Search results for query: Myoclonus

Yes, sorry for the confusion, it's also called tensor tympani myoclonus.

This doesn’t sound like dysacusis. Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes with how we perceive natural sounds or sounds in general. Simply put, it's like hearing things in a totally different way than most people are used to.

Hello, I am a fellow Palatal Myoclonus/Middle Ear Myoclonus sufferer. It’s been 9 years since the ear started, 8 for the palate. I am about to undergo a Tenotomy surgery for the Stapedius & Tensor Tympani muscles. I’ve been given a 50%-60% chance it will resolve it. Doubt it will work but I’ve...

All, I am scheduled to have the stapedius and tensor tympani muscles cut within the next week. Does anyone have feedback on the recovery related to the surgery? How much pain? How soon can I get back to work and driving? Exercise? Also, any downsides like increased ringing or loss of...

...the high frequency of the tinnitus I am used to having the past 32 years. I went to an ENT and asked him if he thought it was Middle Ear Myoclonus and he said yes, since it's not going along with my heartbeat. So it is a muscle in the middle ear bones twitching out of control. My ear of...

...sensation started around September or October 2024. I have been on and off many medications. At first, I thought it might be middle ear myoclonus, but I am not sure because I also experience thumping and inner ear spasm sensations. Right now, I am only taking 2.5 mg of Lexapro daily. I was...

Hello everyone, I'm a 20 year old male college student and back in December of 2019, I was officially diagnosed with Middle Ear Myoclonus. This post will be all over the place, but I hope the amount of detail that I provide may help find the source/cure as I await a contrast MRI scan. I believe...

...feels like fluttering in my ears. It stops and starts when I speak. I’m scheduled to begin treatment for this soon, as it may be middle ear myoclonus — although it might just be another form of tinnitus. The reactive nature of the tinnitus has had a devastating impact on my life. I feel...

Lots of ear issues this year. In the beginning of the year, I had a tinnitus spike caused by Lenire. That mercifully ceased a few weeks after I stopped the Lenire treatment. Then I had an episode of pulsatile tinnitus. Also cleared up after I got new mattresses/pillow/standing desk, was probably...

Great news! Glad it cleared. Your condition, palatal myoclonus, seems to be exceptionally rare. It can result in objective tinnitus. Glad you got the accurate diagnosis.

Phase 1b underway for AUT00201 in myoclonus epilepsy & ataxia: Autifony Therapeutics announces commencement of a US Phase Ib study of AUT00201, a novel Kv3 modulator, in Progressive Myoclonic Epilepsy-7 (EPM7)

...tinnitus. These symptoms are still present and fluctuate significantly from week to week. After about a year, I developed middle ear myoclonus. I felt mechanical vibrations in my ears every few seconds. That sensation eventually disappeared after a few months. I also developed musical...

Yes middle ear myoclonus, a type of tinnitus. <3

Around 2016 I developed palatal myoclonus symptom (soft palate tremors). Could there be a relation between palatal myoclonus and tinnitus?

...improvements so far. In the first couple of weeks of November, an additional issue emerged: I started experiencing intrusive middle ear myoclonus (MEM) when trying to sleep. It typically woke me up about 1.5 hours into sleep and then continued waking me up every 90 minutes. It was really...

...a stressful situation and that mechanical stimuli seem to pause it somehow. It seems there are some similarities between how inner ear myoclonus and your tinnitus manifest. You feel a vibration, which suggests it's objective tinnitus. Stress might be causing muscles to become more tense...

I think you guys may be describing Middle Ear Myoclonus (MEM). A rare form of tinnitus.

Does anybody have their eardrum vibrating? One month after I got T my ear drum in my left ear started to vibrate off and on and now its constant. It feels like engine vibration from a car on idle or someone playing drums on my eardrum :P. I can handle the T for the most part but this vibration...

Is there any connection between tinnitus and palatal myoclonus? I forgot to mention it before; I have suffered from palatal myoclonus since 2015. Maybe it caused my tinnitus?

That does sounds like Tensor Tympani Myoclonus Syndrome (TTTS), which is a type of Middle Ear Myoclonus (MEM). It can react to sounds, to movement, touching face, and spontaneously. I experience it to each of those occasionally. I first experienced it once about 18 months ago (in response to...

I have some questions as someone who seems to be having it for the past month. Mine seems to have started quite randomly, although I may have experienced certain events that led to this happening. How did it happen to you? How long has it been? Has it gotten better? What steps do you take to...

A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that get worse after burping and I also wake up from it at night a lot. Sometimes it’s more of a ”thump” kind of sound. It’s escalated the past 2 weeks...

Stapedius muscle myoclonus doesn't cause a fluttering of eardrum as far as I know. The term "middle ear myoclonus" contains both tensor tympani myoclonus (fluttering of the eardrum) and stapedius muscle myoclonus.

First of all, I am really sorry that you are dealing with this. Have Middle Ear Myoclonus or Palatal Myoclonus been ruled out by your doctors? To me, the audio you attached does not sound like a textbook case, but maybe you can ask for opinions on here or on social media platforms of people who...

This just sounds like MEM (Middle Ear Myoclonus) to me...

...right ear. My baseline tinnitus is a high-pitched hissing on the right side with a small mid-frequency hum. I also experienced middle ear myoclonus (MEM) in 2020, which went away but came back throughout 2024 on and off. Thankfully, the MEM has subsided now. Recently, I started using a nasal...

Have you found relief for this horrible condition? Mine has been going on for almost 2 years. It got better for a few weeks and now it's back full force! I'm thinking of going with the surgery option but I have been reading conflicting feedback about it here. For those of us with MEM, how do...

It doesn't work for me. Made my now diagnosed middle ear myoclonus worse. Keep away is my advice.

...at 2 days). The episodes are all the same with a slow start, a peak of frequent clusters, then a slower taper. This is either middle ear myoclonus or myoclonus of the muscles around the eustachian tube (a form of palatal myoclonus with no movement visible or sensed within the palate)...

Your story sounds very similar to what I have been experiencing over the past few years. However, I did not take any SSRI or similar medication. It all seems to have happened to me without any clear cause. Over the last four years, my symptoms have been building up — tinnitus, TTTS, random...

The crack/pop is the sound of a muscle. They are 3 possibilities: TTRS, palatal myoclonus, or stapedius muscle myoclonus spasm

Did your myoclonus ever improve?

May have other causes, burping can be a trigger for MEM (middle ear myoclonus) or even palatal myoclonus. Both can induce clicking/popping/thudding in the ears.

Hi Pulsing Ear, is your myoclonus totally gone now?

Hi there, I wanted to reach out to you. You posted four years ago that ritrovil helped resolve your middle ear myoclonus, can I ask what your symptoms were that it helped resolve and how long it took, do you still take it? Thanks so much, also if you have tinitus what medications or treatments...

https://mega.co.nz/#!LNQzBDiI!Ctb9_RX7WJWnf-7k3dmr3l_NfaIMdpG0ByZepE9YR4E : Palatal and stapedius myoclonus: Palatal myoclonus is characterized by involuntary palatal contractions, causing clicking tinnitus due to the action of soft palate muscles on the membranous Eustachian tuble...

Hi people, I think I have a stapedium myocloni I'm not sure... For this reaseon I'm looking for an a speacilist, expert.. about this problem, wherever. I need a good diagnosis for know what muscle works bad (stapedium, hammer...) and need to be cut. My problem sound like a fly/butterfly try...

...I saw a specialist last week and am now being referred to a super-duper specialist, although not holding out any hope. P.S. One of the many health professionals I've seen in the last year has put me forward for physiotherapy. What kind of physiotherapy is there for Middle Ear Myoclonus...

I also noticed stapedial myoclonus a few weeks back. Thankfully it's infrequent, often stays quiet for hours, and even when it comes on, the most I get are 5-10 clicks in one batch. I think it's related to face mask use. I'm using KN95 masks with ear savers, meaning they loop tightly around my...

...going through that kind of crap. No one deserves such an ailment. I've got a question though. How did they decide on the Middle Ear Myoclonus (MEM) diagnosis? Do you have thumping/fluttering/spasming in the ear? Sorry if you mentioned it in the above conversation and I missed it. I mean...

Myoclonus: Myo = muscle, clonus = spasm. TTTS is a myoclonus. Its a spasming muscle, the Tensor Tympani (hence Tonic Tensor Tympani Syndrome). The Stapedius muscle also spasms in similar circumstances but due to its different function and attachment it creates somewhat different symptoms...

Only here, my ENT hasn't even mentioned it. Another personal hell with no treatment? Who would test for this? My GP? ENT? Lord I hope it's not the latter, they didn't even mention it. All they want to do now is get me to come in for an allergy test.

Have you heard about different kinds of myoclonus? Either in the middle ear or palatal myoclonus?

Diagnosis of Stapedial Myoclonus Using Endoscopic Visualization Abstract Background: Stapedial myoclonus is an uncommon condition involving the rhythmic contraction of the stapedial tendon that may result in a host of symptoms, including tinnitus (1–3). There is a dearth of robust diagnostic...

...your post. My first thought was why not first try some massage on the roof of the mouth. Anyway, after doing a quick search on "palatal myoclonus natural treatment", I came up with the following videos. I don't know what they will say, but I have to believe there are some very effective...

I know Middle Ear Myoclonus (MEM) appears to be quite rare. Mine is pretty bad right now. Is there anything I can try such as muscle relaxers or supplements to try and reduce it? It's been crazy for 2 weeks non-stop.

The symptoms he’s describing sounds like a syndrome called “MEM” (Middle Ear Myoclonus).

Sounds like myoclonus. Stapedial or TTTS. Or some problem with your Eustachian Tube.

So far I haven't heard a good case with Botox, except when the ear spasm happens due to Palatal Myoclonus where Botox does help. I heard that doctors are scared to put Botox in the ear muscles because they don't know what issues it can cause.

So the roof of your mouth is spasming?

I suspect that. Plus the fact that I have seen other cases of palatal myoclonus from antibiotics (they are somewhat epileptogenic). I have seen reports of Ciprofloxacin causing palatal myoclonus. Combine that with the fact that last summer I had severe problems from a neuroleptic drug (they are...

This study showed how treating palatial myoclonus treated a patient's depression so what did they conclude? (Discussion continued below)

I have taken it for cramping tensor tympani and it worked very well but with diminishing effect over time.

Went to the GP today. He was very cordial, but he denied the amoxicillin caused the myoclonus. He said that it was my anxiety disorder that caused it. I'm like WTF, he wanted to give me a referal to a psychiatrist, I was like "NO, THIS CALLS FOR А NEUROLOGIST", like are these doctors trying to...

I did have a bad hyperacusis as well, but now it got better... Could you please tell me more about myoclonus?