CRGC
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CRGC

Member, Male, from Montreal

H pain is constant but seems I stopped caring about it as much lately. I guess it's true that humans can habituate to most everything? Dec 21, 2022

CRGC was last seen:
Viewing forum list, Feb 7, 2023 at 1:10 AM
    1. Strawberryblonde
      Strawberryblonde
      How are you doing lately? :)
      1. Damocles, tpj and tniuf like this.
      2. CRGC
        CRGC
        Hey @Strawberryblonde, thanks for the message :) I've been managing pretty well since the new year. Back working, and seeing a therapist regularly which has helped a lot with the mental aspect of the condition. Tinnitus and ear pain are still present, although the latter has been getting better I feel. Still careful about what I expose myself to however. How are you doing?
        Feb 4, 2023 at 11:52 PM
        Strawberryblonde likes this.
      3. Strawberryblonde
        Strawberryblonde
        Hmm I'm having a pretty bad time with it lately. For some reason I've got ooooo hum sound in one ear and morse code in another that seem louder than usual and/or has come back again. So feeling pretty crappy with that :( Glad the therapist is helping with the mental mind games which is T :) @CRGC
        Feb 5, 2023 at 9:25 AM
    2. CRGC
      CRGC
      H pain is constant but seems I stopped caring about it as much lately. I guess it's true that humans can habituate to most everything?
      1. View previous comments...
      2. CRGC
        CRGC
        @Nadia231 Of course, I always still protect in noisy situations and avoid very loud situations, but I feel more in control when I frame it this way. I'm also lucky that my T has been stable and (mostly) non-reactive.
        Dec 22, 2022
        Sammy0225 and Nadia231 like this.
      3. Nadia231
        Nadia231
        @CRGC that's great. Both my T and H are out of control completely. No matter what I do, how much I protect my ears, they get worse, they change and they just cause me so much depression. My life is unbearable right now. So I'm going for a different approach and see what happens
        Dec 22, 2022
        Jackson Brady and CRGC like this.
      4. CRGC
        CRGC
        @Nadia231 I'm really sorry to hear that, and hope you find some stability eventually. Crossing my fingers that this change of approach helps you. We're here for you if you need us!
        Dec 22, 2022
    3. CRGC
      CRGC
      6 months with T and H. Still struggling. So hard to grieve lost hearing knowing it will never come back. Such guilt for not protecting.
      1. aura, ZFire, volterra and 3 others like this.
      2. View previous comments...
      3. CRGC
        CRGC
        @MindOverMatter @ZFire @aura Thanks for the positive comments guys. Working hard with my therapist to accept and move on, but it's difficult. What gets me the most is the several brief moments a day where I realize I don't understand speech around me the way I used to. I've always prided myself on being pretty smart and witty, and feel this condition is changing my personality. So hard to cope with that.
        Dec 10, 2022
        Sammy0225, aura and ZFire like this.
      4. ErikaS
        ErikaS
        Although we cant gain back hearing, there’s enough “noise induced” or some hearing loss T stories that DO improve. They just take much longer. I just discovered that my R ear does not hear 12k hz and above like my L ear does. I had a feeling I suffered some kind of very high freq loss in R ear from infection, but because they don’t test above 8k hz, it was never detected. Thus, never got a shot.
        Dec 13, 2022
      5. ErikaS
        ErikaS
        I know this sounds “out there” but I started Neurofeedback last week that is specific to tinnitus. We are doing “with hearing loss” protocol as opposed to without because they see the best response w/ that. It’s working with slow brain waves as well as memory because our brains “remember” what they heard before this and are still trying to hear it. Living on a prayer with this so we will see.
        Dec 13, 2022
        CRGC likes this.
    4. CRGC
      CRGC
      1. CW Dragon, AnthonyMcDonald and ZFire like this.
      2. AnthonyMcDonald
        AnthonyMcDonald
        This article doesn't mention whether or not they were acute cases, which could have had natural remission. Also whether or not some of these subjects had mild hyperacusis in combination with phonophobia, nor did it provide any information on different levels of severity
        Dec 3, 2022
      3. AnthonyMcDonald
        AnthonyMcDonald
        P.S. I think the usage of the buzzword "central gain" when referring to hyperacusis is just the same as saying "because, because", or "neuroplasticuty" in reference to tinnitus. Reminds me of how clueless most "specialists" are.
        Dec 3, 2022
        volterra and CRGC like this.
    5. CRGC
      CRGC
      I'm considering trying acupuncture for ear/jaw/neck pain from hyperacusis. Does anyone have positive experiences to share?
      1. Strawberryblonde and NYCGuy like this.
      2. andronici
        andronici
        I haven't tried acupuncture myself, but just wanted to say that I've read some users on here who have benefitted from it, others who it didn't do anything for. However, I wanted to warn that there are some people who have had bad worsenings from electroacupuncture -- so I would avoid any electric stimulation. Regular acupuncture I think is pretty low risk. Hope it helps if you do end up trying!
        Nov 30, 2022
        CRGC likes this.
      3. SmallRonnie
        SmallRonnie
        I forgot I need to try this too. I know Brian Newman does it and he said it was one of the best things to provide temporary relief from the pain.
        Nov 30, 2022
        CRGC likes this.
    6. ErikaS
      ErikaS
      Hey there, I am just about 3 months into my reactive T that started in R ear from ear infection. T is in both ears now, but R ear is worse as far as number of sounds and reactivity. I found an ENT who said he would do intratympanic dex shot if I wanted to to see if it would help anything at all. Do you feel the shot worsened your situation at all? I don’t have H in terms of what you have, just T is super reactive.
      1. NYCGuy and CRGC like this.
      2. CRGC
        CRGC
        Hi @ErikaS, I don't feel the shots worsened my situation. The procedure was uncomfortable and I don't think they made much of a difference, as it had been too long since my noise trauma, but I don't regret trying. Good luck with everything!
        Nov 23, 2022
    7. CRGC
      CRGC
      @Bambam0 I got mine last week, no effect on T or H. Worth it if you ask me.
      1. NYCGuy likes this.
      2. Bambam0
        Bambam0
        TYVM!
        Nov 22, 2022
        CRGC likes this.
      3. CRGC
        CRGC
        @Bambam0 no problem! Love your profile picture by the way. If the Shore device ends up working and helping with H, I might just get a tattoo like this.
        Nov 23, 2022
        Bambam0 and Aschenherz like this.
    8. CRGC
      CRGC
      Been enjoying a few days with low H pain and low T. But right ear crackles every time i swallow/yawn/stretch my jaw. Does this go away?
      1. Aschenherz and tniuf like this.
      2. MindOverMatter
        MindOverMatter
        This is quite common @CRGC, and normally nothing to worry about.
        Nov 22, 2022
        Aschenherz, CRGC and tniuf like this.
      3. CRGC
        CRGC
        Thanks @MindOverMatter . It's definitely not as distressing as other symptoms, but it's quite annoying nonetheless. I wonder what causes it.
        Nov 22, 2022
      4. Aschenherz
        Aschenherz
        it goes away. For me it did. It is caused by either the jaw or the throat. It is something, you normally blend out. Normally. H is a wonderful thing.
        Nov 22, 2022
        CRGC likes this.
    9. CRGC
      CRGC
      Can't shake the fear of worsening. It's paralyzing. So difficult to manage the anxiety and depression resulting from this condition.
      1. View previous comments...
      2. ZFire
        ZFire
        I know the feeling all too well man and still struggle with it. But as times goes on, you’ll start to feel relaxed little by little when you figure out which sounds don’t make your T or H worse. You’ll begin to establish a positive association with these sounds and then coupled with the fact that your ear symptoms will also stabilize(highly probable). Your confidence will slowly grow again. It’s a very long process.
        Nov 16, 2022
      3. ZFire
        ZFire
        But always remember to carry ear protection with you. If you’re unsure and uncomfortable in certain environments, always plug up. It’s gives you that reassuring feeling too that you’re doing the right thing. That’s all we can do at this point.
        Nov 16, 2022
      4. CRGC
        CRGC
        Thanks for the kind words @Strawberryblonde @Aschenherz @SamRosemary @ZFire. I'll try and keep these thoughts out of my head although that's easier said then done for me. My custom earplugs have been my best friends for the last 3 months!
        Nov 16, 2022
        ZFire likes this.
    10. CRGC
      CRGC
      Does anyone have experience with the curable app for hyperacusis? Just bought it but don't know where to start
      1. Samy likes this.
      2. View previous comments...
      3. CRGC
        CRGC
        Hi @Samy , yes I've been using the app. I think it's helping me put my H pain in perspective and calm some of the anxiety around it. It's worth a try if you can afford it imo!
        Nov 20, 2022
        Samy likes this.
      4. Samy
        Samy
        Thanks for the info!! I saw some good reviews about this app, I’m going to dowload it. I really need some help managing the horrible H…
        I’m also reading about DNRS
        Nov 21, 2022
        CRGC likes this.
      5. CRGC
        CRGC
        @Samy let me know how you get on with the app if you end up purchasing it! DNRS indeed sounds interesting but if I understand correctly, it's a form of therapy which requires a lot of work with a therapist. Nice to know it's a possible option though! I hope you reach improvements with your H, stay strong <3
        Nov 21, 2022
    11. CRGC
      CRGC
      Been reading a lot of H improvement stories happening over the span of 1 1/2-2 years...I wonder if there's a physiological reason for that?
      1. View previous comments...
      2. Aschenherz
        Aschenherz
        I really don't know, how this happens. But i see progress for me. very little, but it made me re-consider my dark thoughts.
        Nov 4, 2022
        CRGC likes this.
      3. CRGC
        CRGC
        @Aschenherz happy to hear about your progress!

        @volterra that's possible. Have you had your LDLs measured? And I agree about how many different facets or conditions are possibly lumped under the term H.
        Nov 4, 2022
        sakrt likes this.
      4. volterra
        volterra
        No but they aren't very high
        Nov 14, 2022
        CRGC likes this.
    12. CRGC
      CRGC
      1. volterra, Nadia231 and NYCGuy like this.
    13. Joe Cuber
      Joe Cuber
      Hey @CRGC - Do you know what's causing your ear pain? I was getting ear pain in my ear recently and thought it was my T. Turns out I've been subconsciously clenching my jaw while sitting with bad posture. Once I realized it, I was able to reduce the pain by sitting up and relaxing my jaw.
      1. CRGC likes this.
      2. CRGC
        CRGC
        Hi @Joe Cuber, thanks for your message. I'm thinking the pain is somehow related to my H but there might be some stress / muscle component to it too. I'll try and do that. Do you have any exercises to recommend for the jaw?
        Oct 26, 2022
        Joe Cuber likes this.
      3. Joe Cuber
        Joe Cuber
        Oct 27, 2022
        CRGC likes this.
      4. CRGC
        CRGC
        Oct 27, 2022
        Joe Cuber likes this.
    14. CRGC
      CRGC
      This condition is like a cruel game of real life snakes and ladders. Thought I was feeling improvement, only for symptoms to come back.
      1. sakrt, NYCGuy and Nadia231 like this.
      2. View previous comments...
      3. CRGC
        CRGC
        Thank you @MindOverMatter, I'll do my best to put those wise words in practice
        Oct 25, 2022
      4. Eleanor89
        Eleanor89
        Hello @CRGC
        It will get better just takes time x
        Nov 4, 2022
        CRGC likes this.
      5. CRGC
        CRGC
        Thank you @Eleanor89, I hope you're right! Have a nice weekend :)
        Nov 4, 2022
    15. CRGC
      CRGC
      34th birthday today. Only present I want is a new right ear
      1. View previous comments...
      2. CRGC
        CRGC
        @MindOverMatter the best I can describe my pain is sharp pain when exposed to loud sounds, as well as dull aches after (what i think is) overexposure to moderate noise. The dull pain comes up in a delayed manner and is unpredictable. This is the pain I'm having the most trouble dealing with.
        Oct 26, 2022
      3. MindOverMatter
        MindOverMatter
        @CRGC I get you. So basically, based upon your description,.some sort of hyperacusis with pain. That is challenging to deal with, especially when its unpredictable. Are you being followed up by any professionals within the field of tinnitus and hyperacusis?
        Oct 27, 2022
        CRGC likes this.
      4. CRGC
        CRGC
        Hi @MindOverMatter, sorry I just saw your comment now. Yes, I have met with several audiologists and neurootologists over the last few months. I have tried everything I could including intratympanic steroids. I am now trying to slowly desentize as per my audiologist's recommendations. The process has been difficult. I am also seeing a psychologist for the mental distress of it all.
        Dec 9, 2022
    16. CW Dragon
      CW Dragon
      Bro we are the same age. I lost a little hearing (which turned to T) and feel the same way, I can't hear well noise in speech out my left ear, I used to be able to zero in on different dialogues (eavesdrop) but no more. I apologize to myself and ask forgiveness from my ear for being stupid.

      I used to feel encapsulated by outdoor sound like wind, now it just feels like a TV speaker with no real depth to it.
      1. CRGC likes this.
      2. CRGC
        CRGC
        Exactly how my right ear feels. So frustrating and saddening.
        Oct 19, 2022
    17. CRGC
      CRGC
      The grieving/mourning process over my loss of hearing is so hard. I can't see myself being happy again. Feeling like my life is over at 33.
      1. volterra, JPGL and SmallRonnie like this.
      2. View previous comments...
      3. CRGC
        CRGC
        @makeyourownluck hard to imagine hearing coming back after noise damage...

        thanks for the kind words though, big hug back your way too <3 hope you're doing ok with the infection and nerve pain
        Oct 18, 2022
        makeyourownluck and ZFire like this.
      4. Hamsti
        Hamsti
        I am 34 and i am also losing my hearing because of unknown causes. You are not alone in this :)
        Oct 18, 2022
        Strawberryblonde and CRGC like this.
      5. CRGC
        CRGC
        Thank you @Hamsti, I hope you are doing ok on your side.
        Oct 19, 2022
    18. CRGC
      CRGC
      Ear pain has eased up some, but fullness is back with a vengeance now. Can't catch a break. Got my final injection on tuesday...related?
      1. MaxRabbit likes this.
      2. View previous comments...
      3. CRGC
        CRGC
        @SmallRonnie agreed, although the fullness makes me worried about inflammation / further damage. Just finished a course of 3 IT steroid injections. No change on my HL so far, but hopefully I'll see some improvements on T+H. Recent pain and fullness could be the result of the holes in my eardrum
        Oct 13, 2022
      4. MaxRabbit
        MaxRabbit
        Hello. Came on to see how you are doing. How are you coping? Really sorry to see you have so far not had relief with the shots. Ive been off this site a few days as its depressing reading all the suffering and no damn relief in sight. Eh....hope you can keep a better mindset and are able to sleep well and get healing going! Best hopes to you for that!
        Oct 14, 2022
      5. CRGC
        CRGC
        Hey @MaxRabbit, thanks for checking in. It's been a lot of ups and downs for sure. Trying to stay positive and take it one day at a time. Good on you for taking a break from the website, might try and do that myself soon. Wishing you healing as well!
        Oct 14, 2022
    19. CRGC
      CRGC
      Hyperacusis has been kicking my ass the last few days. Can’t seem to make progress. I need some encouragement and a hug
      1. View previous comments...
      2. makeyourownluck
        Oct 9, 2022
        ZFire, Daniel Lion and CRGC like this.
      3. CRGC
        CRGC
        Oct 9, 2022
      4. CW Dragon
        CW Dragon
        no hug button, but here's a hug: *hugs CRGC*
        Oct 12, 2022
        CRGC likes this.
    20. CRGC
      CRGC
      Second IT steroid injection scheduled today. No effect on hearing loss so far. All I wish for is stabilization of T and recovery from H…
      1. MaxRabbit, makeyourownluck and NYCGuy like this.
      2. MaxRabbit
        MaxRabbit
        I hope youll get results this time or the next. Sending support and hugs to you!
        Oct 7, 2022
        CRGC likes this.
      3. CRGC
        CRGC
        @MaxRabbit thank you! Sending healing vibes back your way
        Oct 7, 2022
    21. in_LA
      in_LA
      I'm sorry about your terrible H :(
      1. Aschenherz, NYCGuy and CRGC like this.
      2. CRGC
        CRGC
        Thanks man, means a lot. Hope you're able to get your palinacousis under control! Stay strong.
        Sep 28, 2022
        Aschenherz and in_LA like this.
    22. MaxRabbit
      MaxRabbit
      Hi. You shared you had your first shot today. Other users said their ear screamed a bit after but then went away. Hope you had an easy time and that it may help you!
      1. NYCGuy and CRGC like this.
      2. View previous comments...
      3. CRGC
        CRGC
        (@MaxRabbit) The water that clogged my ear feels like it's drained out, but the Dr wants to me to use Ciprodex ear drops to prevent any possible infection. After reading the stories about them on here, I'm scared to use them. I'm thinking I'll monitor my symptoms for the time being and only use them if I start developing infection symptoms.
        Sep 30, 2022
        MaxRabbit likes this.
      4. MaxRabbit
        MaxRabbit
        Hello again. Hows it going for you? Did the water clear out (shit happens even being ultra careful) and do you feel better? I hope to hear so!
        Oct 4, 2022
        CRGC likes this.
      5. CRGC
        CRGC
        Hey @MaxRabbit :) water drained out and no signs of ear infection atm (knock on wood). Second injection scheduled on thursday, hoping for positive impact on my T and H. How are things on your side? <3
        Oct 4, 2022
    23. CRGC
      CRGC
      Has anyone here had intratympanic steroids shots causing worsening of their T/H?
      1. NYCGuy and MaxRabbit like this.
      2. View previous comments...
      3. CRGC
        CRGC
        @Forever hopeful that's fantastic about your loss healing! Unfortunately mine has stayed exactly the same even after 2 injections. Not holding my breath for improvement on that end. Just wish T and H get better!
        Oct 12, 2022
        Forever hopeful likes this.
      4. Forever hopeful
        Forever hopeful
        @GRGC, You may have mentioned this somewhere but how long have you had hearing loss? Do you know what caused it? Was an acoustic trauma or a virus? Forgive me if you’ve written this before and I’ve read it. I’m like I remember my own name these days. They think mine was caused by a virus as or as unilateral.
        Oct 12, 2022
        CRGC likes this.
      5. CRGC
        CRGC
        Hey @Forever hopeful :) my constant tinnitus and hyperacusis date back to June of this year. Acoustic trauma from loud club + intense stress / medication is the likely cause. Looking back, I think I had some warning signs in the months before (fleeting T, occasional pain). Unilateral HL might have happened in June, or might have been there before. I'm guessing noise induced in any case
        Oct 13, 2022
    24. CRGC
      CRGC
      Absolutely hating my tinnitus today. Just stumbled on a picture of me a few days before onset. I miss pre-T life so much
      1. Forever hopeful
        Forever hopeful
        I am so sorry.
        Sep 24, 2022
        CRGC likes this.
      2. makeyourownluck
        makeyourownluck
        Yeah, I still can’t bring myself to look at photos of me pre T.
        Sep 24, 2022
        CRGC likes this.
      3. Forever hopeful
        Forever hopeful
        I hear you. My son’s 18th birthday will always be the day I ruined life as I knew it.
        Sep 28, 2022
    25. CRGC
      CRGC
      2nd neurotologist agreed to IT steroids in right ear. First shot (of 3) on Tuesday. Praying for improvement on HL.
      1. NYCGuy likes this.
    26. CRGC
      CRGC
      H pain from wind in my ear by the lake… can’t even enjoy quiet nature without worrying about ear protection apparently
      1. Nadia231 and Wrfortiscue like this.
    27. roy1159
      roy1159
      Hey man, i seem to have the same threshold loss as you do at 6khz albeit i'm about a decade younger than you. Do you feel the loss there makes it harder for you to comprehend speech? in quiet settings in particular? TIA
      1. CRGC
        CRGC
        Hey @roy1159, I definitely noticed that speech is harder to comprehend in my right ear which has hearing loss. It's especially noticeable in noisy settings.

        Although my left ear is still healthy, I notice that I have a harder time concentrating on speech overall. It's as if the volume control on my right ear is broken and my brain can't tune it down or focus away from it.
        Sep 16, 2022
    28. CRGC
      CRGC
      On a brighter note, got my custom plugs. Comfortable, no occlusion when i walk, only slight when i talk. Better than my vibes. Satisfied!
      1. Charburchar
        Charburchar
        What are they made from? I need some no occlusion customs
        Sep 12, 2022
        Nadia231 and Wrfortiscue like this.
      2. CRGC
        CRGC
        @Charburchar i should’ve said « mild » occlusion hehe. Still better than the vibes. I think they’re etimotic. Had them made locally through an audioprothestist clinic.
        Sep 13, 2022
        Charburchar likes this.
      3. Wrfortiscue
        Wrfortiscue
        I’m with Char what kind?
        Sep 13, 2022
    29. CRGC
      CRGC
      Getting sudden flashes of light in my peripheral vision. Lots more eye floaters too, although i had them before. Anyone else with this?
      1. CrystalB and NYCGuy like this.
      2. Leila
        Leila
        Flashes aren't a good sign. When it happened to my mum she was asked to come in immediately because they suspected retinal detachment. If you're wearing glasses and seeing an ophthalmologist regularly anyway, give them a call, so somebody who knows what their doing can offer you an opinion.
        Sep 13, 2022
        CRGC likes this.
    30. CRGC
      CRGC
      Began noticing how my hearing loss, even if minor, makes understanding speech in noise so much harder. So depressing to feel your body fail
      1. ZFire, sakrt, tracyNYC and 4 others like this.
      2. View previous comments...
      3. Joe Cuber
        Joe Cuber
        Missed your reply. I've started wearing hearing aids. I have moderate hearing loss in the high freqs. The hearing aids have really helped me hear people in noisy environments.
        Sep 12, 2022
        ZFire and CRGC like this.
      4. CRGC
        CRGC
        @Joe Cuber thanks for the info! I’ll keep that in mind.
        Sep 12, 2022
        ZFire and Joe Cuber like this.
      5. Joe Cuber
        Joe Cuber
        Sure thing @CRGC! Hope your audiology appointment goes well
        Sep 13, 2022
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  • About

    Gender:
    Male
    Location:
    Montreal
    Tinnitus Since:
    06/2022
    Cause of Tinnitus:
    SNRI/Noise