Suicidal

Discussion in 'Support' started by jeremy06, Oct 14, 2018.

    1. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      Tinnitus is absolutely screaming. Insanely loud with crazy tones. This is when I wish I had a gun or could stick a syringe in me to put me in a permanent sleep.

      It seems like the worst or loudest t/tones are coming from my *right* ear and head/brain.

      So if research treatments (eventually) work, they can treat the brain too? I am still unclear how it works but I think it's very important for 'experts' to treat this 'integration' or 'relationship' between the inner ear (hair/nerve cell and cochlear damage) and the brain. 'Curing' ear pain, regardless of whether its hyperacusis, noxacusis or something else, would be nice (bonus) too.
       
    2. Kriszti

      Kriszti Member

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      There are methods which will hopefully cure the hair cells (FX-322), some which will affect the synapses (Hough), and some which attempt to solve the problems in the DCN (Susan Shore). @Killer made a very compact summery of most of the promising technologies in the pipeline. Try to check it out.
       
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    3. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I think it will take a lot of trial and error to perfect hair cell regeneration. We are living in a world where bio-companies can't take risk.
       
    4. Bartoli

      Bartoli Member

      Tinnitus Since:
      2009,worsened 2019
      Cause of Tinnitus:
      Noise
      I can't believe you're from 1445!

      On a serious note, during my own HBOT sessions there was a guy who made a full recovery from SSHL. (Unknown cause but likely vascular) Someone else with a loss due to viral infection had no such luck. Don't know about later on. They claim improvement rates up to three months after the sessions, which at the time seemed a bit shady.

      Good Luck!
       
    5. Emgee

      Emgee Member Podcast Patron Benefactor

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Modern Society = Too Loud
      Since my severe worsening, I’ve come to a realization. At least in my experience, the early days are full of anxiety. I would try to seek reassurance in the hopes that my tinnitus would fade in time. Unfortunately, for myself and many others here, that is simply not the case.

      As time progresses, that anxiety changes to anger. I became angered at the way TRT is regarded. Go to tinnitus websites or forums and you will find TRT success stories where sufferers turned their lives around. Fortunately for many of them, their tinnitus was mild to begin with. While it may help a select few, it is not even comparable to the concept of regenerative medicine. Biomedical sciences will always produce stronger results than trying to train someone to live with a horrible condition. We need less coping and more treatment. Finally, there seems to be light at the end of the tunnel with potential upcoming treatments.

      Another thing: It’s ironic how the delivery network of FX-322 will involve ENTs. The last couple ENTs I’ve been to knew nothing about it and said it will be many, many years before tinnitus is treatable (if at all). All of a sudden, these same ENTs will receive instructional guidance on how to inject the life-changing gel into our ears. How can they not be aware of significant advancements in their field? Tinnitus has made me more cynical, but it’s made me see things as they actually are.
       
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    6. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Informative Informative x 1
    7. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I think HBOT reverses cochlear inflammation in the early stages before hair cells and nerves die. HBOT along with laser therapy are two alternative therapies that appear to have some positive results and are not suspected of being harmful. (like the tonaki tinnitus protocol BS)
       
    8. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      contradictory information lol

      upload_2020-6-11_22-33-27.png
       
      • Funny Funny x 1
    9. valeri

      valeri Member Benefactor Hall of Fame

      Location:
      Australia
      Tinnitus Since:
      09/2011
      Sorry if you need to repeat yourself but what was the reason for your setback with hyperacusis?
      How did you overcome burning?
      I’m under the weather at the moment:(
       
    10. Bartoli

      Bartoli Member

      Tinnitus Since:
      2009,worsened 2019
      Cause of Tinnitus:
      Noise
      Yes I agree. I believe that the window of opportunity before hair cells die is much shorter. I wonder if any improvement after, say, 72 hours is due to improved remyelination of the auditory nerve or improved brain oxygen perfusion driving brain plasticity. It has been shown that people can hear in cochlear dead zones or zones of great hair cell loss due to off-frequency listening, where neighbouring hair cells can take over the function of the dead region. I don't know to what extent that is possible. It really points out the obsolescence of the standard hearing test. They would be better of doing an EEG. But you know... money.

      There's almost no point in doing an EEG to check for hearing loss, it's not like they can do anything about it at the moment. Yes, you can have one done at your own expense, to put your mind at rest and find the root cause of your problem.

      Audiologists are aware of the shortcomings of the testing procedures, and most know about hidden hearing loss and the vast array of hearing disorders that don't show up on an audiogram, it's just that diagnosing these symptoms doesn't give them the opportunity to treat anything with the remedies at their disposal. So they just go about their business as usual. That's why we're running in circles. Also, because most people habituate automatically, I guess a significant number get counted as having benefited from TRT, which keeps the show running.
       
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    11. Bartoli

      Bartoli Member

      Tinnitus Since:
      2009,worsened 2019
      Cause of Tinnitus:
      Noise
      I don't know @Contrast. Why is this contradictory? Clearly whatever was going on helped that person. In COVID-19 times, even people that have no health issues are more prone to mental health problems so it shows that we're not designed to have no purpose and be idle...

      Keeping busy makes a difference for me and many people here on the forum, and sometimes you need a nudge from the outside because you can't orchestrate it yourself. That's where medication and therapy comes in.
       
    12. serendipity1996

      serendipity1996 Member Podcast Patron

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      Initially being exposed to a loud car stereo for a few hours and then it worsened from listening to stuff on my laptop at a low volume - I had never had any issues with my laptop speakers until then so I am guessing my ears were in a super sensitised state and it pushed them over the edge.

      My ears can pretty much take every everyday sound now and I credit my recovery to time, quiet and lockdown. But my ears still react to laptop audio even though phone calls are fine and radio is fine (better speaker quality?). Even on low volume my laptop audio just feels like it is piercing my ears and scratching them and it just feels really 'sharp.' It also makes my tinnitus feel really piercing and almost physically uncomfortable. Hoping that it will still subside... it seems truly bizarre to me that everyday else should improve but I should still have sensitivity to very specific sounds.
       
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    13. HootOwl

      HootOwl Member Podcast Patron Benefactor Advocate

      Location:
      California
      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Explanation in About You
      I so share you frustration over the unfathomable divide between the research world and clinical world of tinnitus...I still can’t wrap my brain around why this gap exists so severely for our condition...

      But at least a substantial portion of these ENTs who know nothing about tinnitus will likely not be training to IT shots. They wouldn’t want to take on the extra liability, and probably have no interest in it.

      I honestly consider most ENTs to be “NT”s tbh. Unless you have a straightforward ear infection they’ll simply pass you over.

      Most of us will have to see an otologist or a Meniere's ENT who have already been trained, and have been giving the shots for years.

      Personally, I wouldn’t want any new freshly trained ENT sticking shots in me anyway, and I was lucky enough to be referred to someone who has done 300-400 injections so far (without any complications). And interestingly enough he was well aware of FX-322 and even the work being done by Pipeline. It just freaking sucks though that he’s the exception rather than the norm...
       
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    14. serendipity1996

      serendipity1996 Member Podcast Patron

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      It is surprising how few ENTs seem to be aware of the potential for hearing regeneration let alone that there are clinical trials! You'd think they'd at least have some knowledge of this stuff as part of CPD or something. It's heartening that some of them at least are on the ball about it and, going by Frequency's latest presentation, the response amongst the ENT/audiology community seems to be pretty positive.
       
      • Agree Agree x 4
    15. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Informative Informative x 1
    16. Emgee

      Emgee Member Podcast Patron Benefactor

      Tinnitus Since:
      03/2020
      Cause of Tinnitus:
      Modern Society = Too Loud
      • Agree Agree x 2
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    17. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Like Like x 5
    18. bobvann
      Fiendish

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      E drums headphones
      Week muscle :D:D:D:)
       
    19. serendipity1996

      serendipity1996 Member Podcast Patron

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      Have you heard of the "Lightning Process" which is getting pushed as a treatment for chronic fatigue syndrome?
       

      Attached Files:

    20. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Most people with chronic pain are desperate for opioids. It's sad and you have to be sensitive or they explode on you.

      They don't care much about biomedical research. They are in the opioid prisons.
       
      • Agree Agree x 1
    21. valeri

      valeri Member Benefactor Hall of Fame

      Location:
      Australia
      Tinnitus Since:
      09/2011
      Did somebody say there’s a summary of all current research projects?
       
    22. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
    23. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Did anyone here already purge there material possessions?
       
    24. xyz

      xyz Member

      Location:
      Germany
      Tinnitus Since:
      2006 mild T 2019 T worsening H onset
      Cause of Tinnitus:
      unknown / probably noise induced
      I think @Kriszti referred to this post of @Killer:
       
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    25. Kriszti

      Kriszti Member

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      @valeri
       
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    26. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      That's an interesting theory and it could explain why sometimes pressure that seems to be focused or irradiated from deep inside my ears makes my eyes get tired real fast (I feel pain behind my eyes, always on the same side of my face).

      The theory about neck issues also makes sense... I try to stretch to relax my neck and shoulders.
       
    27. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      I agree with you. Hyperacusis changes completely the perspective on life. One cannot live hoping for the best anymore but only trying to be cautious not to worsen.

      In my case, even after developing some hearing loss my tinnitus and hyperacusis strongly react to sound, and I still get very bad headaches, pressure, and fluctuating hearing, which apparently is really strange.
       
    28. Kriszti

      Kriszti Member

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      Sorry, venting.

      I'm just so tired of getting told to go to therapy in order to cure my tinnitus. I do have depression and anxiety issues, but I don't think that it caused the ringing in my ears, but because I don't have a clear-cut cause, it must be because of my mental health... I used to go to therapy pre-tinnitus, but didn't have a very good experience. Not overly unpleasant, just absolutely ineffective, but expensive.

      Tinnitus is really hard on its own, I'm just exhausted of getting blamed for not wanting to get better, because this situation must be so convenient for me. Yep, I'm having the time of my life... I have tried a myriad of stuff, so although I know everybody wants the best for me and I haven't been easy to be around since this shit started, I don't react too well to this "tough love" approach. I'm not willing to take any medication due to fear of ototoxicity, so I probably will go to talking therapy when I have the financial means. I don't think it will help, but I just want people to leave me alone about it. And if it does help, great.
       
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    29. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      It's rational because you are anticipating scenarios that can actually damage you, but they cannot damage a person with normal ears. Loud sounds can damage you physically but also make your life miserable in many other ways (losing a job, not being able to work, making it harder to go out or socialise etc).

      So for other it seems irrational but it is not.
       
      • Agree Agree x 2
    30. Juan

      Juan Member

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      Well, previous generations did not put up with the vast amount of noise there is today. We are surrounded by noise at all times. It is just impossible to go have lunch or a coffee without deafening noise around. This is specific of today's world, where music and PA systems are needed even at restaurants (people just go to eat there!), supermarkets etc.

      There is noise everywhere, and it was not like that 20 years ago.
       
      • Agree Agree x 2

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