Ondine
Mood:
Gloomy
Last Activity:
Sep 30, 2022 at 9:04 PM
Joined:
Apr 19, 2021
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6
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Gender:
Female
Location:
France

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Ondine

Member, Female, from France

I'm so scared, I'm not strong enough to go through this again :'( Sep 12, 2022

Ondine was last seen:
Sep 30, 2022 at 9:04 PM
    1. Ondine
      Ondine
      I'm so scared, I'm not strong enough to go through this again :'(
      1. silentnight and NYCGuy like this.
      2. Joe Cuber
        Joe Cuber
        Rooting for you @Ondine, stay strong, you've got through it before. How's your anxiety level? Any methods for calming it down?
        Sep 13, 2022
        silentnight likes this.
    2. Ondine
      Ondine
      (3/3) and then fleeting tinnitus until the eeeeee remains... this time it's on my right ear. I can't handle it getting worse again, I can't.
      1. NYCGuy likes this.
    3. Ondine
      Ondine
      (2/?)These last few days I've experienced the same pattern as my onset : electronic noises coming back, discovering a huge iron deficiency
      1. NYCGuy likes this.
      2. Nadia231
        Nadia231
        This is very interesting. I had iron deficiency the first time I got T and also, when my huge spike which became my permanent new baseline happened 2 yrs ago.
        Sep 12, 2022
    4. Ondine
      Ondine
      (1/?) 4 fleeting tinnitus in 1h, each one louder than the last, and the last one won't entirely go away. Please let it go away :'(
      1. NYCGuy likes this.
    5. Ondine
      Ondine
      My left ear feels full and resonates with so many hellish sounds, how can it get so much better and then... :'( I'm never going to recover..
      1. NYCGuy likes this.
    6. Ondine
      Ondine
      Spiking. Its been months since it's been this awful, this loud. What's the point of being almost healed if it's for relapsing after ?
      1. NYCGuy likes this.
      2. SmallRonnie
        SmallRonnie
        I'm going through the same thing right now. It really is very depressing. This time I'm hopeful it will at least get better again eventually.
        Aug 29, 2022
        NYCGuy likes this.
    7. Ondine
      Ondine
      The old dial up modem sound has returned these last few days, it was the 1st I got when T started.. I want it gone, brings back bad memories
      1. NYCGuy likes this.
    8. Ondine
      Ondine
      Dreamt about a doctor forcing me to listen to loud sounds and mocking my fear because "T isn't real. Beat the shit out of him. It felt good
      1. NYCGuy and Steph1710 like this.
      2. Lurius
        Lurius
        I wish this was a movie so I could watch it over and over for therapy.
        Aug 23, 2022
        Ondine likes this.
      3. Steph1710
        Steph1710
        From the bottom of my heart, thank you for beating the shit out of your dream doctor. You’ve made me very happy haha! :)
        Aug 23, 2022
        Ondine likes this.
    9. Ondine
      Ondine
      It might be a coincidence, but I've been taking iodine and selenium for 2 months now and have consistently improved since. T is 90% gone.
      1. NYCGuy, Joe Cuber, Lorca and 2 others like this.
      2. Joe Cuber
        Joe Cuber
        Winner! What led you to take those two?
        Aug 13, 2022
        SamRosemary and NYCGuy like this.
      3. Ondine
        Ondine
        I didn't chose them on purpose actually. I tried a new brand for my B 12 supplements, and the new ones came with iodine and selenium supplements !
        Aug 23, 2022
    10. Ondine
      Ondine
      I know I don't post much, but I read and think of you all everyday. Love to everyone who might need it.
    11. Ondine
      Ondine
      Ear infection in both ears and Amoxicillin for 5 days... I was doing so well these last few weeks. T was so very quiet.. :(
      1. NYCGuy and Wrfortiscue like this.
    12. Ondine
      Ondine
      I'm so sick of this. So terribly, desperately sick of this. Spiking for no reason and trying to remain calm, but I've been crying for 1h..
      1. dennis_me, reggie green and aura like this.
      2. Uklawyer
        Uklawyer
        How are things now for you?
        Jun 2, 2022
      3. Travis Henry
        Travis Henry
        It always could be worse. If you don't have H and are not homebound and not able to listen to any sound at all without pain you are doing good.
        Jun 2, 2022
    13. Ondine
      Ondine
      I have to go to Paris next week and take the underground for 20 minutes. I only have foam earplugs, I hope it's gonna be enough...
      1. NYCGuy likes this.
    14. Ondine
      Ondine
      Low humming and vibrations are killing me with anxiety. I just can't go through this again :'(
      1. Christiaan, Wrfortiscue and Marshall like this.
    15. Ondine
      Ondine
      Hugs to anyone needing them <3
    16. Ondine
      Ondine
      Left/worst ear was 99% silent for the 1st time last night. If it wasn't for this low humming in the right ear it would have been perfect...
    17. Ondine
      Ondine
      To think I was considering posting a success story a few weeks ago as I was getting so much better... this is such a cruel, cruel joke.
    18. Ondine
      Ondine
      Burning and sounds feeling louder are gone, but I experienced low frequency tinnitus last night, my whole head vibrating. What is going on..
      1. NYCGuy likes this.
    19. Ondine
      Ondine
      Can hyperacusis declare for no reason ? No noise trauma, no meds? Something's definitely wrong, sounds are louder and I'm scared to death..
      1. Travis Henry likes this.
      2. aura
        aura
        Well,that's how I got mine.
        Apr 28, 2022
        Steph1710 likes this.
      3. Hottopic29
        Hottopic29
        Mine does when i have anxiety
        Apr 29, 2022
      4. Marshall
        Marshall
        Stress, anxiety, ptsd, thought of having it alone. Medication as well.
        Apr 30, 2022
    20. Ondine
      Ondine
      Left ear has been increasingly sensitive to sound and burning these last few days, I'm so sick and worried about those random symptoms...
      1. aura
        aura
        Same here. Pain and burning sensation in the past 4 days, hyperacusis,loud T. Super worried.
        Apr 28, 2022
        Marshall likes this.
      2. Hottopic29
        Hottopic29
        Solar flare from sun have been happenig mine was ache last 2 days
        Apr 28, 2022
    21. Ondine
      Ondine
      Woke up crying at the thought of it coming back as unbearable as it was last year, I just can't live through this again...
      1. NYCGuy, Wrfortiscue and OnceUponaTime like this.
      2. View previous comments...
      3. OnceUponaTime
        OnceUponaTime
        Stay positive! Chances are it will not come back as last year. Take care of yourself.
        Feb 15, 2022
        Ondine likes this.
      4. Tatsopa
        Tatsopa
        I'm sure you'll be fine "très chère compatriote" ;). Fleeting T's may be scary but, on some days, I can have dozens of them, even on "good" days. Just pressure changes I guess as it's always happening when weather is changing.
        Feb 15, 2022
        Ondine likes this.
      5. Ondine
        Ondine
        I'm sorry to reply so late, but thank you so much for your kind and reassuring words at the time. It did get better regarding fleeting tinnitus, but the unusual tone comes back once in a while and I'm now dealing with burning/sensitive ear...
        Apr 28, 2022
    22. Ondine
      Ondine
      1 year since onset. Almost healed, but three fleeting Ts and a faint unusual tone sent me into full panick attack last night. Tinnitus PTSD.
      1. NYCGuy, OnceUponaTime and Wrfortiscue like this.
      2. ThomasF
        ThomasF
        I want to send you a virtual hug.
        Feb 15, 2022
        Ondine, Wrfortiscue and Steph1710 like this.
      3. Steph1710
        Steph1710
        Sending *hugs*. <3 It will be alright. x
        Feb 15, 2022
        Ondine, ThomasF and Wrfortiscue like this.
      4. Ondine
        Ondine
        I'm sorry to reply so late, thank you both so much for comforting me when I posted this. Hugs back to you, even months later <3
        Apr 28, 2022
        ThomasF likes this.
    23. Ondine
      Ondine
      Right ear feeling increasingly sensitive and inflamed, random pain too... trying not to overthink this but it makes me so anxious.
    24. Ondine
      Ondine
      Sending hope, strength and hugs to everyone needing them today.
      1. aura, Nadia231, Tanni and 1 other person like this.
    25. Ondine
      Ondine
      I nearly have silence (jinxing myself, I know), but my fiancé told me he's had T for 2 months now out of the blue.. I wish I could take his
      1. Guest5401, Charburchar and Steph1710 like this.
      2. Exit
        Exit
        Sounds like you two got a comunicación problem:P
        Nov 9, 2021
    26. Ondine
      Ondine
      @Charburchar I'd avoid tympanometry, acoustic reflex and loudness discomfort test, MRI.. I hope you feel better soon, hang in there.
      1. Charburchar likes this.
      2. Charburchar
        Charburchar
        Oct 18, 2021
        Ondine likes this.
    27. Ondine
      Ondine
      Tired of dental problems and root-canal-or-not considerations. Having tinnitus is living in fear of making the wrong decision..
      1. CRGC, Exit, ALS and 4 others like this.
    28. Ondine
      Ondine
      Might have to take Amoxicillin for 7 days due to suspected dental infection, but I'm so afraid to ruin all improvements with my T...
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. Ondine
        Ondine
        Thank you for sharing your experience, I stumbled upon some horror stories mentioning Amoxicillin induced tinnitus, but these cases must be pretty rare... I didn't take any of it so far considering the teeth pain fortunately subsided and vanished these last few days, but it's back and stronger today so I guess I'll have to stop being in denial and take it after all.
        Sep 25, 2021
      4. Ondine
        Ondine
        I've had so much improvement with my T since the onset mid February, from suicidal tinnitus to basically non existant or 1/10 or 2/10 at most. I've been through 5 dentist appointments, 3 fire alarms and benzo taper with no consequences whatsoever, I'd hate for Amoxicillin to ruin everything, I don't know how I'd cope if it does.
        Sep 25, 2021
      5. Ondine
        Ondine
        Anyway, thanks a lot to everyone who commented on this thread, I really appreciate it. It's quite reassuring knowing you managed to take Amoxicillin without any tinnitus worsening..
        Sep 25, 2021
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  • About

    Gender:
    Female
    Location:
    France
    Tinnitus Since:
    February 2021
    Cause of Tinnitus:
    No idea, maybe headphones