NYCGuy

That can be great. I think mine is cause by TMJ for sure @Mal25 I hope we get better soon

Evan Noch MD PhD at Weill Cornell

@NYCGuy Dr. Maksim Shapiro, MD Neurology , located in NYU Langone Medical Center. I’ve believed he’s dealt with tinnitus patients. He seems well liked.

Thank you @tracyNYC

Please try everything possible, there are so many things to try to help us out. We have to keep fighting and not give up.

Agree. Of course its hard but everyday is closer to healing, a treatment or the cure. You aren't alone..no matter how bad it is - we all understand the hard battle you are in. Keep trying to figure out how to keep staying alive!

Many expensive doctors, MRI, CT Scans, I went to Neurologist, TMJ specialist, several ENT, Pain doctor, Neck Pain, did NUCCA, Physical Therapy etc

I’ve been trying to explain this but couldn’t. It’s coming from both ears and seemingly my head as well. Why is this happening, not fair

@Steph1710 Those I can live with, I think somehow I got used it to it but the new vibrations on my good ear is driving me crazy.

@NYCGuy ah yes, the ol’ vibrations. Don’t worry, I have that too. Weird to think before 2018 I had no ear problems whatsoever. Those little bastards are buggered now. Seriously, life is a lil bitch. Hopefully you’ll get used to the vibrations too.

@Steph1710 how you described vibration? I can't find what is destroying my ears and I have so many issues and this last one the vibration is putting me on the edge.

Hope you get better as well. Sorry nothing works right now

I'm sorry your suffering has reached a point where it is overshadowing everything you've once considered worth living for. The other commenters are right, of course there is hope and of course there is a chance of improvement, but the tinnitus hell you're forced to live with is an unbelievable challenge as well - all day, every day -

and only you can decide whether this is just a temporary low or if you have truly reached your limits. I don't have to tell you to think this through carefully because I'm sure you already have. Whatever you decide I wish you all the courage in the world because one decision is as hard as the other, all the best!

OTO-313 WORKED,perhaps the study was defective, even so it is not a regenerative medicine, it is not regenerative, there are regenerative medicines,just around the corner, let,s not lose hope.

I've managed to avoid it thus far but I know it's inevitable.

How are you feeling ?

I know 3 people with it right now. 1 has a headache 1 has what feels like a cold. The other is on the rebound. I think if u had shots it's not as severe. Don't be scared you are already tough as h*ll.

Hey @NYCGuy Went to high point yesterday. Its the best park I’ve been to thus far. I made to the high point monument and wow the view is gorgeous. Thanks for letting me know about this park.

I'm so happy you enjoyed it @ZFire. I went few backs to green lake in upstate NY and WOW, IS BEAUTIFUL. The same with finger lake and Onedia lake, great fishing.

Yeah i saw the picture. Wow had no idea NY waters could be that blue.

@RachLouise Seems my first message got deleted, I mentioned I did NUCCA and PT and vitamins, diets, etc but so far nothing has help me on the T. Nucca and PT did help with my TMJ and Neck pains.

Sorry if I'm not seeing your previous comments, I'm useless at this site. Did you try an occlusal splint?

@RachLouise just saw your last message. I didn't, I don't know if will help.

I think we all did, but I heard a few of them but two were really really loud. I even disconnect my work computer just in case lol.

https://www.nbcnewyork.com/weather/thunder-boom-wakes-nyc-area-monday-morning-heres-why-it-was-so-loud/3671075/

@ZFire I'm in NJ, to be honest next to Manhattan but it sound so so loud. I'm around in front of central park, when looking from NJ.

I'm so happy to hear you are doing better, this thing seems take long time to get use to it or heal itself, I have high hope at least one of the clinical trials will work for us. @ZFire

Thank you @Wrfortiscue

@NYCGuy if you are getting along mostly without T during the day I'm so happy to know that.

OTIC is the stock name,
@Wrfortiscue

Thanks man!

Yep, I've got OTIC and I'm probably gonna buy more given it's previous peak and just based off it's current price.

As small of lesson this may be. T has taught me that people are good at adapting. Myself and Yourself included. Be strong and don't be afraid to lean on others when you feel the need. I'm rooting for you.

Thank you so much @ThomasF for your kind words!

Life's problems I can handle. tinnitus & hyperacusis Are problems. I'm hanging on waiting for a miracle like most of you.

A lot better, luckily. But had a few crazy weeks.

I've been searching ear plugs 4ev. I'm a singer need to hear music but it's too loud so Idk

@NYCGuy but ear plugs won't help T

It protects the ears and preventing T getting worse. @Flowergirl

In the UK you need a prescription for Melatonin apparently.

@NYCGuy I read about 2 mg per nite? I'm ready to try melatonin and quit taking ambien. Can you recommend a brand? Ty for any input.

@Flowergirl I take 5 mg or 10 mg depending. I use the nature bounty and do the one with time release and Gaba.

@Bambam0 in Facebook, he got it 5 weeks ago

I'm rejected due to Menieres . good luck to all

I'm 20 min from where they had the trials. My ENT won't even help me oh well. I'm getting trigger point shot in shoulder next week maybe it will help.

@Wrfortiscue I did diet and didn't do anything and try all type of vitamins. I did ENT, my left ear had hearing loss only at 2HZ at 35 DB and he said is very strange to see loss at only 1 frequency. Right ear was great hearing and this was 3 months ago. But now I have T in the right ear with no hearing loss.

@Wrfortiscue I think is TMJ, doing NUCCA but help with neck pain but nothing at all T and I will start PT next week and then I will see to get a mouth splint but I'm scared, they cost 4K to 10K and it can help but a lot report getting worse.

:(

What good is a " good ear" when you have a broken brain?

I suffered from it in both ears long before regular tinnitus. In rare times, even low tones with a vibrating quality to them, but mostly mid range ones. Of course now the episodes are way scarier and more frequent...

Yes! Actually, mostly in my "good ear" (where i have 1 tone).

Though it also happens in my bad ear (where i have 4 tones).

@Steph1710 I know what you mean that's why I went with the main doctor in NYC, Dr Arthos Patsalides who is the one who start the stent surgeries in the US. He saw my scan and saw nothing.

He said in 6 months we may do MRI Tricks is a new type of MRI great for this type of issues or Angiogram, but he said there is chances they don't find anything. He focus on Venous sinus stenosis, IIH or DAVF

If I do that it intensifies for me. Most tinnitus is somatic but if you are still experiencing pain there is a decent chance of fixing this good luck.

What did you end up doing?you still go camping & fishing. That's awesome. I can't imagine that right now. I hope you are feeling ok today. I'm fighting today. But committed to something this evening.:-/ will push through & smile nobody understands anyway

@Flowergirl I continue to try to live a normal life, seems I'm accepting more the T but still bother me at night or when it's silent.

That's the best we can do, try to keep fighting. Nobody understands our issues, I give up explaining to friends @Flowergirl