Search results for query: Myoclonus

...in the UK administers Botox injections into the middle ear muscles. You would need to be evaluated first. If he believes you have middle ear myoclonus, he will proceed with the treatment. If you do not have symptoms of middle ear myoclonus, it is not worth pursuing, as this treatment will not...

I'm copying most of this from my post in the MEM Facebook group for people here who might find it helpful: I had a tensor tympani tenotomy on 7/28/25 on my right ear with Dr. Robert Saadi at UAMS. I believe I'm the second person in the Facebook group to report cutting only the tensor tympani...

How is it not? I had surgery to treat my debilitating middle ear myoclonus, which causes objective tinnitus. My symptoms are completely resolved in the ear that was operated on. It cured me. There is a small chance that the muscles could reattach in the following weeks, which might require a...

No disrespect meant, but you wrote that “it’s still too early to know the final outcome” and that “my tinnitus is 30 percent louder.” However, I wish you a complete and speedy recovery.

I am sorry to hear this. Which was the medication that helped you with MEM?

I was given Clonazepam to treat myoclonus of the inner ear muscle, which had been caused by long-term stress. After a few weeks, I found another medication that successfully stopped the myoclonus. I should have discontinued the Clonazepam at that point, but I was advised to continue taking it...

Hello. I am a palatal myoclonus sufferer for almost 6 years now but it has developed so gradually that I realized something was going wrong when I was 14. Doctors could diagnose my disease 4 years ago. I live in Turkey by the way. I researched everything about palatal myoclonus, went to lots...

One month ago I got a sudden onset of palatal myoclonus because of Amoxicillin (within an hour of taking it). So now, the twitching is still here, and I have been prescribed Clonazepam. I hope it helps. Has anyone tried Clonazepam for myoclonus? I'm not sure how well it works for...

...massaging around my ears. On the low-frequency ear, when I press behind the pinna, I hear a fairly loud rumble each time. This doesn’t happen on my other, more normal ear. The rumble sounds more like myoclonus and is louder than my typical tinnitus noise. I have no idea what this means, though!

Hello Amongst all the other kinds of T I have developed myoclonus. Its triggered by my left (deaf) ear starting with a fullness and a roar and then the myoclonus occurs on the right ear. IT hapenns between 1 and 6 times in 24 hours. Night or day, sleep or awake. I am finding it difficult. I...

I'm wondering if mine might be stapedial myoclonus. It often feels like a rumbling that switches on and off, but it can also turn into a steady tone. It seems quieter when I'm in quiet environments. In the bath last night it was completely gone. This is very rare. But droning away again...

When my middle ear myoclonus is triggered, I find that putting an earplug in my ear reduces it by 90 to 100 percent. I sleep with an earplug in. The muscle spasms are in my right ear.

There is someone that had the surgery to solve the myoclonus in the ears? Why I have a special myoclonus it's like a vibrations of the eardrum when I speak. The cause is probably an accident with the headphones!

...appointment if the symptoms get worse. After a quick online search, some possible alternatives to pulsatile tinnitus include: Middle ear myoclonus Stapedius muscle spasms Tensor tympani myoclonus Temporomandibular joint (TMJ) issues Has anyone experienced something similar after an ear...

I am suspecting the medication I took- olanzapine - is not so much ototoxic, as it might have induced middle ear myoclonus. The head tinnitus is causing me to believe this. I just wanted to see if this is a far fetched suggestion. Can drugs cause you to have myoclonus of the tympani or...

...ear. I talked to Myriam Wescott, she mentioned TTTS, but since I don't have fluttering of the eardrum, I suspect rather Stapedial Tendon Myoclonus. The vibrations are not the problem themselves, but they are likely the cause of my extreme fatigue and dizziness, that is why I'm considering...

I have been devastated by severe noxacusis and middle ear myoclonus (and also tinnitus, though it affects me less) since 2010. These conditions have completely disrupted my life. Over the years, the noxacusis has improved somewhat, but not enough to allow me to live a normal life outside my...

...miserable ear condition there is? It just thumps away, not triggered by noise..My h is currently horrific (going on 2 years of ups and downs) blasted by a train the other day about 100 ft away..who knows what is going on.. Anyways, anyone else go on to develop Myoclonus? maybe its tmj...

One-year update. Unfortunately, there have been no improvements. The tinnitus is still present at the same volume. Middle ear myoclonus is still there. Some days it is almost unnoticeable, while other days it becomes more bothersome. I have not been able to figure out what causes the...

Hi everyone, I have just joined the forum. I have been diagnosed with MEM. I experience an ear spasm that is really disconcerting and can last up to ten seconds in my left ear, occurring every couple of minutes. I have read that there may be a potential association with chronic upper back and...

Has anyone used Botox to confirm a diagnosis of middle ear myoclonus? My MEM is not consistent enough (although it happens everyday with some days being very difficult) to get a confirmed diagnosis. My neurotologist is willing to perform surgery where he cuts a small muscle that covers my...

Middle Ear Myoclonus: A Treatable Cause of Objective Tinnitus Caroline M. Kolb, (presenter) Denby Fukuda David Y. Healy, MD Abstract Objective: 1) Describe the presentation of an underdiagnosed cause of objective tinnitus. 2) Review the current literature and present an algorithm on diagnosis...

I have seen a lot of threads here mention Myoclonus as soon as someone reveals they have a low pitched sound. Can't regular tinnitus be low pitched too?

...periodically, thinking it is a non-malignant glioma or MVNT.) The ENT then sent me to a neurologist. The neurologist almost immediately diagnosed palatal myoclonus and put me on 250 mg of Depakote. Within 4 days, the persistent noise of 5+ months went silent. I am so grateful for this...

...are fine, and also to ENT. The ENT said that my ears look fine and my hearing was good. He said that it sounds like I have this palatal myoclonus, although as my palate was not twitching at this moment, he couldn't confirm. I take pregabalin already for pain relief and he said that this is...

I hope you’re doing okay. I hope you’re recovering. I’m 17 months into chronic, constant middle ear myoclonus and pulsating tinnitus, along with ear distortion, high-pitched screeching, and a Geiger counter–like ticking. Phenergan (Promethazine) is the only thing that helps me sleep. I’m...

...changes in intensity, and I am hoping it will help me. I can hear my nervous system rushing around my head. It has led to a middle ear myoclonus nervous response, hyperacusis, and reactive tinnitus, as the nervous system is all connected. I am seeing Joe Ierano in Sydney, Australia. He...

Hello! Male, in my early 50s. I'm seeking advice on how to treat essential palatal myoclonus. I've read a lot of the threads here, but I didn't know if there is anyone who here who has gone through it and recovered. Mine is quite bad. The story on how I acquired it is long and complicated, so I...

...me a clean bill of health. A few weeks later, the other ear became affected, and in the following days and weeks, I developed middle ear myoclonus (ear rumbling and buzzing), teeth chattering, jaw stiffness, facial spasms, and skin sensitivity on my face. This went on for over a year but...

...have had any answers. My hearing is normal, and they don’t think it’s Meniere’s, laryngitis, or vestibular neuritis. They checked my eardrum and said it’s fine, with no fluid in the middle ear. I wonder if it could be some kind of middle ear myoclonus since I experience thumping and fluttering.

...would spike, I noticed that my nose was clicking very fast, and when I looked in the mirror, it was almost the exact same situation. Needless to say it is also heard in the ears. Why is this happening, are antibiotics pro convulsant? I don't find anything about Amoxicillin and palatal...

I am scheduled to get the stapedius muscle cut to alleviate the constant clicking from middle ear myoclonus. Can someone who has had the surgery describe the recovery? Thank you. Don

Hi. I'm new to this site. I have been suffering from Inner ear myoclonus for 15 years now, and here is what I can tell you. It is episodic. It is 100% caused by STRESS, and no medications which suppress the CNS (Central Nervous System) work, as a matter of fact, it makes things much worse...

Hi Michael X, your symptoms match my own perfectly. It was diagnosed as Middle Ear Myoclonus. I have recently had intratympanic Botox treatment in the UK and it was wholly unsuccessful. I have had this 13 years now and am currently 2 months into my latest intense bout. So so annoying but...

I got palatal myoclonus this April. Then a hellish series of doctors appointments ensued, where almost no one knew what to do, or what to prescribe me. I was on Clonazepam, Baclofen, Carbamazepine, Oxcarbazepine, Sodium Valproate and nothing was helping at all. I was getting very desperate...

I'm pretty sure I have myoclonus or TTTS, read all I can. It's in my good, non T ear. It comes and goes. It's worse in bed. I got it in February after an anaesthetic and heavy cold. Any ideas on diet changes that help, or treatment I can do. Has anybody had it go? I have H too right now and feel...

...nuts. I can feel the twitching in the ears as well – on both sides. I’m interested in Botox for MEM treatment. I must say, I have a Palate Myoclonus as well and for this Botox works really well. Does anyone here have experience of this? They write a lot about MEM and Botox...

...(both ears, severe multiple electrical frequencies) Hyperacusis (both ears, worse in left) And I have been diagnosed with: Middle Ear Myoclonus (left ear) Eustachian Tube Dysfunction (both ears) Retracted Ear Drums (both ears) I have many other debilitating symptoms including: Pulling...

I have experienced what a neuro-surgeon diagnosed as right-ear stapedial and possibly tympanic tensor myoclonus in about five prolonged periods of two or three months each, over five or six years. I am currently into the fifth week of the latest spell of it. Does anyone else find it as...

...normal, but I wonder if there’s hidden damage in the low frequencies. I have a follow-up with an ENT next week. What the hell is it? Nerve damage? Middle ear myoclonus? Has anyone found any medication that helps? I’m willing to try anything at this point. It’s wrecking my sleep and mental...

...that lasts for over five minutes, and muffling. Unfortunately, I have seen an ENT, but no physical issues were identified. I had not heard of middle ear myoclonus before, but I will look into it. My hearing, as confirmed by an audiologist, is also unaffected. I hope your symptoms improve.

...for exactly 2 weeks and no relief. She then referred my to see another specialist and he said I possibly may have tensor tympani myoclonus. Recommendations were to take magnesium and B-2 supplement daily and to go on a migraine diet. Since I also suffer from migraines he thinks this could...

Middle ear myoclonus experts, I am struggling to figure out what's going on and having a hard time understanding exactly what symptoms middle ear myoclonus has versus Eustachian tube dysfunction. I will try to describe what is going on as best I can. About 10 days ago, I woke up in the middle...

...to sounds), I tried taking Magnesium and sinus rinses/nasal steroid spray. They had no effect at all. I've read online that Carbamazepine and some other anti-epileptic and muscle relaxer drugs can help both TTTS and MEM. There is a Facebook page "Middle Ear Myoclonus (MEM)" that you can check...

The following is a search on any discussions on Middle Ear Myoclonus. Check out the posts to see if there are helpful information. https://www.tinnitustalk.com/search/8779886/?q=Middle+ear+myoclonus&t=post&o=relevance&c[node]=11

...my left ear for more than a month. There are two possible suspects according to the doctor. This could be either ETD issue or a middle ear myoclonus. I had an ETD issue earlier but I don't have it anymore. However, the doctor still thinks that I might have a very mild ETD. I can make the...

...it's bad for your tinnitus). The thing is, I have been having spasms in my ears, or at least it feels like spasms. I think I'd want this examined, and hopefully I don't have myoclonus. I want to ask, do you need to be have a spasm outbreak for the tympanometer to detect this or not? Thank...

Hi all. Just found this group online so yay for that. I started having what has now been diagnosed as palatal myoclonus just since June of 2015. It started with a huge yawn and a CRACK of the corner of my jaw, not painful at all, and then an odd fluttering behind the eardrum of the opposite side...

It's been about a month and a half since I started having Middle Ear Myoclonus (MEM). Not confirmed by doctor, but signs seem to point to it. I'm having what seems to be Dysacusis because of it. Supposedly have conductive hearing loss, but I guess my MEM could be the cause. If you have or had...

...noise, like a fridge, it turns into a humming sound. The humming stops when my girlfriend speaks. I am considering possible causes such as Eustachian tube dysfunction (ETD), middle ear myoclonus (MEM), or possibly a bit of hyperacusis. Has anyone else experienced something similar? Thank you.

...ENT was anticlimactic at best. I went to HUP, the best place in town. The Dr literally just listened to my ear, said "you have middle ear myoclonus", explained the difference between the TT & stapes muscles, and gave me an Rx for muscle relaxers (Baclofen). This is the extent of medical...

I've been looking into myoclonus of the middle ear and there is a lot of literature about it and how it can cause tinnitus. I know there is a surgery where they cut the muscle so it cant contract and spasm. I wonder if that would improve some people's tinnitus. A lot of times when this is the...

I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have been jerking non stop for the last 3 weeks.

...very mild, I habituated quickly and got on with my life. 2017-present: I started experiencing episodes of what I now suspect is Middle Ear Myoclonus. Sounds like someone tapping on a microphone in my right ear. At first it happened once or twice a year and went away after a couple of hours...

Tonic Tensor Tympani Syndrome. I have the exact same thing. You are mixing in with the middle ear myoclonus, which is constant.

...return to baseline within a week. Like you said, I did mention that it’s too early to know the final outcome. But as of now, my middle ear myoclonus has gone from severe to completely resolved. I’ll update again once the rest of the packing is out, but I can’t imagine changing my mind about...

...distortion, or is it also known to be another form of tinnitus? What I'm going through is essentially dysacusis, although Stapedial Myoclonus seems to be the reason why I have it. With that said, Can a sore/irritated/possibly injured neck/jaw cause Stapedial Myoclonus? I've taken note that...