How do I do this? Help would be greatly appreciated. If this is implying I could literally get Ebselen, you are quite literally saving my life and I wish I could cure all of you.
Shit... I'm in the US. Maybe I could have one of my European friends deliver it to me.
Your doctor applies for you (they should know the process) and contacts the company.
That is insanely expensive though, about $1900 daily for the required 200 mg dosing — unless you have $13,300 to burn weekly.
@weab00 doing God's work.
21 .
28 days at high dose 400 mg will set you back $2700. Which I guess is not too bad in the grand scheme of things if it could effectively cure hyperacusis, but that's not a guarantee.
How does one take it orally? It's a powder, right? What would I have to dissolve it in?
Interesting... I have read your other posts, and must say, I am really sorry for you to be in this crap situation.
Definitely keep us updated. Everyone here is dying to know how Ebselen affects tinnitus.
I just want to chime in that "how much it affects tinnitus" is going to be very dependent on how much in each individual is inflammatory or neuro-excitatory. This shouldn't help with synapse loss or hair cell loss, for instance if there isn't also a larger inflammatory component.
I'm not sure, to be honest, but I remember someone on here posting previously about needing DMSO to take it. If you go on this lab's page and look at the solvent & solubility table, you will find the following for in vivo administration, which would seem to be consistent:
I'd like to go on the record that trying to secure this stuff on the market and then consume it based on a "back of the napkin" dosage schedule seems like a terrible idea.
Would be cool if they could articulate in greater detail, but any positive news is welcome : )
I firmly believe if this does help noxacusis it will take a long time for the pain fibers to become desensitized again. There won't be an instant result imo for whatever does end up helping, if this is one of those things.
I need to know more about this. As far as I know, it isn't delivered in a form that can be taken orally.
For the sake of many of us who are or who have been on the brink with this condition, could you please try to persuade this person to make an account of their experience with Ebselen so far somewhere on Tinnitus Talk? It would be great to hear it from the horse's mouth and for us to be able to ask questions.
If they do... Have them create some kind of "data diary" of their experience. We need to understand to what extent it has helped them, how long it lasts, how fast they notice the effects etc...
I do not know this person, the stranger who contacted me would have to do that. But they still haven't responded to his initial questions which is weird.
Probably if somebody has anecdotal cases on hyperacusis vanishing after Ebselen treatment, it is Sound Pharmaceuticals as they have had Ebselen in clinical trials for hearing conditions for nearly ten years.
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