Suicidal

Discussion in 'Support' started by jeremy06, Oct 14, 2018.

    1. Lurius
      Wishful

      Lurius Member

      Location:
      Oslo, Norway
      Tinnitus Since:
      September 2018
      Cause of Tinnitus:
      Valsalva maneuver
      Haha, I actually bought those things in 2018 and the Buetooth was so fucked up, I wasn't able to use them 90% of the time. Returned them and after a veeeery long process, I got my money back. But I admit, they were nice when they worked. The "crackling bonfire" sound especially.
       
    2. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      I will be absolutely damned if your problems are from the cafe. Possible, but I'll be damned. You wore earplugs.
       
    3. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      Gary Pitts referred to Bose Sleepbuds II, which were released in October 2020. You couldn't have bought the II in 2018.

      You had the original Sleepbuds which sucked. Sleepbuds II are better.
       
    4. Backpacker

      Backpacker Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      SSHL
      If the gym means so much to you, you can ride a gym bike (in a way any average person would ride it, not pushing the limits) and walk on the treadmill (not run, because bouncing/jarring movements are not good for you if you have PLF symptoms) and still not interrupt the healing. These are the only non-strenuous activities I can think of, but if you have any other options that do not involve a temporary increase in intracranial pressure, OK. The most dangerous activities for you would be push-ups and plunks, and as you know, lifting heavy weights. Although the word heavy doesn't mean the same for every person, you should keep in mind everything heavier than a chair is not something you should lift while you are trying to heal, and if you have to lift something, do it standing, don't lift anything heavy above your head. If you stick to these restrictions, you are not likely to interrupt the healing.
      Misleading. Severe PLF cases usually show objective symptoms. You have to do your own research. What they are saying is absolutely true for severe cases, and yet misleading. They are conflating the PLF diagnosis with PLF surgery suggestion as if everyone who got a PLF diagnosis got a suggestion for a surgery.

      20210502_171755.jpg

      20210502_164835.jpg
       
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    5. MrCrybaby

      MrCrybaby Member Benefactor

      Tinnitus Since:
      2014, 10/2019
      Cause of Tinnitus:
      School Band, Noxious Car Radio
      @roy1159, what are your jaw problems? What surgery are you pursuing?
       
    6. Forever hopeful
      Depressed

      Forever hopeful Member

      Location:
      USA
      Tinnitus Since:
      2015 resolved, 4/20 L ear, increase 2/21
      Cause of Tinnitus:
      2015,noise,2020-21 SNHL
      I’ve absolutely considered those. The problem is I’ve become so spooked about using any kind of earbuds or headphones. There’s a lot of debate shall we say, on this site about their contribution to hearing loss. It stinks too at the gym when I want to listen to music.
       
    7. roy1159
      Suicidal

      roy1159 Member

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Probably noise from working in a cafe' for 2 years
      It will take up to a week and the surgery is next Thursday. It probably won't affect the tinnitus let alone the hearing problems but it's the only thing left to try.
      My parents are already devastated, they are tired of dealing with my hopeless situation and my futile existence - they don't want anything to do with me anymore. I really am just a burden on them and in general. I wish my case would allow me to return to normal life, but as I explained in previous posts it leaves me too dysfunctional to even have 5% of normal quality of life - it really couldn't be any worse.
      Well I don't know if I stated this before but I started using earplugs in the café only after the tinnitus onset, but the severe hearing problems appeared after the tinnitus onset - 4 months of part time work (with earplugs) and being in total silence when off work, it can't get more bizarre than this. Even the Professor of Audiology I met was baffled and ordered Auditory Processing Tests so she can get the full picture regarding my hearing problems. What are the odds.
      I have Condylar Hyperplasia which means my right TMJ outgrows my left one, which causes facial asymmetry and serious TMJ dysfunction. Now the TMJ is still growing after it ceased and that's why I need to have Condylectomy to remove part of it and thus stop the growth and return TMJ function. It probably won't affect my tinnitus let alone my hearing problems but it doesn't hurt to try, it's my last ditch effort really.
       
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    8. MrCrybaby

      MrCrybaby Member Benefactor

      Tinnitus Since:
      2014, 10/2019
      Cause of Tinnitus:
      School Band, Noxious Car Radio
      The TMJ joint can actually have a HUGE impact on tinnitus and even hyperacusis. I think that surgery is a reasonable last ditch effort. I wish you luck :huganimation:
       
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    9. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/28/16
      Cause of Tinnitus:
      Shooting/loud noise
      Yes, I will just take it easy for a few months and see if things get better. Hopefully it will heal on its own.
       
    10. Autumnwillows

      Autumnwillows Member

      Tinnitus Since:
      April 2019
      Cause of Tinnitus:
      Loud door alarm in ear.
      @Tanni, thank you hunnie.

      I'm certainly going to try my best. Went home this weekend and was lovely but now I have a vibrating echo every time I speak or someone else is speaking! In my left ear, really horrible feeling.

      Just can't make this stuff up sometimes, had mini break down and just popping the Propranolol to keep me semi sane.

      And doing the whole bargaining with nobody to just let me have my original noise back.

      Thank you for letting me know about what you've used in past. I've spoken frankly to my doctor and was also referred to mental health but have been told they can't help and to ring BTA for advice. To be honest, I'm not sure I'm going to ask for anymore help. I might have stood a chance if in a stable place at home and in life but all of it overwhelms me.

      Oh and to add to the lovely pile, I've got to move out of where I'm staying by August, so as for now my plan stands. Summer with kids as best I can, book a place to stay when I have to move and see what September brings. I will continue to hold out hope for improvements.
       
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    11. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
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    12. Autumnwillows

      Autumnwillows Member

      Tinnitus Since:
      April 2019
      Cause of Tinnitus:
      Loud door alarm in ear.
      @ajc, it's ok, they lost me at the guy on the website saying how much their bloody information booklet helped him and to ignore it. I'm thrilled for him but if the stuff that's been used helped me, I wouldn't have been at the doctor begging for help lol.
       
    13. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      My wife left me and even though I have a diagnosis, all of my potential disability lawyers are running for the hills. They don't want to touch my case, as they view it as too challenging and therefore, not profitable for them. LOL, cool story bro. #SocialistState

      I'm like breaking all of the codes because my situation is so rare. Fun times...

      Hats I've had to wear over the past two years: Scientist and my own doctor. What the hell, let's add a law degree...
       
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    14. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Started with a cold, possibly worsened by medication/noise
      I'm so sorry... my wife left me too, so I understand. For sure, at the end of this ordeal, if we survive and improve, we'll become renaissance men.
       
      • Hug Hug x 10
    15. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      Definitely a person I would like to have a drink with if this all ended for us. I hope some of the drugs in the pipeline can help you.
       
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    16. Chinmoku

      Chinmoku Member Benefactor

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Started with a cold, possibly worsened by medication/noise
      We are also both mathematicians. We should definitely have a drink if we improve. I hold you in very high esteem. I hope we can find a way to keep on living.
       
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    17. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      @convolution is also a mathematician. Would be cool to collaborate someday... my ability is all over the map these days.
       
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    18. Aaron91
      Gloomy

      Aaron91 Member Podcast Patron Benefactor Ambassador Advocate

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Loud music/headphones/concerts - Hyperacusis from motorbike
      I understand you feel desperate, but try to be patient. There are a good number of cases who get better from hyperacusis but it can take up to two years. Granted, there are those who don't and those are the ones who you see frequent this forum (those who get better rarely seem to post), but given you're 6 months in you still may be one who improves with time - you won't know though unless you give your body that time.

      Honestly, the best thing you can do right now is rest your ears. I wouldn't go to a noisy gym - workout from home, but try and minimise any air or blood pressure to your head that could make things worse. I would actually avoid weights for some time and any kind of exercise that forces blood/pressure towards your skull. If your ears are under a pressure environment, they will be under stress and they will not recover.

      Your fluttering suggests that a lot of your symptoms are middle-ear related. This doesn't surprise me given your symptoms seem to have been set off by lifting weights. I honestly think there's some kind of pressure/ED/middle-ear inflammation going on. Like some of us here, I think you could try something like Ambroxol, which can drain the middle-ear of any inflammatory fluid.

      Some of us will also be experimenting with the Stamet's stack this month - not just individual components of it as others have done before - and there's good reason to believe that that may help some of us. Stay strong.
       
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    19. Simon85

      Simon85 Member

      Tinnitus Since:
      Nov 2020
      Cause of Tinnitus:
      Probably noise exposure, but unknown.
      Sorry to hear this Zugzug. I can only imagine that there is no well trodden path to finding support with a rare condition. I hope future medical advances bring you some relief.
       
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    20. AliasM
      Depressed

      AliasM Member

      Location:
      Australia
      Tinnitus Since:
      Dec 2020
      Cause of Tinnitus:
      ? Autoimmune, daily headaches, Ibuprofin, BP meds, Virus?
      I am truly sorry to hear about your marriage.
       
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    21. Diesel

      Diesel Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      1-2019
      Cause of Tinnitus:
      20+ Years of Live Music, Motorcycles, and Power Tools
      Keep your head up my friend. You will get through all of this.
       
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    22. Brian Newman

      Brian Newman Member

      Tinnitus Since:
      12/28/16
      Cause of Tinnitus:
      Shooting/loud noise
      Thanks. I really appreciate your input. I was slowly getting better. I keep getting setbacks with sounds that usually don’t happen. I’m just wearing earplugs everywhere.
       
    23. Matchbox

      Matchbox Member

      Location:
      BC Canada
      Tinnitus Since:
      August 2020
      Cause of Tinnitus:
      Noise Induced, Prednisone (drones), Barotrauma (distortions)
      I think I must be unlucky then. It stops working quickly and the moment I'm off, if I try one 0.5 mg dose of Clonazepam, I have to deal with extra thumping noises for at least 3 days.

      I'd love to do benzo vacations but the last spike after it wore off was so bad I had to call into work which doesn't look good when you work remotely.
       
    24. roy1159
      Suicidal

      roy1159 Member

      Tinnitus Since:
      01/2020
      Cause of Tinnitus:
      Probably noise from working in a cafe' for 2 years
      I have been feeling detached from normal life for many months now.

      Now I'm feeling detached from my body and brain - both deteriorated beyond repair.

      I can't wait to undergo the surgery next week so I can finally end this nightmare and life, as relief due to the surgery is not probable. I will be stuck being hard of hearing anyway so I'll have to end it no matter what.

      People should enjoy their lives as there is no way knowing what's around the corner - your life can go from 100 to zero in a matter of months, no matter what you have achieved or had - it was all a simulation.
       
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    25. convolution

      convolution Member Podcast Patron Benefactor

      Location:
      Sweden - Italy
      Tinnitus Since:
      26/11/2020
      Cause of Tinnitus:
      White Noise from Headphones (likely)
      .
       
    26. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      Please try Clonazepam + Gabapentin combination. Helps some people here.
       
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    27. Sironketchup

      Sironketchup Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      SSHL / Stress
      My girl also left me because I see no future for me, getting kids etc...

      I feel your pain. If I get rich with crypto, you are all welcome to the party.
       
      • Hug Hug x 5
    28. Aaron91
      Gloomy

      Aaron91 Member Podcast Patron Benefactor Ambassador Advocate

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Loud music/headphones/concerts - Hyperacusis from motorbike
      I'm very sorry to hear this, Zugzug. The wider emotional and social consequences of hyperacusis are beyond devastating. I'm at my wits' end and my condition is not as bad as yours. We need solutions and soon.
       
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    29. Zugzug

      Zugzug Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      Autoimmune hyperacusis from Sjogren's Syndrome
      Thanks, Aaron. Hyperacusis really is a POS. I will be severely traumatized for life, no matter what. I'm sure you will too. I take solace in the fact that God has a plan for me, which probably includes torturing me harder.
       
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    30. Aaron91
      Gloomy

      Aaron91 Member Podcast Patron Benefactor Ambassador Advocate

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Loud music/headphones/concerts - Hyperacusis from motorbike
      I have always admired your ability to maintain a sense of humour throughout. If we ever both get through this, I'll take you for a beer one day.
       
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