Search results for query: Myoclonus

...causing this, or is it literally a thumping beat? A private consultation might be worth exploring other possible causes, such as middle ear myoclonus. Professor Bance is the go-to expert for this. As I understand it, pulsatile tinnitus is not usually connected to hearing loss, so I'm unsure...

...My issues are inflammation and hormonal cochlear hydrops. I don’t think she would have these issues at eight years old. The hydrops caused middle ear myoclonus for me, and I was worried that the marching sound could be middle ear myoclonus. Any help or reassurance would be appreciated. Samantha

Several months ago I was on the Introduce Yourself page, saying hi and describing my problem. I was originally diagnosed with palatal myoclonus by two different ENTs. I did not agree with that dx, mainly because there were no palatal spasms to be seen by either doctor. One did say that it was...

...symptoms? Are you still free from them? I also have a mild deviation. I’m seeing a neurologist today. My pulsatile tinnitus and middle ear myoclonus have become chronic. The only medication that gives me relief is Phenergan, which I actually discovered by accident. I originally took it for...

I've suffered from hyperacusis in my left ear for over 12 years now. The severity comes and goes, but it's more or less always there. Sometimes it's not bad enough that I can kind of forget about it for a period, the length of which is highly variable. When it's bad, I really can't even...

...2015. It's been almost 4 years since I submerged my head underwater. What scares me more is the fact that I'm currently having Middle Ear Myoclonus (MEM), most likely Dysacusis. Couple that with my ETD which was already caused by water in the ear, you can imagine how thrilled I am about this...

Middle Ear Myoclonus. Love you too.

...the best way I can describe it. It doesn’t seem to match the typical symptoms of TTTS (Tonic Tensor Tympani Syndrome) or MEM (Middle Ear Myoclonus). Does anyone have any ideas on what this could be? I was starting to feel a bit more positive these last few days, but now it feels like it’s...

I also have ear muscle twitching (ear myoclonus).

All, I am scheduled to have the stapedius and tensor tympani muscles cut within the next week. Does anyone have feedback on the recovery related to the surgery? How much pain? How soon can I get back to work and driving? Exercise? Also, any downsides like increased ringing or loss of...

...like your eardrum is thumping or fluttering, that sounds like TTTS (Tonic Tensor Tympani Syndrome), which is a type of MEM (middle ear myoclonus). I don't get it from typing or any sounds except sometimes from voices, which results in my left ear fluttering when the voice is speaking. And my...

Yes, sorry for the confusion, it's also called tensor tympani myoclonus.

...years with my condition, and for the past ten weeks, I have been dealing with the worst case of tonic tensor tympani syndrome or middle ear myoclonus in my right ear. It started after a loud noise exposure, followed just three days later by some extremely stressful and upsetting family news...

Hello, I am a fellow Palatal Myoclonus/Middle Ear Myoclonus sufferer. It’s been 9 years since the ear started, 8 for the palate. I am about to undergo a Tenotomy surgery for the Stapedius & Tensor Tympani muscles. I’ve been given a 50%-60% chance it will resolve it. Doubt it will work but I’ve...

...the high frequency of the tinnitus I am used to having the past 32 years. I went to an ENT and asked him if he thought it was Middle Ear Myoclonus and he said yes, since it's not going along with my heartbeat. So it is a muscle in the middle ear bones twitching out of control. My ear of...

Hello everyone, I'm a 20 year old male college student and back in December of 2019, I was officially diagnosed with Middle Ear Myoclonus. This post will be all over the place, but I hope the amount of detail that I provide may help find the source/cure as I await a contrast MRI scan. I believe...

Lots of ear issues this year. In the beginning of the year, I had a tinnitus spike caused by Lenire. That mercifully ceased a few weeks after I stopped the Lenire treatment. Then I had an episode of pulsatile tinnitus. Also cleared up after I got new mattresses/pillow/standing desk, was probably...

This doesn’t sound like dysacusis. Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes with how we perceive natural sounds or sounds in general. Simply put, it's like hearing things in a totally different way than most people are used to.

Great news! Glad it cleared. Your condition, palatal myoclonus, seems to be exceptionally rare. It can result in objective tinnitus. Glad you got the accurate diagnosis.

Does anybody have their eardrum vibrating? One month after I got T my ear drum in my left ear started to vibrate off and on and now its constant. It feels like engine vibration from a car on idle or someone playing drums on my eardrum :P. I can handle the T for the most part but this vibration...

Around 2016 I developed palatal myoclonus symptom (soft palate tremors). Could there be a relation between palatal myoclonus and tinnitus?

How are you, Deb? I really feel for you. I have similar symptoms—now 24/7 middle ear myoclonus spasms that ring with a metallic sound, especially when I talk or eat. It also pulsates with my heartbeat, but sometimes it goes off like a machine gun. The beat can even follow my thoughts and...

Phase 1b underway for AUT00201 in myoclonus epilepsy & ataxia: Autifony Therapeutics announces commencement of a US Phase Ib study of AUT00201, a novel Kv3 modulator, in Progressive Myoclonic Epilepsy-7 (EPM7)

Yes middle ear myoclonus, a type of tinnitus. <3

I think you guys may be describing Middle Ear Myoclonus (MEM). A rare form of tinnitus.

Is there any connection between tinnitus and palatal myoclonus? I forgot to mention it before; I have suffered from palatal myoclonus since 2015. Maybe it caused my tinnitus?

...sensation started around September or October 2024. I have been on and off many medications. At first, I thought it might be middle ear myoclonus, but I am not sure because I also experience thumping and inner ear spasm sensations. Right now, I am only taking 2.5 mg of Lexapro daily. I was...

I have some questions as someone who seems to be having it for the past month. Mine seems to have started quite randomly, although I may have experienced certain events that led to this happening. How did it happen to you? How long has it been? Has it gotten better? What steps do you take to...

Stapedius muscle myoclonus doesn't cause a fluttering of eardrum as far as I know. The term "middle ear myoclonus" contains both tensor tympani myoclonus (fluttering of the eardrum) and stapedius muscle myoclonus.

...feels like fluttering in my ears. It stops and starts when I speak. I’m scheduled to begin treatment for this soon, as it may be middle ear myoclonus — although it might just be another form of tinnitus. The reactive nature of the tinnitus has had a devastating impact on my life. I feel...

...tinnitus. These symptoms are still present and fluctuate significantly from week to week. After about a year, I developed middle ear myoclonus. I felt mechanical vibrations in my ears every few seconds. That sensation eventually disappeared after a few months. I also developed musical...

Have you found relief for this horrible condition? Mine has been going on for almost 2 years. It got better for a few weeks and now it's back full force! I'm thinking of going with the surgery option but I have been reading conflicting feedback about it here. For those of us with MEM, how do...

A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that get worse after burping and I also wake up from it at night a lot. Sometimes it’s more of a ”thump” kind of sound. It’s escalated the past 2 weeks...

...improvements so far. In the first couple of weeks of November, an additional issue emerged: I started experiencing intrusive middle ear myoclonus (MEM) when trying to sleep. It typically woke me up about 1.5 hours into sleep and then continued waking me up every 90 minutes. It was really...

This just sounds like MEM (Middle Ear Myoclonus) to me...

I’m the same. I pray for all of us here.

...a stressful situation and that mechanical stimuli seem to pause it somehow. It seems there are some similarities between how inner ear myoclonus and your tinnitus manifest. You feel a vibration, which suggests it's objective tinnitus. Stress might be causing muscles to become more tense...

That does sounds like Tensor Tympani Myoclonus Syndrome (TTTS), which is a type of Middle Ear Myoclonus (MEM). It can react to sounds, to movement, touching face, and spontaneously. I experience it to each of those occasionally. I first experienced it once about 18 months ago (in response to...

First of all, I am really sorry that you are dealing with this. Have Middle Ear Myoclonus or Palatal Myoclonus been ruled out by your doctors? To me, the audio you attached does not sound like a textbook case, but maybe you can ask for opinions on here or on social media platforms of people who...

...at 2 days). The episodes are all the same with a slow start, a peak of frequent clusters, then a slower taper. This is either middle ear myoclonus or myoclonus of the muscles around the eustachian tube (a form of palatal myoclonus with no movement visible or sensed within the palate)...

It doesn't work for me. Made my now diagnosed middle ear myoclonus worse. Keep away is my advice.

The crack/pop is the sound of a muscle. They are 3 possibilities: TTRS, palatal myoclonus, or stapedius muscle myoclonus spasm

How are you doing now? Hopefully a bit better... I also have the humming/fluttering in my left ear after an ear infection in April. I want it to be muscular, but suspect it is more likely a version of low-frequency related tinnitus. How are you progressing with this tone?

Did your myoclonus ever improve?

May have other causes, burping can be a trigger for MEM (middle ear myoclonus) or even palatal myoclonus. Both can induce clicking/popping/thudding in the ears.

https://mega.co.nz/#!LNQzBDiI!Ctb9_RX7WJWnf-7k3dmr3l_NfaIMdpG0ByZepE9YR4E : Palatal and stapedius myoclonus: Palatal myoclonus is characterized by involuntary palatal contractions, causing clicking tinnitus due to the action of soft palate muscles on the membranous Eustachian tuble...

Hi people, I think I have a stapedium myocloni I'm not sure... For this reaseon I'm looking for an a speacilist, expert.. about this problem, wherever. I need a good diagnosis for know what muscle works bad (stapedium, hammer...) and need to be cut. My problem sound like a fly/butterfly try...

Hi Pulsing Ear, is your myoclonus totally gone now?

Myoclonus: Myo = muscle, clonus = spasm. TTTS is a myoclonus. Its a spasming muscle, the Tensor Tympani (hence Tonic Tensor Tympani Syndrome). The Stapedius muscle also spasms in similar circumstances but due to its different function and attachment it creates somewhat different symptoms...

I also noticed stapedial myoclonus a few weeks back. Thankfully it's infrequent, often stays quiet for hours, and even when it comes on, the most I get are 5-10 clicks in one batch. I think it's related to face mask use. I'm using KN95 masks with ear savers, meaning they loop tightly around my...

...your post. My first thought was why not first try some massage on the roof of the mouth. Anyway, after doing a quick search on "palatal myoclonus natural treatment", I came up with the following videos. I don't know what they will say, but I have to believe there are some very effective...

Diagnosis of Stapedial Myoclonus Using Endoscopic Visualization Abstract Background: Stapedial myoclonus is an uncommon condition involving the rhythmic contraction of the stapedial tendon that may result in a host of symptoms, including tinnitus (1–3). There is a dearth of robust diagnostic...