PennyCat

PennyCat

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  • PennyCat
    Genuinely cannot stop crying no matter what I do. I'm physically ill from the crying. I don't know how to live this way
    TindalosKeeper
    Please hang in there. I know things are tough and everybody here has their own demons, but fortunately yours has a chance to have a solution in the future, so I need you to fight!
    The wait will soon be over hopefully and I wanna see you with a big grin when it happens :)
    Damocles
    "Genuinely cannot stop crying no matter what I do. I'm physically ill from the crying."

    Yeah, it's horrendous. No question.

    "I don't know how to live this way"

    Probably not going to have to for very long; at least not without something that's going to reduce it by a f*ckload.

    Good things are on the way.
    Damocles
    Additionally, if it helps to put in perspective: some of us have already lived more of our lives with it, than without.
    PennyCat
    Just when I was getting used to T, it got worse. Back to near 24/7 anxiety and crying. Ofc TTTS reacting to stress. When will it get better?
    PennyCat
    TTTS was doing better again but now it's back. Wish I could figure out what makes it come and go. It makes me unbelievably anxious.
    stacey
    Same I've got all 3 TTTs , T and H. The spasms from TTTs leaves my ear so sore and constantly full
    M
    My ttts was gone for a month and now its back without a reason. My ears feel tensed up and tight
    PennyCat
    TTTS was fairly mild for a little while, but the past 2 days it's been worse again. Terrified it'll never get better. I hate it :(
    PennyCat
    Does TTTS go away? So tired of it reacting to my voice, silverware, dishes, etc… the anxiety about it is destroying me
    View previous comments…
    SamRosemary
    @PennyCat Oh yes, for sure! I still struggle with panic and anxiety, but not specifically because of T. But your panic to the noises and to the TTTS twitching around and going up and down does calm down. Like my T has been going crazy since covid, but I'm not freaking out because of it.
    D
    @PennyCat I also have TTTS that came on about 1 month in after the onset of T. That, and my T in general, also wasn't caused by acoustic trauma or so (unknown cause). Unfortunately, it has stayed more or less the same for me even after 2 years - spasms going off at short sounds in quiet settings - with more noise around me they don't happen at all.
    D
    @PennyCat The anxiety that comes with it, did go down for me though and I'm way more calm about it, because I mostly know when and how the spasms will happen. It is triggered by those same stuff you mentioned, and also if one person's voice is directed to my left ear in a relatively quiet setting. More noise around = no spasms.
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