Safari1999

Last I heard from her she had made a lot of improvement, followed by a small relapse.

She's young, so my guess would be she's now living with mild symptoms that are steadily resolving over time.

@Damocles Okay good, I'm very glad you heard from her. I got a little bit worried cause she hasn't been online for a few months.

Lack of sleep definitely makes things worse. Do you get frequent headaches?

yes and i get the same thing even almost a year on and it’s improved a lot. i still hate kitchens tho.

What happened?

I thought you might be improving after I last saw you.

@Damocles i am and i have, but im still struggling a bit :)

I don’t think this is specific to teenagers.

I’m not really a teenager anymore, but I have autism and it definitely gives me some degree of sound sensitivity in connection with my T. Though it really isn’t hyperacusis.

also im 17 now :3

***i dont think screaming is an impact noise, what i meant was short but loud noises like a dish breaking, someone suddenly screaming etc

@Safari1999 thats great! I’m glad your t has gotten so much better, or we’ll your coping with it. Health issues suck and I understand how you feel especially with this condition being the cherry on top. I should buy earplugs huh .. anyways though I hope you continue to do better & better! P.s i turn 17 this year :3

Seems like it isn’t

It probably is common, but it’s either underreported or people don’t notice it, who knows.

For most people PT is not permanent. You might just have a cold coming on etc.

@mkeyourownluck yeah its pretty intermittent and goes after a couple minutes.

Specifically there is Frequency Therapeutics, A research team at Severance Hospital in S.Korea, and Northwest college.

@ThomasF If these teams/companies succeed? Will they be able to treat H and T and VSS caused by acoustic trauma?

I can't say for certain as the direct causes for H and T aren't 100% known similarly with VSS there isn't anything written in stone. Doctors connect Hair cells and hearing as well as H and T to Hearing loss. It's described as possible that fixing Hearing can fix T and H but until they do that and see the result it's not something certain.

Don’t hold a sneeze. You’re essentially giving your sneeze no where to go but up your ears and can cause no damage to deafness depending on the pressure. Always sneeze out your mouth.

But if you didn’t feel any dizziness/vertigo/muffled hearing after the sneeze I wouldn’t worry about it. The spike should calm down.

@Marshall Im fine now I think but thanks, I'll never hold in a sneeze again lol

Was it a loud film for most its duration? Like lots of explosions/gunfire etc?

@ZFire at least half of the movie was explosions, gunfire etc i remember thinking it was loud asf in the theatre lol

Walking on eggshells

A lot of people have a mild form of it you just don’t notice it unless you pay attention

@Snake If you dont mind, could you describe your symptoms? I just want to understand the condition better.

I discovered I had vss back in February of 2020, really not a good time for me. Although 2 years have passed and I haven’t paid much mind to it as my symptoms are mild.

I’m not sure if it matters. But those things used to be piercing to me but the more I subjected myself to them the less bothersome they got. I’m not sure why or what happened. But if something is above 80dbs or I know there a possibility of being loud and damaging, I wear muffs. Like vacuuming and the blender. I also switched to paper plates lol

@Marshall yeah im not protecting my ears from those sounds anymore, anything over 79db however i will use protection. but, its hard to do even that.

It’s really a catch 22 all we can do is do our best and hope for the best

@Diesel Where would I get custom earplugs? And how much do they usually cost?

Most audiologists can take molds and place an order for you. Most seem to deal with Westone, but there are other companies such as Sensaphonics and ACS Custom. The latter two use a softer material which I find more comfortable, but seems to wear faster.

They are typically around $200-$300. You are expected to re-mold and replace them every 4 years as the ear canal tends to change shape.

Keep in mind that every earplug will have some level of occlusion. Using them as intended, in loud environments such as clubs or industrial jobs, you won't notice this. Us with bad tinnitus use them on lower volume situations which tends to accentuate it.

That’s the way forward… good luck!

That's great to hear!

@Guywithapug For H mainly, @Steph1710, did it come back? If not why are you still on here?

@Safari1999 did what not come back? Sorry, I must have missed something here. I still have T and H, if that’s what you mean? X

@Steph1710 No, my mistake, I assumed that when you said you had seen improvements after "4/6 months" that you meant that you'd lost T and H. I'm glad you've improved though :)

There's a good chance it will very over time and settle into constant sound you get use to or goes away hope for the second one

No.

@Wrfortiscue I have those same sensations but a lot less extreme. I feel like I get pins and needles much more easily than I used to. When did this start for you BTW?

Pins and needles/pain shouldn’t be much of a concern. The nerve may be pinched or inflamed, but it still works, and in all likelihood will resolve by itself.

When things start going numb, that’s a problem.

@Safari1999 all those issues started after having years of anxiety and panic. My nervous system got fried. Please find ways to calm your anxiety right now

Foam plugs should be rolled and compressed and then slid into the ear canal. You will feel it decompress in the canal and fill up space until it sits tight. The outer face of it should be flush and not extend out if you're looking into a mirror. When you remove it, dont just yank it out, pinch the face and pull slowly with a twisting motion. This is how most instructions read as well as online tutorials.

What are your symptoms? More specifically?

@MindOverMatter Pain in my right ear radiating to my right cheek, right side of my head and the right side of my jaw. Its sort of gone now though :).

Exactly Steph. Them young'uns never stick around long, for the precise reason that they tend to heal and we don't.

Not many 16 year olds end up with permanent moderate/severe tinnitus and/or hyperacusis.

Take comfort in that @Safari1999.

@Steph1710 @Damocles PLEASE dont take offence, I just realised my comment was quite blunt.

Thanks for the reassurance :)

@Safari1999 no offence taken. :) We were just making sure you’re alright - that’s all. X

That's really all that matters.

Text your friends and let them know. Ask them how many likes THEY got on TT this week. <(￣～￣)>

@Safari1999 my H developed about three months after T in 2020. It was fairly mild at first, but my boyfriend hit two plates together & it became a lot worse. However, it’s mild again these days. Only certain sounds now hurt, whereas any sound would hurt before. One thing that never improved was the sore/burning ear pain which I seem to have regardless of noise exposure.

The pain is worse in the morning for some reason. Not sure if that’s even H related though.
I’m sorry you’re suffering with H atm. Do you know what might have triggered it? X

@Steph1710 Noise exposure, I used to play music very loudly through earphones until I noticed (v. minor) sensitivity/pain that would go away after a day. I continued to use earphones at a lower volume which still hurt. Also, I take the train/bus frequently. My current acoustic shock was caused by TV volume that was too loud. I guess my ears just got more and more damaged over the course of a year.

and yeah haha my ED is basically gone because of my H. I have 0 energy to care anymore. wish I could have my old problems back but alas.

@Foamearplugssuck Thanks for your replies <3. I hate that I did this to myself but I've accepted it. I hope you improve soon <333

@Safari1999 ty you too! and please try not to be so hard on yourself. so many people abuse their ears on a daily basis, and no one knows how sensitive they are until they find themselves in this kind of situation. it's not your fault for not knowing.