Yooo! I've had T for 3 weeks now. I've accepted that this will be a permanent condition so eh. Please do not tell me it will get better because I'm young. I have abused my ears during healing to cope with this. I've went to a loud ass IMAX theater and I've played music very low through my...
@ErikaS Yup, those random fleeting T moments actually make my other tones (reactive ones) nearly non-existent momentarily. Doesn’t last too long though
...only responding now! I typed a response a few days ago but guess I never hit post :)
Thank you for your sweet post. I have read about Sam's success with that and was so happy for her! I was actually on LDN for quite some during fertility treatments way before reactiveT came and ruined my...
...reactivity/sound sensitive aspect of tinnitus could be mitigated with these drugs? I know some put it under the umbrella of hyperacusis. I have not experienced loudness hyperacusis, only the most sensitive/reactivetinnitus. I need this sh*tto lessen just as much as I need the tinnitus to...
@SharonBell - if my T was not so reactive. If my ear did not hurt every time a fork dropped on a plate I believe I would be okay. I think the only road out for me is to just go out and live. Every time I do that I get a lot worse. I need to go and live a more quite life and my life with big...
@ErikaS I'm really not sure. I feel like when I have the fan on high that my tinnitus wants to compete with it, like it raises louder, but that's the only time that I notice it. Do you think that sounds like reactiveTto you or??
We have had some hot days here already and we have minisplits in our home since it doesn’t have duct work (mid century modern from 1960s) and they are basically like big fans blowing… awful on my reactiveT, literally no idea what I’m going to do all summer.
...40 and have wasted years with other health issues in the past and now feel like here I am again, life wasting away. Don’t be sorry for being negative I can relate and understand to how you feel, reactivetinnitus is ten levels above regular T and I would give anything just to go back to how I...
I work from home 90% of the time, if this wasn't the case I'd be well and truly screwed. @SilverFox because my T is reactive/maybe even dysacusis then it locks onto any sounds and I'll then wake up in an even worst state with my left ear going crazy and roasting hot. I'd never have dreamt in my...
This is total, absolute bullsh*t. If a person has reactivetinnitus/noxacusis, they ABSOLUTELY SHOULD isolate from noise. You base all your opinions on outdated nonsense sputtered by clueless audiologists.
Literally what I mentioned above. I absolutely agree with @Freerunner. Your advice is...
...20 yrs, and I'm still here - even though I hear it anywhere and everywhere. Over time, and with work (CBT or the likes), you can train the brain not to focus on t. Even with fluctuating and reactivet. Its still there, but the brain process it differently, and it often fades into the background.
@Jackson Brady I firmly believe a big part of what feeds reactivetinnitus is our emotional response to sound. Think about it, ppl with reactivet are almost always in a state of panic and despair. Is it going to ever go away? “Is this my life forever? Omg what was that sound? My life is over!”...
Early on my T was highly reactive so masking was never a option unfortunately. So I guess my brain just naturally adapted to not being able to mask. Which Is really sad in a way.
My T gets irritated from certain noises usually higher frequencies like running water/fan/vacuum you get the idea. But it's never permanent and always short lived. I try not to think about it too much like i used to. But definitely less reactivethan it used to be.
...but I used what I thought was pretty ample protection. But I also came off the heels of being sick for 3weeks. It’s so hard to know what causes a spike. And now evidently reactiveT is a form of hyperacusis. My Audiologist said it could be that I’m overprotecting. All I know is I want it...
This question is for people who have tthat gets louder with sound...does the sound reactiveness ever stop? I get it that maybe t will or will not go away, but does the kind that gets louder with noise ever settle down to a steady sound with no reaction? It is so hard to go anywhere anymore.
...been wondering how you are doing? Kinda felt like your mentor at one point lol, what have you been up to? I hope your inactivity here has meant you’re finally managing relatively okay with reactiveT and life is becoming enjoyable once more especially in these summer days. Wishing you the best.
2 months ago. Include reactivet, dysacusis.. my tinnitus is nuts till then. A lot of new tones etc. H started after valsalva maneuver, I guess.. my t got loud and I panicked..
@DeanD so I have only had two sessions, the sound involved doesn’t make my reactiveT worse or anything. Can’t speak on improvement yet, nor would I expect to.
...I think my tolerance has gone down after each setback and it takes a bit longer to heal, to be honest. I have loudness H with discomfort/burning and aural fullness. Symptoms fluctuated a lot - my last setback actually brought up some new symptoms that really scared me (dysacusis and reactiveT)
@Amv honestly since onset my T was always lower at baseline. However I gained more tones as time went on when I got sick, and it is sound sensitive/reactive, especially my ultra high tones/electric hiss, so that will become more intrusive with constant running sounds or like watching TV. My T...
So I have had 4 separate diagnoses of eustachian tube dysfunction due to allergies.
In November, I got ringing in my ears, that was the first tinnitus I got.
In December, my right ear began having a low humming noise as well.
In early February I got a single, high tone that flutters, sort of...
@Sammy0225 Following your story has been giving me hope along the way, I have T, H, TTTS, and now new reactive/distortion tones as well and I know you’ve been seeing improvement lately so that gives me some encouragement to keep going. Thank you for the kind words :)
My T is also reactive, figuring out if stress is the major big cause, with use of earplugs. Seems that after wearing them your ears cant cope with louder sounds.
No, he is promoting additional sound exposure without recognizing severe/reactive cases that will be harmed by it. His advice may be harmless but largely irrelevant for mild cases, as most mild cases will habituate with time. He brings negative value, in my opinion. The only shred of valuable...
I am new to T for about 4 months now. It was giving me good days and bad days but suddenly I am not getting the days when it lowered to low buzzing.....it's been four days now and it's screaming away like a tea kettle with no relief. My question is it common for it to "not like" something like...
@lostyruck, I am doing fine, enjoying my life as much as I can. Yes I had 2 episodes of hyperacusis and reactivetinnitus. I become less bothered by T when H faded, and so habituation kicked in. I didn't have intense aches from H but when sound was loud I felt discomforts as if my ears got...
Damn really for years!? Yeah same mine thumps like when something like a pen falls on the ground thankfully it doesn't do it to things like conversations but it's still annoying. Do you have loudness H or reactiveT? Life has been limited these past few months
@Sammy0225 Ive been doing alright. Trying to live some kind of life while balancing the ever present fear that I have ticking time bombs in my head. Ya know, the usual. My T&H seem to really feed on my TMJ, so that’s nice haha I’m sorry the reactive is back. Are you back to sound isolation or...
Hi,
I’ve had really awful reactivetinnitus that spiked and fluctuated after both of my bouts with tinnitus, following 17 years of mild tinnitus.
The first spike, after my initial infection, took 18 months to calm down. The second spike, after the second infection, took a few weeks.
I...
I just feel like if very “important”, well known people dealt with the debilitation of severe T, reactiveT, hyperacusis, we would hear more about it. I would just think they would try all the TMS or stem cell type things, or, they would find a doctor willing to do something for them that hasn’t...
@Nadia231 Of course, I always still protect in noisy situations and avoid very loud situations, but I feel more in control when I frame it this way. I'm also lucky that my T has been stable and (mostly) non-reactive.
@Nadia231 yes I have been spiking pretty bad lately and have worsened tona horrible place I don't know how to fix it my T is buzzing and reactive it reacts to everything
...reducing until it became masked by my usual 6 and 12 kHz tones. I don’t notice it anymore at all.
The same thing didn’t work for my other tones, though, unfortunately. I am very reactiveto residual inhibition. I can play any frequency, and my tinnitus will disappear completely for half a...
Hi @Samy , just wanted to send you love and support as I know we both are dealing with multi-tone reactiveT, and I know you’re dealing with an H setback. Here if you ever need to vent ! We can improve and overcome this :)
It's an alien concept like T/H in the medical field. Sound bounces, booms around inside my head which immediately ramps up reactiveT. Torment. Relieves me so much when you said that...to be understood a bit. Thank you
...you have H/T is a big step! Do you think this comes from the brain retraining?
Yes I did do a stem cell procedure 3 weeks ago. No improvement as of yet, struggling mentally. I started a brain retraining therapy too, however I find it very hard to do with multi-tone reactiveT. Nothing is easy.
Hi I've been having intermittent "static/electrical" noise that comes and goes all day.. Seems to be really bad when I first wake up and progressively get a little better throughout the day. Then I go to bed it it restarts again the next morning. It seems to be triggered by noises like bottle...
Hey friend, you’d think I know this answer by now with how much we have conversed over the past months, but I want to confirm just given your improvement. When you speak about your reactivity that is improving, is this the reactivity characterized by T spiking/winding up to those constant sounds...
I'm sorry. I know how your feeling. Loosing sleep is absolutely the worst. T is hard enough to manage with good/decent sleep. Since my T became reactive in May I've had to re-jigger my process. I hope you find something that works for you SOON! Don't forget to use your toolbox. You have some...
For reactiveT is very bad to try residual inhibition protocols at sleep this is from my experience.
ReactiveT improves with silence total silence or very low sounds.
If you have reactiveT and expose yourself to sounds T will become unmanageable.
My T is reactive and i have found that only 0db...