Be Honest. Do You Still Enjoy Life?

Discussion in 'Support' started by Rich, Feb 27, 2013.

?

Do you enjoy your life despite having tinnitus?

  1. Yes

  2. No

Results are only viewable after voting.
    1. Javimaltes
      Innocent

      Javimaltes Member

      Tinnitus Since:
      06/2022
      Cause of Tinnitus:
      No idea
      Indeed. I enjoy life very much. After almost five months I only have a few issues to improve. In the beginning, I felt terrible and thought that it was the end of my life. Some commentaries that I read here at the beginning were not helpful. Thank God I know personally people with tinnitus that have normal lives and do not complain too much and they guided me to a better mental place.

      My message to the new sufferers is, to be patient and not seek information on the internet every day. Trust your doctors, your psychologist and your beloved ones, but do not trust random commentaries on the internet.
       
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    2. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      OK I deserve that lol.
       
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    3. lusiol
      In pain

      lusiol Member Benefactor

      Location:
      France
      Tinnitus Since:
      2003 > 2010/Oct.2019/Jan.2022
      Cause of Tinnitus:
      Life
      Sadly, nope. I have always felt like a spectator of my own life/nightmare and that statement has increased with these stupid conditions :sorry:

      The pain is real though...
       
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    4. Hottopic29

      Hottopic29 Member Benefactor

      Location:
      Niagara falls
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Zithromycin acoustic trauma 2022
      I managed tinnitus till recently. No, I don't enjoy life anymore. I don't want to leave bed. I'm waiting to die with loud tinnitus and ear aches 24/7.
       
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    5. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      beliefs are makyo and reality ignores them
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      Yeah at the moment, given my current level of disability and everything else in my life and the godsend that are benzodiazepines, I enjoy life. Surprised I've never voted on this in 6 years or however old this thread is.

      The caveats are because I know anatomy is extremely malleable and I could become much more severely messed up in an instant, whether from a too loud noise, a chainsaw blade going into my femur, or an errant hunter's bullet shattering my spine. I am not suggesting I would enjoy life under all such circumstances, only that, at present (and, really, since 2017 when I bit the bullet and went back on meds), my constant screeching 15 kHz companion does not prevent it.

      It's been super bad the past couple days but I have been (and am) sick with some viral BS one of our kids brought home (hey, at least it's not COVID-19!!!) -- so what do I expect? Always gets insanely loud and screechy with blocked sinuses, I would not say I've been thinking about it more. I have been thinking about generally feeling sick and shitty.
       
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    6. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hey @linearb -- Happy to see you still enjoy life. Not happy to hear you currently have insanely loud tinnitus. Have you considered doing some nebulization therapy? I've been doing a lot of research on nebulizing, and think it would be good for everybody with tinnitus to learn about. Can do wonders for protecting us from viruses, and all kinds of sinus congestion or infection.

      There are many different things you can nebulize, from extremely dilute hydrogen peroxide (which some people cringe at, though I believe it's extremely safe), to NAC, glutathione, colloidal silver, etc. In this day and age (of COVID-19), I'm convinced everybody should learn how to use nebulization to reduce risk of various kinds of infections, and be able to treat them effectively if we do get one. -- Hope you can get over this latest bout soon!

      P.S. You may want to check out 1 minute of the following video, which shows a pretty dramatic before and after of a man using nebulization to treat mold toxicity.

      Hydrogen Peroxide Nebulizer for Sinus Cleansing - UPDATED!
       
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    7. BrysonKingMe

      BrysonKingMe Member

      Currently, absolutely not.

      The insane atonal electrical shriek through by brain that changes every second, gets louder with noise, and brings me to my knees and tears almost daily, is destroying my life.

      Am I optimistic about the future? Yes, since I found out the cause and speaking with other people who got tinnitus from benzos, who are now in a better place.

      Buyer beware.
       
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    8. SmallRonnie
      Ape-like

      SmallRonnie Member Podcast Patron Benefactor

      Location:
      Ireland
      Tinnitus Since:
      H since 2018. T since 2021
      Cause of Tinnitus:
      Loud noise
      I am able to enjoy things in life even though my tinnitus is very loud and I have pain almost always.
       
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    9. Nick47

      Nick47 Member Benefactor

      Location:
      UK
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      The dark, wet winter in the UK will be tough.
       
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    10. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      Tinnitus did to my life what Allied Bomber Command did to Dresden in February 1945.
       
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    11. BadNeighbors
      Curious

      BadNeighbors Member Benefactor

      Tinnitus Since:
      11/2020
      Cause of Tinnitus:
      loud noise/construction
      I've struggled a bit lately. I never went to concerts or clubs, I don't own a TV, or a stereo. I never really wanted to be around noise.

      My favorite days were days in bed reading and writing, which aligned well with my career. I've haven't read a new book in 6 months. It really bums me out as I have a box of books that I've been meaning to read. I just struggle to get lost in them the way I once did.
       
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    12. Kriszti

      Kriszti Member Benefactor Hall of Fame

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      Still a firm "no".
       
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    13. Lurius
      Sad

      Lurius Member Benefactor Hall of Fame

      Location:
      Oslo, Norway
      Tinnitus Since:
      September 2018
      Cause of Tinnitus:
      Valsalva maneuver
      STILL A VERY FIRM NO FROM ME TOO!
       
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    14. CW Dragon
      Depressed

      CW Dragon Member Benefactor

      Location:
      Midwest USA
      Tinnitus Since:
      07/2022
      Cause of Tinnitus:
      Impulse Noise
      I view it positively. The winter darkness will help me sleep better, the only thing I enjoy doing now. I feel a gut punch every time I wake up.
       
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    15. Nick47

      Nick47 Member Benefactor

      Location:
      UK
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Viral/noise
      @CW Dragon, me too. 2 jet engines before I open my eyes.
       
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    16. ashcash

      ashcash Member

      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Acoustic Trauma (Bar Music 9/2019) (worsened by MRI 12/2019)
      @CW Dragon, have you tried skiing again yet? I haven't been in years but I've been wanting to go. I'm too afraid there's some giant loud noise involved that I've somehow forgotten about or discounted pre-tinnitus.
       
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    17. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @ashcash -- I was out shoveling snow one day, and when I came back in I noticed a pretty significant spike in my tinnitus which lasted for the rest of the day. I don't know if it was the wind, or the cold, or a combination of both. If you go skiing, you may want to be sure to do your best to keep your ears toasty warm!
       
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    18. bobvann
      Vegged out

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      It's a tricky one. Some days are calmer, but on the next day I can feel as @AnthonyMcDonald put it once; being skinned alive.
       
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    19. just1morething
      Benevolent

      just1morething Member Podcast Patron Benefactor Hall of Fame

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Airplane barotrauma to left ear, noise exposure.
      I’m caught between not wanting to live with head noise and not wanting to die. I think the airplane barotrauma messed up my left inner ear. I’ve tried almost everything except IT PRP injections. I have a static type noise mainly in my left ear. One ENT said he would put a tube in my left ear as I think he said I have negative pressure and a retracted ear drum. The noise seems to make me more tired.
       
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    20. ashcash

      ashcash Member

      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Acoustic Trauma (Bar Music 9/2019) (worsened by MRI 12/2019)
      Yes, since getting tinnitus, I have noticed that my ears are super sensitive to cold, like I can feel the cold all the way in my eardrum in a way I never have before. Which is weird because my mom who has some hearing loss, but no tinnitus, has always said she can't stand cold because it makes her ears hurt. I always thought she meant the outside of her ears, but now I get it, unfortunately.
       
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    21. Mike T

      Mike T Member

      Location:
      UK
      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Dont Know Just Appeared
      No! Some days I'm ok, other days just wait for the day to end.
       
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    22. Óscar PP
      Psychedelic

      Óscar PP Member

      Tinnitus Since:
      Nov 2020
      Cause of Tinnitus:
      Coronavirus
      I'm gonna quote myself here on a post I made 18 months ago to throw in some positivity.

      Things have improved massively during this time in the sense that despite the loud high pitched ringing being pretty much unaltered, I can now sleep soundly for 7-10 hours a night (also thanks to 15 mg of Mirtazapine) and I'm back enjoying reading books and being in "silence" although it doesn't mean the same as before and it's never going to be as peaceful as it was pre-tinnitus, but somehow my brain has adapted to put the ringing into the background and not notice it unless I actively think about it.

      Not everything is perfect though, I still fear my tinnitus may worsen in the future be it from noise or from the same virus that caused it in the first place, or for any other random reason, and I do still notice it and it becomes annoying when I have a headache or when for whatever reason I didn't manage to sleep more than 6 hours, for instance.

      Bottom line is things can improve with time (I'm now 2 years and three months in), but we still need more research into this condition in order to find a cure or at least some drug that lowers the volume, because no matter how "habituated" we become to it, nothing guarantees it will stay at that level indefinitely.
       
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    23. momus

      momus Member

      Tinnitus Since:
      01/1998
      Cause of Tinnitus:
      antibiotics
      Tinnitus has actually improved my life. It's taught me that just about anything can be mitigated. It's made me much more aware of the small pleasures that are oh-so important to fully appreciate. Suffering is the path, sorry, but that's how it goes.

      I remember when a Tibetan teacher named Ken McLeod was speaking to a packed house at my Zen Center in Portland. He asked if anyone had any questions, so I mentioned that my empathy for others had gone way up after getting tinnitus, and I wondered why that was?

      He said, yes, that's how it works.

      Next question?
       
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    24. NiMo
      Ape-like

      NiMo Member

      Tinnitus Since:
      12/2022
      Cause of Tinnitus:
      Prolonged studio headphone use
      Some of you fockers are depressing. It's just a focking noise and it can't hurt you. Stop focusing on it and get back to enjoying life regardless of it. Stay busy, don't talk about it, have conversations, take up hobbies and get out of your own way.
       
    25. DeanD

      DeanD Member

      Tinnitus Since:
      10/2022
      Cause of Tinnitus:
      Microsuction
      If you ever end up with tinnitus like some of the 'depressing fockers' on here end up with, you'll maybe understand.

      I have had tinnitus all my life. It was moderate and stable. For 45 years I didn't give a single shit about it. Never once Googled tinnitus, never even knew that support forums were needed and couldn't understand what the fuss was about. Lived my life and was 100% truly happy. Did everything, went everywhere great career and had big plans for the future.

      Then things changed.

      My tinnitus is so bad now my girlfriend can actually feel my head vibrating at times. I can't hear people on the phone now properly (call with doctor yesterday) because the tinnitus is so loud.

      It pierces my ears and my head. I have 15 tones and they react and become even louder with low noise, like a fridge hum.

      I still see you play guitar.

      I get it. I was there living with tinnitus loud enough that at one point I went searching in an attic for the noise. I played guitar too without an issue. Still at that point it never once bothered me.

      I wouldn't have got what all the fuss was about when I had that type of tinnitus either.

      Now I do.
       
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    26. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      First I thought you were joking, because there are even some so-called professionals whose thoughts align with the above, and so I hoped you were being sarcastic.

      I have to say, if you were sincere, then your earlier post in another thread summarizes it well:
      Tinnitus is not the same for everyone. The scale literally goes from it being something you can only hear when you plug your ears to being tortured with highly reactive, multi-tone tinnitus that you can't mask anywhere, which pierces through your brain and incapacitates you to a level you couldn't imagine.

      It's basically the difference of some music playing a mile away that you can barely hear to being blasted with large studio speakers in a confined, small room.

      Please try to have some respect and empathy for those who are on the worse end of the spectrum. We have lost genuinely wonderful, caring, loving people to the consequences of severe tinnitus - those people are no longer with us to defend themselves and the actions they took, but let it be absolutely clear; they were not weak, it was not just a focking noise, and there was no option of just staying busy and taking up some new hobbies; their tinnitus was soul-crushing, life-altering, utterly debilitating. And please make no mistake; this it can be, for any of us. I'm 100% convinced that there is a level of tinnitus that nobody, not even the strongest of minds can survive.

      All this said, I actually agree staying busy, avoiding making it the center of your thoughts as much as possible, were it through hobbies or so, can be very helpful for the garden variety of tinnitus. And some people definitely benefit not constantly reading about tinnitus.

      But your comment, applying it across the board, is what too many in the general population without tinnitus (or with mild tinnitus) think. That thinking needs to be fought back at all costs.
       
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    27. Lurius
      Sad

      Lurius Member Benefactor Hall of Fame

      Location:
      Oslo, Norway
      Tinnitus Since:
      September 2018
      Cause of Tinnitus:
      Valsalva maneuver
      Please, please go fuck yourself.
       
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    28. Gee82

      Gee82 Member Benefactor

      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Noise
      You are so ignorant.
       
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    29. GeorgeLG
      Wishful

      GeorgeLG Member

      Location:
      USA
      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower, rock band, constr & comp shooting, chemo
      As others have said, this is not one monolithic condition. It’s a very wide spectrum with drastic extremes. I believe that there are mild cases with over focus and extreme cases with amazing fortitude. Like @Markku said, there is probably a level of tinnitus that even the toughest among us can’t handle, including me. Fortunately most cases can be managed and skills learned to cope but to assume that everyone is the same is not helpful.

      There is a pronounced tendency to project our experiences onto others through self absorption and to lack empathy. The inability for many to truly empathize with something not experienced themselves is part of the human condition. It goes both ways. The focked sometimes assumes that everybody is focked and the manageable cases sometime assume that the focked are cry babies and need a life. It is a form of validation and confirmation and is rooted in being internally focused. Typing focked btw is a pita because of spell correction, in the future I will just stick with f$&ked. There is a world outside of ourselves and many people live in a world that we have not experienced. Just because a few people of the 35,000 here go into a quiet room to find tinnitus and can benefit simply from some coping skills does not mean that everyone here has it that easy. Some of the descriptions of what is experienced here is dramatic and sobering, downright frightening .

      We are not helping anybody when we make such throw away statements, even those with milder cases. If you’re here, tinnitus is negatively impacting your life. If it wasn’t, you would be peacefully enjoying your hobbies elsewhere.

      Let’s help those suffering and in need not criticize people not living our lives and experiencing the world as we do.

      In addition, I believe that a dismissive attitude towards severe suffering in any condition is an attempt on the part of the person doing the dismissing of convincing themselves that this cannot happen to them. It is a fear based attempt at validating an internal theory that the worst among the us are bullshit and therefore not possible for them. I face this a lot with terminal cancer. Again, it’s human nature but not helpful.

      @NiMo, you have had tinnitus for one month. I hope you have a smooth ride and I know that you fear ending up like some of the stories that you have read and I hope that does not happen. You are here so it has not been an entirely smooth ride because you could not ignore it at first.

      George
       
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    30. NiMo
      Ape-like

      NiMo Member

      Tinnitus Since:
      12/2022
      Cause of Tinnitus:
      Prolonged studio headphone use
      Okay, I will try this again without video assistance. I stand corrected!

      I have worked in the medical field for decades and I've seen the strongest of souls and the weakest of people. I've lost empathy for some people (mainly addicts) that waste their lives and don't help themselves, while generally negativity effect those that love them most.

      Conversely I have a strong admiration for cancer patients and others with chronic illness that are sweet, strong willed individuals who obviously never deserved their fate.

      My comment was callous and I should not have made it... for that I apologize. I personally have another lifetime affliction of folliculitis. Like tinnitus, it can be mild and very livable. Yet, its root is bacteria on skin and often associated with antibiotic resistance.

      I believe dealing with folliculitis has made my transition to tinnitus possibly easier than it should be. In early stages of folliculitis I spent the first two years researching and tried everything including crushed garlic baths for a month. In the end nothing helped other than advice found on most common medical sites. No cure, just management.

      I worried myself stupid at times with folliculitis and when I developed tinnitus I told myself I'm not doing that again. I should be more aware that it's not an easy transition for others. My job has hardened me and made me less empathetic towards some people.
       
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