NYCGuy
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NYCGuy

Member, Male, from NY

Does anybody knows good neurologist in NY, NJ or CT? Aug 7, 2022 at 6:11 PM

NYCGuy was last seen:
Viewing forum list, Aug 12, 2022 at 12:08 AM
    1. Mal25
      Mal25
      I have a friend in NY who's knowledgeable want me to ask him about neurologist in NY or do you need a Neurotologist?? He knows alot. Anything to help bro
      1. NYCGuy
        NYCGuy
        That can be great. I think mine is cause by TMJ for sure @Mal25 I hope we get better soon
        Aug 8, 2022 at 4:24 AM
    2. NYCGuy
      NYCGuy
      Does anybody knows good neurologist in NY, NJ or CT?
      1. in_LA and ZFire like this.
      2. tracyNYC
        tracyNYC
        Evan Noch MD PhD at Weill Cornell
        Aug 7, 2022 at 10:59 PM
        NYCGuy and ZFire like this.
      3. ZFire
        ZFire
        @NYCGuy Dr. Maksim Shapiro, MD Neurology , located in NYU Langone Medical Center. I’ve believed he’s dealt with tinnitus patients. He seems well liked.
        Aug 8, 2022 at 1:33 AM
      4. NYCGuy
        NYCGuy
        Aug 8, 2022 at 1:35 AM
    3. NYCGuy
      NYCGuy
      My ears are totally damage and never went to concert or loud environment. For sure is stress and TMJ but no idea what else to do.
      1. Wrfortiscue likes this.
    4. NYCGuy
      NYCGuy
      But today is on both ear and feel like a Morse code none stop, vibration is less but I can hear it on both ears now.
    5. NYCGuy
      NYCGuy
      I have weird ear vibration, first 4 nights was like butterflies in my ear that I can feel and hear.
    6. Mal25
      Mal25
      I be looking at them fake pressed percs like now I know if I took 4 of them and drank a lot of promethazine and threw in a couple hydrocodone I'd get outta here for good. But would it hurt is the question? And then heaven can I still go
      1. NYCGuy
        NYCGuy
        Please try everything possible, there are so many things to try to help us out. We have to keep fighting and not give up.
        Aug 6, 2022 at 12:44 AM
      2. MaxRabbit
        MaxRabbit
        Agree. Of course its hard but everyday is closer to healing, a treatment or the cure. You aren't alone..no matter how bad it is - we all understand the hard battle you are in. Keep trying to figure out how to keep staying alive!
        Aug 8, 2022 at 10:47 PM
        NYCGuy likes this.
    7. MaxRabbit
      MaxRabbit
      Hi NY. I'm lazy to read up. Can I ask what some of that 30K went to for treatment? I'm sorry youre here too. Life was never meant to be like this. Support and hugs from the other coast.
      1. NYCGuy
        NYCGuy
        Many expensive doctors, MRI, CT Scans, I went to Neurologist, TMJ specialist, several ENT, Pain doctor, Neck Pain, did NUCCA, Physical Therapy etc
        Aug 5, 2022
        Mal25 likes this.
    8. NYCGuy
      NYCGuy
      I ask my self 200 times, why we deserved this? Why there is no help? I spend over 30K and got zero answers or help at all.
      1. Mal25, ThomasF, Damocles and 4 others like this.
    9. NYCGuy
      NYCGuy
      4 days I started with my right ear vibrating, but is not a sound but most like a physical type of vibration, I LITERALLY LOOSING MY MIND
      1. Mal25 likes this.
      2. KP26
        KP26
        I’ve been trying to explain this but couldn’t. It’s coming from both ears and seemingly my head as well. Why is this happening, not fair
        Aug 5, 2022
        NYCGuy likes this.
    10. NYCGuy
      NYCGuy
      I start with Pulsatile Tinnitus right ear, then high pitch loud on the left, then morse code on the right plus PT and dealing for a year
      1. Steph1710 likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        @Steph1710 Those I can live with, I think somehow I got used it to it but the new vibrations on my good ear is driving me crazy.
        Aug 5, 2022
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        @NYCGuy ah yes, the ol’ vibrations. Don’t worry, I have that too. Weird to think before 2018 I had no ear problems whatsoever. Those little bastards are buggered now. Seriously, life is a lil bitch. Hopefully you’ll get used to the vibrations too.
        Aug 7, 2022 at 10:38 AM
        NYCGuy likes this.
      5. NYCGuy
        NYCGuy
        @Steph1710 how you described vibration? I can't find what is destroying my ears and I have so many issues and this last one the vibration is putting me on the edge.
        Aug 7, 2022 at 5:49 PM
    11. NYCGuy
      NYCGuy
      I enjoyed the time here and got to know great people, I hope you all get better with time and the miracle happens.
      1. tpj, beefling, lusiol and 4 others like this.
      2. Wrfortiscue
        Wrfortiscue
        Hope you get better as well. Sorry nothing works right now
        Aug 4, 2022
        NYCGuy and BrOKeN_1 like this.
    12. NYCGuy
      NYCGuy
      Time for me to say goodbye to the forum after OTO-313. Lost all hope and I think this is now forever and there won't be a cure.
      1. JPGL and Wrfortiscue like this.
      2. View previous comments...
      3. Leila
        Leila
        I'm sorry your suffering has reached a point where it is overshadowing everything you've once considered worth living for. The other commenters are right, of course there is hope and of course there is a chance of improvement, but the tinnitus hell you're forced to live with is an unbelievable challenge as well - all day, every day -
        Aug 4, 2022
        NYCGuy likes this.
      4. Leila
        Leila
        and only you can decide whether this is just a temporary low or if you have truly reached your limits. I don't have to tell you to think this through carefully because I'm sure you already have. Whatever you decide I wish you all the courage in the world because one decision is as hard as the other, all the best!
        Aug 4, 2022
        NYCGuy likes this.
      5. JPGL
        JPGL
        OTO-313 WORKED,perhaps the study was defective, even so it is not a regenerative medicine, it is not regenerative, there are regenerative medicines,just around the corner, let,s not lose hope.
        Aug 4, 2022
        Steph1710 and NYCGuy like this.
    13. Flowergirl
      Flowergirl
      Idk how to give u a trophy on here so please accept this virtual trophy & feel better :-)
      1. Damocles, ThomasF, NYCGuy and 2 others like this.
    14. NYCGuy
      NYCGuy
      Had very closed contact with somebody with Covid, now I'm scared as hell.
      1. JPGL, Guywithapug, ZFire and 2 others like this.
      2. blamingeverything
        blamingeverything
        I've managed to avoid it thus far but I know it's inevitable.
        Jun 8, 2022
        JPGL, ZFire and NYCGuy like this.
      3. ZFire
        ZFire
        How are you feeling ?
        Jun 9, 2022
        Flowergirl likes this.
      4. Flowergirl
        Flowergirl
        I know 3 people with it right now. 1 has a headache 1 has what feels like a cold. The other is on the rebound. I think if u had shots it's not as severe. Don't be scared you are already tough as h*ll.
        Jun 17, 2022
        Barry098, NYCGuy and JPGL like this.
    15. ZFire
      ZFire
      You’ve ever been to Cheesequake state park NJ? Great hiking spot
      1. NYCGuy and Rockman like this.
      2. View previous comments...
      3. ZFire
        ZFire
        Hey @NYCGuy Went to high point yesterday. Its the best park I’ve been to thus far. I made to the high point monument and wow the view is gorgeous. Thanks for letting me know about this park.
        Jul 14, 2022
        MindOverMatter and NYCGuy like this.
      4. NYCGuy
        NYCGuy
        I'm so happy you enjoyed it @ZFire. I went few backs to green lake in upstate NY and WOW, IS BEAUTIFUL. The same with finger lake and Onedia lake, great fishing.
        Jul 15, 2022
        ZFire likes this.
      5. ZFire
        ZFire
        Yeah i saw the picture. Wow had no idea NY waters could be that blue.
        Jul 15, 2022
        NYCGuy likes this.
    16. RachLouise
      RachLouise
      Hey, i know that we share quite a few symptoms. Just wondering what you tried for your jaw issues?
      1. NYCGuy likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        @RachLouise Seems my first message got deleted, I mentioned I did NUCCA and PT and vitamins, diets, etc but so far nothing has help me on the T. Nucca and PT did help with my TMJ and Neck pains.
        May 12, 2022
        Flowergirl likes this.
      4. RachLouise
        RachLouise
        Sorry if I'm not seeing your previous comments, I'm useless at this site. Did you try an occlusal splint?
        May 12, 2022
        NYCGuy and Flowergirl like this.
      5. NYCGuy
        NYCGuy
        @RachLouise just saw your last message. I didn't, I don't know if will help.
        Jun 18, 2022
    17. ZFire
      ZFire
      Yo, did you hear that really loud thunderstrike early this morning? Holy crap, I panicked. It shook the whole city. I have family in NJ and they told me they felt its impact too. Lighting struck atop the One World Trade Center. And I’m all the way uptown. I’m okay so far.
      1. NYCGuy
        NYCGuy
        I think we all did, but I heard a few of them but two were really really loud. I even disconnect my work computer just in case lol.
        May 3, 2022
        Damocles and ZFire like this.
      2. ZFire
      3. NYCGuy
        NYCGuy
        @ZFire I'm in NJ, to be honest next to Manhattan but it sound so so loud. I'm around in front of central park, when looking from NJ.
        May 3, 2022
        Damocles and ZFire like this.
    18. ZFire
      ZFire
      Haven’t seen you in a while.. how you doing?
      1. Rockman and Wrfortiscue like this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        I'm so happy to hear you are doing better, this thing seems take long time to get use to it or heal itself, I have high hope at least one of the clinical trials will work for us. @ZFire
        Apr 26, 2022
        Wrfortiscue, Flowergirl and ZFire like this.
      4. NYCGuy
        NYCGuy
        Apr 26, 2022
        Wrfortiscue, Flowergirl and ZFire like this.
      5. Flowergirl
        Flowergirl
        @NYCGuy if you are getting along mostly without T during the day I'm so happy to know that.
        Jun 30, 2022
        NYCGuy and Wrfortiscue like this.
    19. NYCGuy
      NYCGuy
      Anybody here invest in frequency or OTO stocks?
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        Mar 25, 2022
        Wrfortiscue likes this.
      4. Wrfortiscue
        Wrfortiscue
        Thanks man!
        Mar 25, 2022
        NYCGuy likes this.
      5. Sentinel
        Sentinel
        Yep, I've got OTIC and I'm probably gonna buy more given it's previous peak and just based off it's current price.
        Mar 25, 2022
    20. NYCGuy
      NYCGuy
      When life is full of problems and then we add T to it, it is just so hard to deal with everything.
      1. sakrt, Sointu, tracyNYC and 5 others like this.
      2. ThomasF
        ThomasF
        As small of lesson this may be. T has taught me that people are good at adapting. Myself and Yourself included. Be strong and don't be afraid to lean on others when you feel the need. I'm rooting for you.
        Mar 24, 2022
        NYCGuy likes this.
      3. NYCGuy
        NYCGuy
        Thank you so much @ThomasF for your kind words!
        Mar 24, 2022
        Flowergirl and ThomasF like this.
      4. Flowergirl
        Flowergirl
        Life's problems I can handle. tinnitus & hyperacusis Are problems. I'm hanging on waiting for a miracle like most of you.
        Jun 17, 2022
        sakrt, ThomasF and NYCGuy like this.
    21. MartinPihl
      MartinPihl
      Hi there.
      How are your fleeting T these days?
      1. NYCGuy likes this.
      2. NYCGuy
        NYCGuy
        A lot better, luckily. But had a few crazy weeks.
        Mar 22, 2022
    22. NYCGuy
      NYCGuy
      With time his tinnitus disappear, now and then if he goes to loud places Tinnitus returns but is under control
      1. Flowergirl, LostinTX, Matt G and 4 others like this.
    23. NYCGuy
      NYCGuy
      Speaking with a friend at work, he said he also has tinnitus for 20 years due to concert and was really bad but he said
      1. DocTors_94, Steph1710 and Wrfortiscue like this.
    24. NYCGuy
      NYCGuy
      Custom ear plugs protection in their way, let's hope they do work well.
      1. View previous comments...
      2. Flowergirl
        Flowergirl
        I've been searching ear plugs 4ev. I'm a singer need to hear music but it's too loud so Idk
        Jun 17, 2022
        NYCGuy likes this.
      3. Flowergirl
        Flowergirl
        Jun 30, 2022
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        It protects the ears and preventing T getting worse. @Flowergirl
        Jul 1, 2022
    25. NYCGuy
      NYCGuy
      My T was really loud and start taking Melatonin to sleep at night and has calm down the sound by almost by half.
      1. View previous comments...
      2. Robster
        Robster
        In the UK you need a prescription for Melatonin apparently.
        Mar 4, 2022
        NYCGuy likes this.
      3. Flowergirl
        Flowergirl
        @NYCGuy I read about 2 mg per nite? I'm ready to try melatonin and quit taking ambien. Can you recommend a brand? Ty for any input.
        Jun 29, 2022
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        @Flowergirl I take 5 mg or 10 mg depending. I use the nature bounty and do the one with time release and Gaba.
        Jun 30, 2022
        Flowergirl and Damocles like this.
    26. NYCGuy
      NYCGuy
      Another person who got the OTO 313 said the T lower a lot after 5 weeks post injection, there is still hope.
      1. View previous comments...
      2. NYCGuy
        NYCGuy
        @Bambam0 in Facebook, he got it 5 weeks ago
        Feb 24, 2022
        Exit and Phendran like this.
      3. Flowergirl
        Flowergirl
        I'm rejected due to Menieres . good luck to all
        Jun 17, 2022
        NYCGuy likes this.
      4. Flowergirl
        Flowergirl
        I'm 20 min from where they had the trials. My ENT won't even help me oh well. I'm getting trigger point shot in shoulder next week maybe it will help.
        Jun 30, 2022
        NYCGuy likes this.
    27. NYCGuy
      NYCGuy
      Now my good ear has severe Tinnitus, I can't believe it.
      1. View previous comments...
      2. NYCGuy
        NYCGuy
        @Wrfortiscue I did diet and didn't do anything and try all type of vitamins. I did ENT, my left ear had hearing loss only at 2HZ at 35 DB and he said is very strange to see loss at only 1 frequency. Right ear was great hearing and this was 3 months ago. But now I have T in the right ear with no hearing loss.
        Feb 23, 2022
        Wrfortiscue likes this.
      3. NYCGuy
        NYCGuy
        @Wrfortiscue I think is TMJ, doing NUCCA but help with neck pain but nothing at all T and I will start PT next week and then I will see to get a mouth splint but I'm scared, they cost 4K to 10K and it can help but a lot report getting worse.
        Feb 23, 2022
        Wrfortiscue likes this.
      4. Wrfortiscue
        Feb 23, 2022
        NYCGuy likes this.
    28. NYCGuy
      NYCGuy
      Anybody suffer from fleeting tinnitus on their good ear?
      1. View previous comments...
      2. aura
        aura
        What good is a " good ear" when you have a broken brain?
        Feb 7, 2022
      3. DimLeb
        DimLeb
        I suffered from it in both ears long before regular tinnitus. In rare times, even low tones with a vibrating quality to them, but mostly mid range ones. Of course now the episodes are way scarier and more frequent...
        Feb 7, 2022
        Damocles and NYCGuy like this.
      4. MartinPihl
        MartinPihl
        Yes! Actually, mostly in my "good ear" (where i have 1 tone).

        Though it also happens in my bad ear (where i have 4 tones).
        Feb 18, 2022
        NYCGuy and Damocles like this.
    29. NYCGuy
      NYCGuy
      Something new, If I applied pressure below my ear on my neck, the Pulsatile Tinnitus would go away. I think all my issues are TMJ.
      1. View previous comments...
      2. NYCGuy
        NYCGuy
        @Steph1710 I know what you mean that's why I went with the main doctor in NYC, Dr Arthos Patsalides who is the one who start the stent surgeries in the US. He saw my scan and saw nothing.
        Feb 3, 2022
      3. NYCGuy
        NYCGuy
        He said in 6 months we may do MRI Tricks is a new type of MRI great for this type of issues or Angiogram, but he said there is chances they don't find anything. He focus on Venous sinus stenosis, IIH or DAVF
        Feb 3, 2022
      4. Reed19
        Reed19
        If I do that it intensifies for me. Most tinnitus is somatic but if you are still experiencing pain there is a decent chance of fixing this good luck.
        Feb 4, 2022
        Flowergirl and NYCGuy like this.
    30. NYCGuy
      NYCGuy
      Great, I was diagnose with Trigeminal Neuralgia, Tinnitus, Pulsatile Tinnitus, TMJ plus TN, how in hell this happened to me?
      1. Phendran and Steph1710 like this.
      2. View previous comments...
      3. Flowergirl
        Flowergirl
        What did you end up doing?you still go camping & fishing. That's awesome. I can't imagine that right now. I hope you are feeling ok today. I'm fighting today. But committed to something this evening.:-/ will push through & smile nobody understands anyway
        Jun 17, 2022
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        @Flowergirl I continue to try to live a normal life, seems I'm accepting more the T but still bother me at night or when it's silent.
        Jun 18, 2022
      5. NYCGuy
        NYCGuy
        That's the best we can do, try to keep fighting. Nobody understands our issues, I give up explaining to friends @Flowergirl
        Jun 18, 2022
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  • About

    Gender:
    Male
    Location:
    NY
    Tinnitus Since:
    10/2021
    Cause of Tinnitus:
    Neck, Jaw or Stress, who knows.