Search results for query: reactive T

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  1. Kazue

    Anyone Else with Reactive Tinnitus?

    Yooo! I've had T for 3 weeks now. I've accepted that this will be a permanent condition so eh. Please do not tell me it will get better because I'm young. I have abused my ears during healing to cope with this. I've went to a loud ass IMAX theater and I've played music very low through my...
  2. ZFire

    @ErikaS Yup, those random fleeting T moments actually make my other tones (reactive ones) nearly...

    @ErikaS Yup, those random fleeting T moments actually make my other tones (reactive ones) nearly non-existent momentarily. Doesn’t last too long though
  3. ErikaS

    Hi @DebInAustralia so sorry I am only responding now! I typed a response a few days ago but...

    ...only responding now! I typed a response a few days ago but guess I never hit post :) Thank you for your sweet post. I have read about Sam's success with that and was so happy for her! I was actually on LDN for quite some during fertility treatments way before reactive T came and ruined my...
  4. ErikaS

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    ...reactivity/sound sensitive aspect of tinnitus could be mitigated with these drugs? I know some put it under the umbrella of hyperacusis. I have not experienced loudness hyperacusis, only the most sensitive/reactive tinnitus. I need this sh*t to lessen just as much as I need the tinnitus to...
  5. 4Grace

    @SharonBell - if my T was not so reactive. If my ear did not hurt every time a fork dropped on a...

    @SharonBell - if my T was not so reactive. If my ear did not hurt every time a fork dropped on a plate I believe I would be okay. I think the only road out for me is to just go out and live. Every time I do that I get a lot worse. I need to go and live a more quite life and my life with big...
  6. SarahMLFlemmer

    @ErikaS I'm really not sure. I feel like when I have the fan on high that my tinnitus wants to...

    @ErikaS I'm really not sure. I feel like when I have the fan on high that my tinnitus wants to compete with it, like it raises louder, but that's the only time that I notice it. Do you think that sounds like reactive T to you or??
  7. B

    What is reactive T?

    What is reactive T?
  8. ErikaS

    We have had some hot days here already and we have minisplits in our home since it doesn’t have...

    We have had some hot days here already and we have minisplits in our home since it doesn’t have duct work (mid century modern from 1960s) and they are basically like big fans blowing… awful on my reactive T, literally no idea what I’m going to do all summer.
  9. Cmspgran

    So sorry you are feeling this way, I can completely relate I’m 40 and have wasted years with...

    ...40 and have wasted years with other health issues in the past and now feel like here I am again, life wasting away. Don’t be sorry for being negative I can relate and understand to how you feel, reactive tinnitus is ten levels above regular T and I would give anything just to go back to how I...
  10. ErikaS

    Entering 2023 with all middle fingers up to my reactive T! TRT eval on Feb 3rd. Grateful to be...

    Entering 2023 with all middle fingers up to my reactive T! TRT eval on Feb 3rd. Grateful to be in city with a top rated TRT specialist.
  11. Cmspgran

    I work from home 90% of the time, if this wasn't the case I'd be well and truly screwed...

    I work from home 90% of the time, if this wasn't the case I'd be well and truly screwed. @SilverFox because my T is reactive/maybe even dysacusis then it locks onto any sounds and I'll then wake up in an even worst state with my left ear going crazy and roasting hot. I'd never have dreamt in my...
  12. AnthonyMcDonald

    A Year of Reactive Tinnitus and Severe Hyperacusis

    This is total, absolute bullsh*t. If a person has reactive tinnitus/noxacusis, they ABSOLUTELY SHOULD isolate from noise. You base all your opinions on outdated nonsense sputtered by clueless audiologists. Literally what I mentioned above. I absolutely agree with @Freerunner. Your advice is...
  13. MindOverMatter

    @SarahMLFlemmer I've had t for about 20 yrs, and I'm still here - even though I hear it anywhere...

    ...20 yrs, and I'm still here - even though I hear it anywhere and everywhere. Over time, and with work (CBT or the likes), you can train the brain not to focus on t. Even with fluctuating and reactive t. Its still there, but the brain process it differently, and it often fades into the background.
  14. SmallRonnie

    Ordered long cables so I can put this PC in another room and stop this reactive T

    Ordered long cables so I can put this PC in another room and stop this reactive T
  15. Sammy0225

    @Jackson Brady I firmly believe a big part of what feeds reactive tinnitus is our emotional...

    @Jackson Brady I firmly believe a big part of what feeds reactive tinnitus is our emotional response to sound. Think about it, ppl with reactive t are almost always in a state of panic and despair. Is it going to ever go away? “Is this my life forever? Omg what was that sound? My life is over!”...
  16. Sammy0225

    Early on my T was highly reactive so masking was never a option unfortunately. So I guess my...

    Early on my T was highly reactive so masking was never a option unfortunately. So I guess my brain just naturally adapted to not being able to mask. Which Is really sad in a way.
  17. ErikaS

    3 mos. since T onset, R ear is very reactive. I have ENT willing to do intratymp. dex shot. Any...

    3 mos. since T onset, R ear is very reactive. I have ENT willing to do intratymp. dex shot. Any case known where this made it worse?
  18. Marshall

    My T gets irritated from certain noises usually higher frequencies like running water/fan/vacuum...

    My T gets irritated from certain noises usually higher frequencies like running water/fan/vacuum you get the idea. But it's never permanent and always short lived. I try not to think about it too much like i used to. But definitely less reactive than it used to be.
  19. Matt G

    Don’t want to jinx anything, but H & Severe reactive T are definitely healing. A few weeks ago I...

    Don’t want to jinx anything, but H & Severe reactive T are definitely healing. A few weeks ago I never guessed T & H could be this tame.
  20. Forever hopeful

    @Nick23 started couple hours after I was out to dinner for my birthday a week and a half ago...

    ...but I used what I thought was pretty ample protection. But I also came off the heels of being sick for 3weeks. It’s so hard to know what causes a spike. And now evidently reactive T is a form of hyperacusis. My Audiologist said it could be that I’m overprotecting. All I know is I want it...
  21. B

    Does Sound Reactive Tinnitus Ever Change?

    This question is for people who have t that gets louder with sound...does the sound reactiveness ever stop? I get it that maybe t will or will not go away, but does the kind that gets louder with noise ever settle down to a steady sound with no reaction? It is so hard to go anywhere anymore.
  22. Travis Henry

    I love you brother, I am suffering through every second of everyday with reactive t and loudness...

    I love you brother, I am suffering through every second of everyday with reactive t and loudness H . T is so so sooooooo loud.
  23. ZFire

    Hi @Ava Lugo. It’s been a while. been wondering how you are doing? Kinda felt like your mentor...

    ...been wondering how you are doing? Kinda felt like your mentor at one point lol, what have you been up to? I hope your inactivity here has meant you’re finally managing relatively okay with reactive T and life is becoming enjoyable once more especially in these summer days. Wishing you the best.
  24. A

    2 months ago. Include reactive t, dysacusis.. my tinnitus is nuts till then. A lot of new tones...

    2 months ago. Include reactive t, dysacusis.. my tinnitus is nuts till then. A lot of new tones etc. H started after valsalva maneuver, I guess.. my t got loud and I panicked..
  25. ErikaS

    @DeanD so I have only had two sessions, the sound involved doesn’t make my reactive T worse or...

    @DeanD so I have only had two sessions, the sound involved doesn’t make my reactive T worse or anything. Can’t speak on improvement yet, nor would I expect to.
  26. M

    It's hard to explain.. I think my tolerance has gone down after each setback and it takes a bit...

    ...I think my tolerance has gone down after each setback and it takes a bit longer to heal, to be honest. I have loudness H with discomfort/burning and aural fullness. Symptoms fluctuated a lot - my last setback actually brought up some new symptoms that really scared me (dysacusis and reactive T)
  27. A

    anti inflammitory diet for the reactive t and the h. my body will heal and i will lose it. For sure.

    anti inflammitory diet for the reactive t and the h. my body will heal and i will lose it. For sure.
  28. sakrt

    Have something like this. Have mix of autophony, hyperacusis which immediately ramps up reactive T.

    Have something like this. Have mix of autophony, hyperacusis which immediately ramps up reactive T.
  29. ErikaS

    @Amv honestly since onset my T was always lower at baseline. However I gained more tones as time...

    @Amv honestly since onset my T was always lower at baseline. However I gained more tones as time went on when I got sick, and it is sound sensitive/reactive, especially my ultra high tones/electric hiss, so that will become more intrusive with constant running sounds or like watching TV. My T...
  30. Hil

    What the Heck Is Going On? (New Reactive Sounds Developing)

    So I have had 4 separate diagnoses of eustachian tube dysfunction due to allergies. In November, I got ringing in my ears, that was the first tinnitus I got. In December, my right ear began having a low humming noise as well. In early February I got a single, high tone that flutters, sort of...
  31. PennyCat

    @Sammy0225 Following your story has been giving me hope along the way, I have T, H, TTTS, and...

    @Sammy0225 Following your story has been giving me hope along the way, I have T, H, TTTS, and now new reactive/distortion tones as well and I know you’ve been seeing improvement lately so that gives me some encouragement to keep going. Thank you for the kind words :)
  32. M

    Is you're T reactive??... Sorry you're feeling like shit. What caused ur T again?

    Is you're T reactive??... Sorry you're feeling like shit. What caused ur T again?
  33. Rockman

    Fellow reactive t people. Sounds drive it crazy but you know aren't harmful. Do you listen to it...

    Fellow reactive t people. Sounds drive it crazy but you know aren't harmful. Do you listen to it or run for the hills?
  34. IntotheBlue03

    Hi was your T reactive as well?

    Hi was your T reactive as well?
  35. J

    My T is also reactive, figuring out if stress is the major big cause, with use of earplugs...

    My T is also reactive, figuring out if stress is the major big cause, with use of earplugs. Seems that after wearing them your ears cant cope with louder sounds.
  36. gameover

    A Year of Reactive Tinnitus and Severe Hyperacusis

    No, he is promoting additional sound exposure without recognizing severe/reactive cases that will be harmed by it. His advice may be harmless but largely irrelevant for mild cases, as most mild cases will habituate with time. He brings negative value, in my opinion. The only shred of valuable...
  37. A

    T is the first time after relapse a little bit calmer and not so reactive. I try to stay away...

    T is the first time after relapse a little bit calmer and not so reactive. I try to stay away from electronic sound since three days.
  38. Luvkitties

    A Few Questions (Reactive Tinnitus?)

    I am new to T for about 4 months now. It was giving me good days and bad days but suddenly I am not getting the days when it lowered to low buzzing.....it's been four days now and it's screaming away like a tea kettle with no relief. My question is it common for it to "not like" something like...
  39. Travis Henry

    I love you and so sorry you are suffering. Sounds like your t is as reactive as mine.

    I love you and so sorry you are suffering. Sounds like your t is as reactive as mine.
  40. Marshall

    Never realized how much white noise is out there until I got reactive T holy shit

    Never realized how much white noise is out there until I got reactive T holy shit
  41. LostinTX

    Is my T reactive? When I lay down to sleep my T goes down as I burrow my head between 2 pillows...

    Is my T reactive? When I lay down to sleep my T goes down as I burrow my head between 2 pillows, no sound gets in. Second awake it's louder
  42. billie48

    @lostyruck, I am doing fine, enjoying my life as much as I can. Yes I had 2 episodes of...

    @lostyruck, I am doing fine, enjoying my life as much as I can. Yes I had 2 episodes of hyperacusis and reactive tinnitus. I become less bothered by T when H faded, and so habituation kicked in. I didn't have intense aches from H but when sound was loud I felt discomforts as if my ears got...
  43. A

    I didn't really knew, how good I was with only tinnitus. Reactive t with h is so much more to...

    I didn't really knew, how good I was with only tinnitus. Reactive t with h is so much more to handle. I am early in, but still
  44. Sammy0225

    Damn really for years!? Yeah same mine thumps like when something like a pen falls on the ground...

    Damn really for years!? Yeah same mine thumps like when something like a pen falls on the ground thankfully it doesn't do it to things like conversations but it's still annoying. Do you have loudness H or reactive T? Life has been limited these past few months
  45. Moni97

    @Sammy0225 Ive been doing alright. Trying to live some kind of life while balancing the ever...

    @Sammy0225 Ive been doing alright. Trying to live some kind of life while balancing the ever present fear that I have ticking time bombs in my head. Ya know, the usual. My T&H seem to really feed on my TMJ, so that’s nice haha I’m sorry the reactive is back. Are you back to sound isolation or...
  46. Stayinghopeful

    Beat COVID-19, Until Tinnitus Had Other Plans

    Hi, I’ve had really awful reactive tinnitus that spiked and fluctuated after both of my bouts with tinnitus, following 17 years of mild tinnitus. The first spike, after my initial infection, took 18 months to calm down. The second spike, after the second infection, took a few weeks. I...
  47. ErikaS

    I just feel like if very “important”, well known people dealt with the debilitation of severe T...

    I just feel like if very “important”, well known people dealt with the debilitation of severe T, reactive T, hyperacusis, we would hear more about it. I would just think they would try all the TMS or stem cell type things, or, they would find a doctor willing to do something for them that hasn’t...
  48. CRGC

    @Nadia231 Of course, I always still protect in noisy situations and avoid very loud situations...

    @Nadia231 Of course, I always still protect in noisy situations and avoid very loud situations, but I feel more in control when I frame it this way. I'm also lucky that my T has been stable and (mostly) non-reactive.
  49. Mal25

    @Nadia231 yes I have been spiking pretty bad lately and have worsened tona horrible place I...

    @Nadia231 yes I have been spiking pretty bad lately and have worsened tona horrible place I don't know how to fix it my T is buzzing and reactive it reacts to everything
  50. J

    New University of Michigan Tinnitus Discovery — Signal Timing

    ...reducing until it became masked by my usual 6 and 12 kHz tones. I don’t notice it anymore at all. The same thing didn’t work for my other tones, though, unfortunately. I am very reactive to residual inhibition. I can play any frequency, and my tinnitus will disappear completely for half a...
  51. ErikaS

    Hi @Samy , just wanted to send you love and support as I know we both are dealing with...

    Hi @Samy , just wanted to send you love and support as I know we both are dealing with multi-tone reactive T, and I know you’re dealing with an H setback. Here if you ever need to vent ! We can improve and overcome this :)
  52. sakrt

    It's an alien concept like T/H in the medical field. Sound bounces, booms around inside my head...

    It's an alien concept like T/H in the medical field. Sound bounces, booms around inside my head which immediately ramps up reactive T. Torment. Relieves me so much when you said that...to be understood a bit. Thank you
  53. ErikaS

    Just saw this now, @Samy .. Wow, it sounds like you have made some improvements?? To be able to...

    ...you have H/T is a big step! Do you think this comes from the brain retraining? Yes I did do a stem cell procedure 3 weeks ago. No improvement as of yet, struggling mentally. I started a brain retraining therapy too, however I find it very hard to do with multi-tone reactive T. Nothing is easy.
  54. Kayla L

    Intermittent Buzzing / Static / Reactive Noise

    Hi I've been having intermittent "static/electrical" noise that comes and goes all day.. Seems to be really bad when I first wake up and progressively get a little better throughout the day. Then I go to bed it it restarts again the next morning. It seems to be triggered by noises like bottle...
  55. ErikaS

    Hey friend, you’d think I know this answer by now with how much we have conversed over the past...

    Hey friend, you’d think I know this answer by now with how much we have conversed over the past months, but I want to confirm just given your improvement. When you speak about your reactivity that is improving, is this the reactivity characterized by T spiking/winding up to those constant sounds...
  56. M

    My T is very reactive!!! to music, AC, fans, cars sound ect... is it normal to have...

    My T is very reactive!!! to music, AC, fans, cars sound ect... is it normal to have pulsatile/somatic/reactive T at same time!!??
  57. Matt G

    Chirp is here to stay. Is incredibly reactive and the loudest, most shrill T I’ve ever had. I...

    Chirp is here to stay. Is incredibly reactive and the loudest, most shrill T I’ve ever had. I can’t escape this one.
  58. aot

    Reactive T, as far as I know, has the same causes as normal T. I don't see why it wouldn't work...

    Reactive T, as far as I know, has the same causes as normal T. I don't see why it wouldn't work on Reactive T. Don't give up hope! *hugs*
  59. BrOKeN_1

    I'm sorry. I know how your feeling. Loosing sleep is absolutely the worst. T is hard enough to...

    I'm sorry. I know how your feeling. Loosing sleep is absolutely the worst. T is hard enough to manage with good/decent sleep. Since my T became reactive in May I've had to re-jigger my process. I hope you find something that works for you SOON! Don't forget to use your toolbox. You have some...
  60. 1

    Retigabine (Trobalt, Potiga) — General Discussion

    For reactive T is very bad to try residual inhibition protocols at sleep this is from my experience. Reactive T improves with silence total silence or very low sounds. If you have reactive T and expose yourself to sounds T will become unmanageable. My T is reactive and i have found that only 0db...