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delta784
I am thinking to use clonazepam same way you do but i am only 29 years old. My tinnitus, visual snow came after methylprednisolone intravenous which damaged my ears and brain it seems very odd reaction. Saturday is my off day where i usually go out meet my gf is it okay to take wednesday and saturday?
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delta784
if you dont mind may i ask how old are you @Cmspgran
Cmspgran
Hi, I don't mind you asking I'm in my early 40s, clonazepam isn't an ideal drug to be on at all but if it allows you to function and continue to work my philosophy is then it's the only option in my case. Tough at your age but understand what it's like to struggle so much.
delta784
so daily 0.5 stopped working for tinnitus or anxiety? i know sedation affect goes away
S
A great success! Felt almost like my old self yesterday. This has been very difficult month and a half, so I did celebrate a little! I deserved it! Still, not yet completely as I used to be.
DamagedJoe
I am very happy for you! Gives me hope for my own future. I can not accept i will have this for life...
S
@DamagedJoe Thanks! Just give it time. :)

I don't still feel like before the evening in the club, but it's been almost 2 months now. So these thing take LOTS of time. Never going to a club again. Or any loud places.
delta784
hows your tinnitus after clonazepam why did you stop after 7 months it stopped working?
Marina Moon
Today, I did something I thought I'd never be able to do, something I feared. Today, I mowed the lawn! It was an eletric lawn mower and I wore earplugs. I was definitely sore afterwards (pain in my face) and muscle stiffness around my body, but I did it! And I had fun! :D
Marina Moon
T is normal like usual. My right ear was a little loud afterwards, but I did do a cardio workout earlier in the day before mowing, and the pressure in my right eustachian tube is always messed up. I'll wait and see.
Marina Moon
An odd thing happened last night, not sure if it was contributed to by the mowing. But in bed, as I laid on my left side, the ringing in my right ear went up and the ringing in my left ear turned off (or so quiet that I didn't even perceive T) This occurred for less than a minute, then it went back to as it was before. I don't know why this happens at times, but the human body is an odd thing.
Foamearplugssuck
My parents are forcing me to go to the ER with catastrophic nox LMAOOOOOOOO pray for me
ECP
You've had nox for a long time, haven't you? Why are they making you go to the ER today? Did something new happen to your ears? Sending hugs.
ECP
How did things turn out yesterday? Are you all right?
cjbhab
how are you doing? hope you are well.
Frédéric
I am currently browsing each university website based on the Shanghai Ranking to find information about research in tinnitus...
ECP
Hello, are you still following the NeuroMed protocol at home? Have you found it helpful?
Yellowblue44
Hi @ECP nortriptyline helped lower a killer tinnitus tone but not much else.
How is your ear pain nowadays. On top of everything I've developed ear pain, that lingers even in silence. Do you have this?
ECP
Sorry to hear that. I do have ear pain in silence sometimes. Are you taking B2 and magnesium along with the nortriptyline?
4Grace
@L along the way - hello!!! How are you doing? If ever anyone sees me back here … it's a sign I am much worse. My God am i progressing. I have not been able to talk due to pain for over a year. I'm also in the best shape of my life because I bike 26 km a day. It's saving me and killing me at the same time.
L along the way
oh dear.. sorry to hear that.. but happy to read that you're in good spirits biking a lot. Myself... also ups & downs. Finding calmth for sleep has been an issue.. but it's been a bit better recently. Besides the physical pain from t, i'm also feeling a lot of emotional pain and sadness linked to it i guess.
L along the way
But well.. day by day.. trying to find inspiration too, distract myself a bit with gaming, eating healthy and going for long walks each day too.. i still kinda live on hope for a recovery with time
4Grace
@L along the way - good to hear from you. Yes, the physical pain is the worst. I find the only way I have a chance is to live a little but everything I do makes me worse. It's crazy. I did an MRI the other day. Nothing. Ufffff my ears are screaming. I could do T no pain maybe.
S
One evening in loud place with earplugs, and now it's been 1,5 months of hell. I was basically cured already. What a stupid thing to do.
kingsfan
Despite knowing better, we do make poor decisions. It's our human condition to be among others and connect – to feel alive. It's in our nature, and it always wins.
L
Actually had an acoustic reflex test performed during the tympanometry test that I was not informed of. "Informed consent". Went up to 95db. New, high-pitched electrical current noise.
kingsfan
I am so sorry. I was also a victim of this test, nearly 5 years ago.
L
Thank you for your sympathy, I appreciate it a lot. How are you doing these days?
Marina Moon
my sister yelled directly into my right ear. it was the first time for me that sound caused immediate ear pain, and it hurt alot. (the pain in my face/jaw today was bad, like most days. Woke up with my right ear and tmj hurting) My life is ruled by pain. I am filled with so much anger right now. I don't want to feel this way, i hate that too!
4Grace
@Tryn2BHopeful - hey old friend. Miss talking to you. I'm exposing more and more at the cost of louder T. No concerts and stuff but the bare minimum to live. I feel like I need to learn to live with it no matter how loud. I just can't get over people that have it and still go to concerts. I am doing better with it but it's always a step ahead of me getting worse.
Tryn2BHopeful
I understand. Glad you are doing better with it. I feel defeated today. I don't recognize the person I the mirror. Disheveled and sad looking. My life reached it's peak 2 years ago and now it's in a downward spiral. I was doing well and I guess i wasn't deserving.
4Grace
You are not alone. You are deserving. Honestly, I'm not doing better. I go bike riding to distract and each ride makes it louder. Can't work or be around family .. can't even be around my daughter. I have not been able to speak due to pain for over a year.
4Grace
It's interesting that i was so happy and I too came to the conclusion that I was undeserving. I am in church 3 times a day praying. Food impacts mine almost more then additional sound. Every breath is hard. This am it's louder then ever. My left ear feels like there is a spike in it. We are so deserving. Happy Father's Day.
Marina Moon
i read over the after visit summary my doctor wrote. She wrote that i have cervical and lumbar spondylosis.......
I DO NOT HAVE CERVICAL AND LUMBAR SPONDYLOSIS. I have x rays and mri's that prove otherwise! I already knew I wasn't going to go back to her again because she literally has not helped me getting to the cause of all my pain, but what the actual fuck???
Marina Moon
The NP wrote down that my low back pain was suspect due to "thoracolumbar spondylosis." They cannot make a bold claim like that especially since I had X-rays done of all three sections of my spine that showed healthy discs and spaces between them. I do have scoliosis and forward head posture, but there was no indication of degeneration or osteoarthritis. Should I make a complaint to them?
Marina Moon
The NP aslo wrote that I have BILATERAL arm pain. I do not. I literally told them so many times, and drew so many pictures on the human diagrams they've given me, that I have only left arm pain. I remember she was really cold to me during the visit, so it's confirmed that she really wasn't listening to me at all. You don't write FAKE symtpoms in for a patient.
B
I saw another ENT specialist. He has recommended that I undergo a myringotomy to drain the fluid that has been sitting behind my ear drums for many years (pending the results of a new hearing test). He is curious of whether or not if ear tubes will help me.
angiediazr
ciprodex
anyone here with tinnitus du to ciprodex
Ken219
Ciprodex can cause tinnitus, according to the FDA DailyMed website and user reports on Drugs.com. Tinnitus, or ringing in the ears, is listed as a possible side effect. Some users have reported mild to severe tinnitus after using Ciprodex for ear infections.
angiediazr
Yes i have severe T due to those eardrops
S
Few days ago my ears felt like they can handle anything. Today, even rustle of paper feels uncomfortable. What a ridiculous condition this is. Totally ridiculous.
cjbhab
it is totally non-sensical. Sometimes just the water in the shower is too loud for me and painful- other days it is totally relaxing.
S
@cjbhab Exactly. Sometimes I go to shower and when I leave, I am like "wow, so relaxing, it's almost silent". Then other days "OMG why did I go to take a shower, I made it worse again!" Annoying. It would be very nice to know the reason why it behaves like that.
L
Anyone have any weird sensations following a tympanometry test (a typical part of a hearing exam to test middle ear condition)? I feel some fullness in my ears, and my tinnitus seems aggravated.
arcanesystem
I've developed distortion/ringing in my right ear every time I talk or when I hear other voices. I can't tell if it's reactive T or hyperacusis. Either way, it's so annoying.
ErikaS
Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop for 12ish weeks, they just stopped about a week ago. The ONLY change? I took 2-3 doses of Ubrelvy (CGRP inhibitor) that the Neurologst wanted me to try to see if it would help with tinnitus and reactivity.
ECP
That's great news! Does your neurologist think your ear symptoms are actually a type of migraine disorder? And did you ever try taking B2 and magnesium according to the clinical protocol?
cjbhab
TTTS is totally horrible. I have had some crazy bouts over the past few years. It seems random.
henkess
Have to try that,my ttts is hard. Its better for some weeks now atleast=)
streifzug
chatgpt says youtube narrowband sound therapy like cicadas is shit for your hyperacusis and t... always use low level broadband. what do you think?
vilebubbles
I got a lot worse while using cricket videos but was also driving and trying to live normally with reactive T so I can't say if that was a factor.
S
Do not use any kind of sound therapy videos or sounds for hyperacusis treatment. Just live as normal life as you can (avoiding loud places of course). Time will get rid of it. Took me 4 years.
Sodlin
Had an extremly important meeting and my coworker had borrowed my "portable speaker microphone" and hadnt return it so had to sit in a room with 5 coworkers with the laptop speakers on max trying to have a meeting. Man those laptopspeakers is like a drill in the ear, i handled it for 5 minutes then i had to go back and get earplugs to continue the meeting. Having a spike hope i didnt screw up.
MindOverMatter
No, you didnt screw up man. You need to stop the circle of worry. I know 100% where you are coming from. Those sounds are not good to me either with their thinny, high frequent soundscape. But honestly, the worst thing that will happen with this, is ear fatigue and a shortlived spike (if that). Your pattern of reaction makes more damages to your nervous system than this sound.
D
I can feel that. It was some truly good times that there were no piercing sounds for the ears, back with no T/H...
Sodlin
The spike ended very quickly. (i got a very huge spike from something else tho that i cant really pinpoint but i think its from sitting and something muscle related). After the speaker incident spike subsided i actually been doin pretty good. Tinnitus still roars as loud as possible but for some reason my mind dont seems to "care" so much.
B
Hello. I took a couple of hours to review your messages today. A horrible chronicle but so relieved that you found the strength to carry on.
Tryn2BHopeful
Got exposed to 90-100db for several minutes before I could get my earplugs in at a work event in a "Barn"... Praying no damage was done... but I never really know for 2-4 days until after exposure if something happened for some reason.
W
More than likely not a problem. It's simply not loud enough and long enough to cause lasting damage.
Eric N
You survived a molar grind down I really wouldn't worry about anything else at this point :p
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