle with extra hydration will relieve you of the increased water...

Hi,could you tell me what your symptoms are pls?? I had 2 horrible episodes which sounded like cochlear hydrops nut i saw my ent yest and mybhearing tets came back normal as well so he dismissed it.Thanks x

Hi Brian, I have/had cochlear Hydrops most likely because of hormonal IVF treatment. A diuretic will only work if your inner ear has Hydrops (excess fluid). The weight training may have caused Hydrops for you, but I’ve not heard of anyone else who has developed it in this way. You could try it...

Do you experience dizziness/vertigo?

...and hyperacusis as well as tinnitus. You could try supplements like Magnesium L-Threonate to see if it helps. Although you’re sure it’s not Meniere's, it could still be Cochlear Hydrops. I’d try a non loop diuretic for a little while just to see if it helps. That way at least you’ll know.

One of the many doctors I saw claims that excess cochlear hydrops can do that.

...My tinnitus is due to Meniere's which is basically a build up of excessive endolympathic hydrops in the inner ear. There is also cochlear hydrops which causes similar symptoms including pressure/fullness and dizziness. It's possible that you might have a variant of either but I'm not a doctor...

That now makes much more sense, thanks. That means their SPI-5557 treatment is the regrowth one then.

Can I ask what kind of vision issues do you have? Thank you, twa

Do you have to do it with an ultrasonic tool? (Never done root planing myself...) Also, have you considered dividing the procedure into two separate sessions?

...the bird noise T also has almost completely gone away. Off- Topic but... Good information is good information. Cochlear - Cochlear Hydrops (increased pressure inside the inner ear (cause unknown)), this pressure causes "fluctuating" tinnitus as the pressure within the Cochlea...

...my mind. I only hear in one ear. I went to an ENT PA today who told me that he thinks that my recent pregnancy is giving me pre- Cochlear Hydrops episode. He said that I can't be diagnosed with it b/c my hearing test was normal, even though I feel that my hearing is impaired. I didn't...

The only treatments I’m aware of are steroids and a diuretic + lowering salt and sugar intake. If that takes down the fluid build up in the inner ear some hearing may come back.

Good luck to you hope it works ! BTW does someone know where to get diagnosed for Cochlear hydrops in Europe ? Mine most likely comes from an infection (has been worse when I took steroids which are immunosuppressive) so I might have that.

How are you doing? did you get some of your hearing back? The last ENT I visited suspects I might have some form of hydrops too. To me this is really surprising after years of hyperacusis which was obviously due to noise. However, along the road there was also a virus that attacked one of my...

...was normal but my VEMP was abnormal. That combined with my symptoms of low-frequency hearing loss, tinnitus, and fullness led to the cochlear hydrops diagnosis. Now that my hearing is about 90% back to normal, I have added sodium back to my diet. If I have a lot of sodium, the tinnitus...

See above

...I can make it go away if I tilt my head at a 45-degree angle to the right or shake my head quickly. One doctor diagnosed me with Cochlear Hydrops, but a second said that was totally incorrect. MRI and hearing tests all come back normal. What's so strange is that the tinnitus goes away every...

It clearly won't affect hydrops or the abnormal Reissner's membrane in Meniere's but I suspect it will repair the hair cells damaged just as well if: 1) they can reduce the hydrops at the time of injection. 2) the round window isn't too impermeable in late stage Meniere's, though with even a...