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Fournier and Noreña recently released an interesting paper that somewhat follows up their 2018 acoustic shock study. In the study, one of the...
To answer that, you would need to look at how hyperacusis patients responded to Trobalt. Might give clues.
I'm not being judgemental at all here, but I don't give a flying fuck about silence. I had (and still do, to an extent) have multi-tonal,...
Do you still feel that XEN1101 will benefit hyperacusis sufferers as well? This is one of the potential treatments I'm really hoping will help.
Pretty sure Otologic Pharmaceutics is part of Hough Ear Institute.
I am a recording musician (home studio) with all three conditions and otalgia (ear pain from normal sounds) in particular has been my biggest...
It was both. At this point I would not recommend it, I think one needs to have a decently high concentration of growth factors and/or exosomes on...
Good to hear your hyperacusis is better. Was that loudness or pain hyperacusis? I hope it works out well for you. Good sign that you're...
If you really go through the Trobalt User Experiences thread with a fine tooth comb and focus on the users that used Trobalt at c. 900mg...
Maybe Otologic will take it over. It does look promising though. I'd imagine there would be some VC who would like to fund it since it's already...
I think the goal is to remove those who are attempting to enter the trial for their tinnitus and not hearing loss. If the treatment is successful...
Manipulative and so unfair! Please, this is a support group. He is not only speaking about the loss of silence but about a level of tinnitus...
Wonder if people with hyperacusis will benefit from this?
Hi dolpinskin, I am just extra cautious and may inform myself a little too much before receiving medical care! I think it's promising that a...
I wanted to start a new thread specifically on Stem Cell Secretome (SCS). It is a Stem Cell-based regenerative treatment, but without the cells...
Hello everyone, just wanted to share my experience. I apologize for the long story in advance, but I am just trying to put every detail in it. My...
I would not go anywhere near HBO therapy. A lot of people have worsened and without surprise due to middle ear pressurisation issues....
Not seen you around in a while @Philip83. Hope you're keeping well and that the hearing aids are continuing to work for you. In any case, should...
Tom, I wish you and your travel companion much better luck than I had. Just a warning: if the first treatments worsen you and the tinnitus...
I need some help trying to understand the method of action of certain pharmaceutical products. If there are any biochemists, chemists, deep-dive...
With its recent chair change, maybe it's time to write an open letter to BTA and Deanne Thomas - something communicated on the Tinnitus Talk...
Good to see the suicidal thread take the direction of earmuffs fashion... we need a break. However, going back to @Jerad, This condition is...
Yup, I figured as much. Seems there’s always a catch with tinnitus and hyperacusis. My experience so far, at least. With treatments, trying...
Couldn’t agree more, ENTs, neurologists, doctors, you name it, know absolutely nothing about tinnitus/hyperacusis here, only what they read...
In addition to my previous post, here is an interesting part of the book 'Hyperacusis and Disorders of Sound Intolerance: Clinical and Research...
Interesting. There is a huge difference between cannabis withdrawal and benzo withdrawal. I could definitely believe benzo withdrawal caused or...
Hi, I have mild to no pain hyperacusis but I wanted to make a post regarding a supplement I have tried, which is also supported by positive lab...
I honestly think that there are so many factors in the development of tinnitus that we never really know why. My otologist out of Mass Eye and Ear...
Don't listen to your doctor. Stay away from taking any drugs as much as you can. Especially benzos or antidepressants. Staying clean is the best...
If British GPs are not referring on patients who are presenting with tinnitus - it may be they hold the view that there is no treatment available....
Cannabidiol (CBD) is a non-psychoactive cannabinoid found in the cannabis plant. It is available on prescription under the brand name Epidiolex as...
Section V. Sound Therapy and Beyond This section was all about new approaches to sound therapy, including bimodal stimulation. I can be brief...
I'm currently going through a relapse in pain hyperacusis after being free of it for 5 months, although had tinnitus all that time still. I got...
Sorry but that sounds like total bollocks. "Flupirtine exhibits efficacy on all four subunits, Kv7.2, Kv7.3, Kv7.4 and Kv7.5, with an apparent...
It’s clear that both can be caused by noise. What also seems to be the case is that for a majority of people hyperacusis tends to “clear up” on...
Hi ThorOdinson. Thank you for the additional information. I haven't had Labyrinthitis but have corresponded with people that have experienced it....
For about six months now I've also been experiencing exactly these things you describe. The spiking sounds, which typically last less than .5...
I've received another email response to some questions. It seems the end goal for the study is to identify potential neural biomarkers for...
Although I have a very superficial understanding of this matter, I wonder why researchers haven't continued on this particular track of finding a...
I have quite bad tinnitus and hyperacusis - the last few years have been very much up and down and while I feel I have habituated to the tinnitus...
Whatever you do, do not take any medications! They can lower your sound tolerance and make tinnitus reactive and extremely worse. Stay the course...
So I've done some quick searches on Google and apparently cannabidiol (CBD) is a Kv2/7.3 channel opener too. A paper published in February 2022...
After 7 years of living with mild/moderate tinnitus and hyperacusis I had a worsening 2 weeks ago that has become unbearable. The event that...
It does not sound severe to me, actually pretty normal. Certainly, this can be very frightening, but most people do recover. I hope you have...
I’m so sorry you’re going through this. I don’t have hyperacusis but the spikes you describe are me. Knives being sharpened for a short period of...
I think I'll treat the background I have and my own research as trumping your wall of text on the subject. One PDF you definitely didn't take the...
[MEDIA] For those that scoff or ridicule the suicidal sufferers, they should understand their sufferings, why they think the way they do, or why...
Hi @OnlyUP. I am pleased that you have found some of my posts helpful. @Coffeebean, successfully treated his tinnitus and hyperacusis with...
Tinnitus has likely treatment potential but pain hyperacusis is in the dark. You figure the community would just accept that and willingly give...
The thing is though we’re not repairing them or “fixing” most of them, we’re bypassing them or creating new hair cells beside the damaged old hair...
I went to the GP today and turns out I have no ear infection. Maybe some people on here are right about incompetent medical professionals... Good...
Hi @Brock WS You can can contact me any time so please do not worry. I want to address the issue of "Reactive tinnitus" that you refer to. I...
Hard Agree. This is why academics, researchers, companies, CEOs, etc, setup Q&A events or interviews with people like those running the...
Right on brother, only thing I don’t agree with is the afterlife, but everything else I agree with. For me personally I think after death there is...
I’m pretty convinced that having the combination of ultra severe or catastrophic tinnitus / hyperacusis is in the top 10 worst things you can get...
Everything you said may be true, which is why I’m fighting this crap. I refuse to give in to it.
I know how bad things have been for you @Theezy - hang in there! I am going through the same, am also catastrophic and bedbound now and have same...
I can never imagine the hell you're going through. I have pretty bad sound sensitivity and reactivity of the tinnitus, but not to the extent...
A lot of people with noise induced tinnitus don't have any hearing loss and if they do, it's usually slight not enough to warrant the use of...
Hi @SamRosemary. You are welcome. The additional information you have given is very helpful. The fact that you don't use headphones is good and...
