Suicidal

Discussion in 'Support' started by jeremy06, Oct 14, 2018.

    1. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      @Frayact, sorry to hear that the humming is bothering you so much. That’s good it goes away for years at a time and let’s hope it does again soon.

      Ya, it’s the feeling aspects that make my tinnitus so bad. If the high frequency stuff was just sounds and not physical feelings, too, I’d be okay. It would instantly become 80% better. But it’s hard to adapt when it feels like electricity plugged into your head. It’s like sticking your finger in a socket. I get jolts or shocks. It’s really F’d up.

      I haven’t had an MRI for it. My hyperacusis is so severe, so I don’t see how I would. I did do a CT scan for my humming last year and they found I might have superior canal dehiscence. But they weren't sure.

      I wonder if the vibration and electricity feelings we feel are just the brain’s way of processing the sounds. Almost like it thinks a hum ought to vibrate due to its super low frequency — like the same sound when we encounter it in real life — and maybe it thinks super high frequencies—like mine—should sting because of the nature of the high sounds. Not sure. I know other people with tinnitus similar to mine and theirs doesn’t hurt, but maybe it’s not as high of a frequency. Truly a mystery.
       
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    2. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Jerad, don't know if I told you all this before:

      Slow head movement is important. Don't try to focus on a moving object. Was told for you to stop constant eye movement with reading and writing. Told that this is so needed. Don't move eyes across a computer or TV screen.

      Exercise other than walking can increase brain zaps.

      Benadryl should help.

      By doing all this, electrical sensations, brain zaps should be gone in weeks to a couple of months. GABA levels should increase.

      Besides what I know and told by an experienced therapist, this article reflects a bit of what I mentioned above.

      https://www.wikihow.com/Stop-Brain-Zaps
       
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    3. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      Thanks, @Greg Sacramento. I'll follow that and read those steps. I appreciate it!

      Do you think my electrical type tinnitus could just be related to it being so high frequency that the brain interprets it as a feeling too? It started after an apparent topical ototoxic reaction to colloidal silver for a leg ulcer. I also used some Benzoyl peroxide, but I never had issues with that in the past.
       
    4. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @Jerad, if silver ion accumulation in the tissues increase to a certain level they could (very rare) begin precipitating in the corneal (eye) region, thus causing brain zaps and high frequency electrical sensations - hippocampus region.

      This is needed: Slow head movement. Don't try to focus on a moving object. Try to control constant eye movement with reading and writing. Don't move eyes across a computer or TV screen. This will take some effort. Neck posture - try not to have space between neck and pillow when sleeping.

      Some neuro doctors may later try occipital nerve stimulation with a device.

      Multiple sclerosis (MS) - doubt it.
       
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    5. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      Thanks, @Greg Sacramento, I appreciate the help! I will look into applying all that. The zaps are accompanied by sounds of zaps, too. So it’s a sharp zing (like the sound of train breaks squealing) and then I feel it, too... like a burst of sharp electricity. I dunno if that’s just a bad case of tinnitus or something more to it, like what you’re describing. I haven’t had any vision problems and had an eye exam a month ago. I haven’t taken silver in 3 months, but the symptoms are still happening. It’s like high frequency tinnitus that is also felt — feels like steam escaping or electrical currents, and then the zaps, too.
       
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    6. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      This can be caused from occipital nerves at the brain stem and this should also be temporary.

      A theory is that REM sleep (rapid-eye movement) may influence serotonergic processes in the brain, and the “zaps” are a byproduct of the rapid-eye movement.

      A couple of British psychiatrists described brain zaps as, “sensory symptoms or symptoms of disequilibrium in brief bursts” when a person moves their head or eyes.

      It has been speculated that moving the eyes side to side may provoke or intensify brain zap sensations.

      Brain zaps are considered to be caused by neurotransmitter alterations within the brain, particularly those involving “serotonin.”

      GABA or serotonin levels being lowered by a medication or substance that crosses the brain barrier can cause brain zaps. Overuse of colloidal silver even on skin can cross the brain barrier and temporary lower GABA or serotonin. No research states that an ototoxic reaction from colloidal silver applied to skin can cause tinnitus.

      As said again in this article, your problems should go away. My therapist friend said what might help is slowing down on side-to-side eye movement. He can't say for sure if moving your head slowly and not your eyes across a computer screen will help the recovery process, but it's a simple therapy to try.

      Brain Zaps: Causes & Treatments For Electrical Shock Sensations - Mental Health Daily
       
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    7. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      What an awful situation. People shouldn’t have to live like this in this day and age; there should be more help and support for tinnitus and hyperacusis sufferers. Even a supportive and acknowledging tone from our doctors would be a start, but most of us don’t even get that.

      I wouldn’t go down the alcohol route if I were you, but I don’t want to sound preachy when you’re clearly distressed. Have you tried reintegrating yourself back into the world? It may be that your self imposed isolation is making everything worse and all you have to focus on is your problems. I know this sounds dumb, considering how bad your mental state is, but would you consider joining a chess club? You’d be in a quiet room, and it would give your mind something else to focus on for a while. The deep concentration that’s required transcends the mind into a state of meditation and I found that it really helped me during the darkest times of my life, and not just my tinnitus-related trauma. You would also get to socialise with others and this would allow you to get out of your own headspace for a bit.

      If the idea of chess really doesn’t appeal to you, then you could substitute it for any number of relatively quiet activities that involve deep concentration and social interaction. When we are depressed our problems become amplified tenfold. I think breaking our regular patterns and routines can help give ourselves a new sense of purpose and it can help naturally change the state of your mind. It’s difficult to just get out of bed when we hit rock bottom, so I understand how ridiculous I probably sound to you, but if you can find someone to help you make baby steps forwards, then I believe it would make a big difference to your life.

      We all need a sense of purpose.
       
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    8. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Hi there Ed. Just wanted to let you know I've read your post and I appreciate it. Right now I simply don't know how to apply any positive small change in my life. I feel completely frozen in my pain and suffering. I am going to the doctor on Thursday to get checked regarding my body tremors. I hope I will eventually find some relief from it, because this has taken away my last ability to do much of anything. I have to resort to lying in bed many hours a day cause I very often get so easily winded and dizzy just from standing up.
       
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    9. pleasejuststop
      Suicidal

      pleasejuststop Member

      Location:
      Ny
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Loud noise
      I’m freaking out. Gonna be sick. Took Tramadol with Acetaminophen for CRPS (nerve pain disease) and my tinnitus got louder, and there is a new tone, like the sound a hearing aid makes, but shriller.

      I’m gonna vomit. I only took 1 but my tinnitus already had gotten louder 2 months ago due to a bottle of Toradol I was supposed to take for the pain condition. So I’m afraid it’s permanent this time from the acetaminophen. Everything sounds so loud and painful, even eating chips. I’m so afraid that this has done permanent damage.

      It’s been about 4 days and I took a steroid but it doesn’t seem to be going down, and the new tone is scaring me most of all. I’m terrified. I’m on my 22, I cannot take this. I’m so so scared. Someone please help.
       
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    10. PeteJ
      Aggressive

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      I often use foam earplugs now, under a winter hat aka toque - didn't do it often enough, I guess - and when I don't, I seem to experience an acoustic trauma.
      With the weather getting warmer, now what can I/we do?!?

      I recently was at a gas station at a busy traffic street and it was warm out so wasn't wearing a hat - had no earplugs in. A loud truck went by. Spiking ever since. It is unbearable. Eventually, I won't be able to take it anymore.
       
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    11. Marshall

      Marshall Member

      Location:
      ND
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Not sure/virus/noise trauma/cumulative noise damage
      I just sport earmuffs everywhere. I don’t even care anymore, earplugs are an annoying to put in and out anyways.
       
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    12. Kriszti

      Kriszti Member Benefactor Hall of Fame

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      I don't really understand the connection between the ability to wear earplugs and winter. Are you ashamed of them? If so and you can't get over it, there are transparent earplugs which barely can be seen. Offers less protection than foamies, but better than nothing.

      I for one don't care about the stares, I wear earmuffs in public when my ears are tired of the earplugs. Sure, I feel like the town freak, but I try to look at it like glasses. I need them for a medical condition, so if others have a problem with it, it is their issue, not mine.
       
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    13. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      30 dB trucks going by sound like a jet engine going off. Every day is worse. But somehow, I can deal with it.

      What I can't deal with is facing doctors again. It brings me right back to my early days and sends my mental health into a spiral. Being doubted is the key to insanity. I know it's best to not bother, but I need to build a disability case. And yes, I know I must play the mental health card. I am on a long waiting list.

      I bring up the recent study in the thread Juan made about otoacoustic emissions testing to my ENT, one who has been brought up on this forum, and supposed to be worth his salt. I was already waiting on him to respond to other messages. I just get the "that test involves hair cells, try TRT" response from his assistant, which he had already pushed during my appointment. I already know this information, dude. You aren't listening to me. Though I know not much can be done for hyperacusis, he's seem disinterested start to finish and unwilling to explore possibilities or guide me beyond TRT and antidepressants. I do not understand the pushback. I'm sure me trying to bring up latest research was enough reason to dismiss me as a loony though.

      I need proof, that's all. Something tangible saying my ears are screwed, especially with my distortion prior to hyperacusis and always being a tad hard of hearing, there's gotta be something there. And the very real chance of ear damage for my particular case of hyperacusis. But no, it doesn't matter what your cause was. As soon as an ENT hears the word hyperacusis escape your mouth they just shut out any other possibilities. I still have yet to find doctors who believe and are willing to explore what I've gone through and I am reliving the nightmare at the expense of more exposure and damage.

      I still cannot navigate this song and dance you have to do with doctors. Please, by all means, give me advice if you have it. Info dumping or bringing up research makes them shut you out, offended that you dare challenge their authority. Too little information and they make wildly inaccurate assumptions. I am thorough but my appointment notes are still wildly inaccurate. This is like learning a new language ffs. I'm no ass kisser, especially to these types, but that seems like that's what you gotta do. Either way, it seems a losing game.
       
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    14. kingsfan
      Mellow

      kingsfan Member Benefactor Hall of Fame

      Location:
      Southern California
      Tinnitus Since:
      9-17-20 / 10-20-20 / 3-31-21 / 5-23-21
      Cause of Tinnitus:
      turning everything up to 11
      I'm not sure where in the world you live, but my experience here in the USA is to go to university doctors. They are much more interested in novel types of cases and have more of an interest in the academics of everything. Some may even discuss your case with the other doctors/professors at the university. Maybe you have already tried this, but just my experience so far.
       
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    15. pleasejuststop
      Suicidal

      pleasejuststop Member

      Location:
      Ny
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Loud noise
      My tinnitus is so loud from Tramadol that contained Acetaminophen. It’s been this way for a week, since I’ve taken it. Every sound is tinny and painful, and I hear a new tone. Can someone please help? I’m near vomiting.
       
    16. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Shout out to @Chinmoku. I haven't forgotten about tracking down information on injections my ex is receiving for her autoimmune disorder. She always takes a while to get back to me and we can't use the landlines anymore for some reason. If I call the UK it will eat up all my phone credit in a literal second, it's weird.

      Anyhoo, when I know, I will relay the info on and hopefully she will let me know who the doctors are at the NHS as well.

      Just wanted you to know, I haven't forgotten.

      Take care my friend,
      Daniel XXXXXX, hugs
       
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    17. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      I don't think there's anything to do but wait. Maybe it gets better.
       
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    18. Shizune
      Alone

      Shizune Member Podcast Patron Benefactor

      Location:
      The bell tower
      Tinnitus Since:
      H: 6/2020 T: 7/2020
      Cause of Tinnitus:
      Chemical inhalation+Too many sleeping drugs
      Damn, too late. Unfortunately one of the ENTs that I believe was university affiliated and involved in research just moved to California a few months ago. Had high hopes for her but didn't get to her in time. Dr. Konstantina Stankovic to be precise. So I'm not sure who is left who will fit the bill, but I will keep this in mind, thank you!

      The place I go is a teaching hospital of Harvard but I know that doesn't necessarily mean that every doctor teaches or is involved with research though. I've still been mostly disappointed by what I've encountered so far.
       
    19. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @pleasejuststop, I also have CRPS (nerve pain disease). Used Tramadol with Acetaminophen after getting tinnitus. Tramadol induced tinnitus will usually resolve. It may take weeks or months. For me, my spike resolved in three weeks. Stay in touch - let's talk more.
       
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    20. Chinmoku

      Chinmoku Member Benefactor Hall of Fame

      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Started with a cold, possibly worsened by medication/noise
      Thank you, my dear friend. You are in my thoughts, Daniel.
       
    21. kingsfan
      Mellow

      kingsfan Member Benefactor Hall of Fame

      Location:
      Southern California
      Tinnitus Since:
      9-17-20 / 10-20-20 / 3-31-21 / 5-23-21
      Cause of Tinnitus:
      turning everything up to 11
      I may just be fortunate that the school near me has physicians who have taken interest in tinnitus. Unfortunately, they have not been able to help me so far, but they at least take me seriously.
       
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    22. pleasejuststop
      Suicidal

      pleasejuststop Member

      Location:
      Ny
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Loud noise
      Was it the Tramadol that caused your spike or the Acetaminophen in it?

      I took Tramadol again, this time the version without Acetaminophen, and I have a bottle left. I hope Tramadol alone wouldn’t cause a spike too. I know it has some similarities to an SNRI. I took one again yesterday and my tinnitus seemed very loud, but I was assuming that was the Acetaminophen spike from a week ago. I don’t really respond well to serotonergic drugs. But they haven’t increased my tinnitus so far.

      Thank you for replying. Feel free to respond.
       
    23. Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      @pleasejuststop, a medical journal that I use has a long chapter on medication use and tinnitus. What I find valuable is statistic percentage values, including percentage of a drug causing tinnitus, percentage of increasing tinnitus, time of use percentages and percentages if a spike or tinnitus will resolve.

      The journal states that Tramadol without Acetaminophen has a 88% less chance of causing a spike. Short-term use (1 to 14 days) of Tramadol with Acetaminophen that causes a spike will resolve 99% of the time.

      Within pain medication classes, Vicodin should be avoided as 10 of 12 of three-year users will get hearing loss and tinnitus.
       
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    24. pleasejuststop
      Suicidal

      pleasejuststop Member

      Location:
      Ny
      Tinnitus Since:
      2015
      Cause of Tinnitus:
      Loud noise
      @Greg Sacramento, thank you! Reassuring. The journal sounds valuable to have. Yeah, definitely will avoid those. I’m sorry you are suffering from CRPS too. That and tinnitus at the same time is horrific. How have you been dealing with it all?
       
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    25. Travis Henry
      Confused

      Travis Henry Member

      Location:
      Dallas,TX
      Tinnitus Since:
      10/2021
      Cause of Tinnitus:
      1 Moderna Vac, Noise and stress I guess, its killing me
      Realistically how long till the Susan Shore device comes out? And do you think it'll help with reactive tinnitus? I'm having a horrible time with my tinnitus. I'm not sure how much longer I can watch the world pass me by as I go further and further in debt. I need to make money somehow. I am losing all hope. My tinnitus shoots up when taking a shower to insane level, even with hearing protection in. I just can't believe I've worked myself into such a state.
       
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    26. danielthor

      danielthor Member

      Location:
      Denmark
      Tinnitus Since:
      04/2020
      Cause of Tinnitus:
      Unknown
      Hi @Travis Henry. I was there. I couldn’t shower without wanting to blow my brains out afterwards. The same with chewing food, and walking. Piercing drills that would just rape my brain all day long until I’d pass out from exhaustion. It took a couple of weeks of being housebound before I saw improvements. I can shower now without having to worry about spikes. I can eat, walk, and talk again. I’m right now listening to Hip on Hop on moderate volume from a big ass speaker while wearing plugs. There’s no pain, no spikes. I can do this for hours now. Keep your head up.
       
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    27. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      @danielthor, are you still getting the piercing drills that are intrusive? Were they like shrill, electrical feelings? Good to see you’ve improved.
       
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    28. danielthor

      danielthor Member

      Location:
      Denmark
      Tinnitus Since:
      04/2020
      Cause of Tinnitus:
      Unknown
      They were all-encompassing, like waves of electrical drilling, piercing, high pitch, multiple tones, one of them musical / hallucinatory where the sound of stuff from the TV and even people from real life going off in a loop in my head at all hours.

      Thankfully the main piercing tone covered that, or else I think I would have gone insane

      My tinnitus is low most days now, but when I expose myself to too much audio at a time I get setbacks. If I went a whole year of silence I would have been fully healed by now. I know this to be true in my own case, not necessarily true for everyone.
       
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    29. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      @danielthor, thanks for the info and help. Did your tinnitus ever physically hurt at its worst? I have a tone that’s so piercing in frequency that it literally hurts; feels like electrical currents running through the ear. It also screeches/zaps/sounds like train breaks squealing intermittently. It does that a few times a minute at least and it causes what feels like an electrical shock. I also have the steam escaping sound that feels that way, too. Did any of your tones feel like any of these sensations?

      Your testimony gives hope. Thanks.
       
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    30. Marshall

      Marshall Member

      Location:
      ND
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Not sure/virus/noise trauma/cumulative noise damage
      Silence helps mine a lot too. I don’t mask and even sleep in complete silence. And try to mitigate noise as much as possible without completely blocking out sound.
       
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