Hamsti

Me too :(

I remember the story of a patient who had multi tonal tinnitus and mentioned that DBS (Cheung, et al. 2019) helped her tremendously. Here's a vid of her testimonial: https://vimeo.com/340421200

Maastricht University is one of the few institutes in Europe that is currently working on a new DBS treatment, but god knows how long their current trial will take. Maybe in 2 years or so, we could know more if it's effective or not

@nocticolor, in Kaiserslautern, ist das weit von dir weg? ;-) Der Herr ist sogar Professor und hat auch schon mit der Tinnitusliga zusammengearbeitet

Ich komm aus dem Raum Stuttgart, also nicht allzu weit, falls es sich lohnen würde :D Hat er denn irgendwas Interessantes gesagt? :)

Naja, ich hab seit meinem Onset immer mehr neue Töne entwickelt und das macht mir einfach ziemliche Angst, weil ich auch nicht weiß wo das herkommt. Er meinte, dass das die postnatale Depression ist und man die zuerst behandeln sollte. Es sollte dann weniger werden. Ich hab mich jetzt mal für so ne Tinnitusklinik beworben, vielleicht klappt das ja.

I'm right there with you. It's rough. Hang in there.

Hang in there dear @Hamsti. I completely understand the despair and hopelessness. But you are strong enough. We have to persevere, it's our only option. We have to look towards the light and hope of better days.

Thank you guys. Yesterday I saw a different ENT, who said I never should have tried prednisolone in the first place, because I also suffer from depression and it makes that condition worse. I also took a lot of Ibuprofen before the treatment...you know my concerns now. I'm tired of trying things, I'm sick of it.
The only positive thing here...my english improved a lot since my T onset because of this forum x)

Single note or melodic?

@Keith Handy melodic. My tinnitus got melodic 4 weeks after onset. I believe I developed Musical Ear Syndrome. But the bagpipes are new, since 2 days.

Mine also fluctuates. It's been 19 months already. For example, I can have 6 very silent days in a row and then 3 bad days and after that one day almost without any symptoms (like 1-2% of volume). Go figure it out))). I just hope it will go away completely after few years. The fact that I don't have any hearing loss gives me hope.

I've had fluctuating tinnitus for 1.5 years so I'm not entirely sold on that

I'm going on 2.5 years. One day it's stable, one day it's loud, one day it's quiet, and other days it varies in loudness/sound by the hour. I'm not sold that any doctor can point at a specific time to a person's tinnitus onset and say it has reach a "chronic" state reliably.

I only read the ones where it takes a long time for them to get better. The quick fix stories don't help much.

Yeah, I can relate. My case has become really bad so I can't relate to most success stories. Really hope this turns the corner soon.

Same here. Im in the "I fucked up my life and should end this mess"-mode right now.

Calm down

Thanks for your support @Zugzug! https://www.amazon.de/dp/B08N6Q1HBM/ref=cm_sw_r_cp_awdb_imm_226A27NKEKY546FGDPYD can I purchase this?

You will know whether or not you did any damage only if the spike doesn't fade after 3 months or so. For now you can assume that the spike will eventually fade.

@Hamsti I'm so sorry to hear that. Why did it get worse?

@Stacken77 Maybe because of the high dosed prednisolone they gave me. I wanted to give it a try, but now I regret it so much.

''Results revealed a time-of-day-dependence of tinnitus. In particular, tinnitus was perceived as louder and more distressing during the night and early morning hours (from 12 a.m. to 8 a.m.) ''

''than during the upcoming day. Since previous studies suggested that stress (and stress-associated hormones) show a circadian rhythm and this might influence the time-of-day-dependence of tinnitus, we evaluated whether the described results change when statistically controlling for subjectively reported stress-levels''

The circadian rhythm aspect seems particularly relevant. I seem to have a "calm period" in the afternoons that I can't magically call in any other time of the day. It knows what time it is.

What kind of infusions?

First cortisone and then something for my bloodflow

Regardless of if it helps your T, lower cholesterol will help your bloodflow:)

Do you still have musical tinnitus?

not really, there are sequences of tones, plus a rhythmic noise and other noises that vary depending on the mood of the day @in_LA